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Havoc- Agreed. It didn't tell me anything I didn't already know. The pulmonary stats were also very vague.

Havoc- Agreed. It didn't tell me anything I didn't already know. The pulmonary stats were also very vague.

@rainsmom, I already sent livingstrong a PM on your behalf. Also, you could try starting a new thread with her name in the subject line instead of just randomly asking for her in other threads. Maybe try asking the forum what it is you'd like to know from livingstrong and see if someone else can...

@rainsmom, I already sent livingstrong a PM on your behalf. Also, you could try starting a new thread with her name in the subject line instead of just randomly asking for her in other threads. Maybe try asking the forum what it is you'd like to know from livingstrong and see if someone else can...

File not found.

File not found.

Queen- Another one bites the dust "How do you think I'm going to get along without you when you're gone"

Can the teacher wear a mask during these private sessions. Its sounds like your daughter really loves this teacher and they could probably be a real inspiration to her that people with CF can succeed. Hope you figure out a way to make it work!

Can the teacher wear a mask during these private sessions. Its sounds like your daughter really loves this teacher and they could probably be a real inspiration to her that people with CF can succeed. Hope you figure out a way to make it work!

I don't think so.

I don't think so.

That's awesome! Your little guy sounds like a laugh a minute. You should be very proud!! And by the way, I don't think there is a socially acceptable way for a 7yo to pass gas so when nature calls just let it rip!!

That's awesome! Your little guy sounds like a laugh a minute. You should be very proud!! And by the way, I don't think there is a socially acceptable way for a 7yo to pass gas so when nature calls just let it rip!!

Its measured with the Vertex drugs because they were designed to reduce sweat chloride plain and simple. Having a high sweat chloride level is not an indication of severity with the disease. Its just a strong indication that a person most definitely does have CF. At least thats the way it was...

Its measured with the Vertex drugs because they were designed to reduce sweat chloride plain and simple. Having a high sweat chloride level is not an indication of severity with the disease. Its just a strong indication that a person most definitely does have CF. At least thats the way it was...

Your doctor's right. You're daughter has probably had the pseudo for a while and therefore will not easily be able to get rid of it. If you give her too many antibiotics the pseudo may become resistant and harder to treat. Thats just my opinion though and some people may suggest 3 months of...

Your doctor's right. You're daughter has probably had the pseudo for a while and therefore will not easily be able to get rid of it. If you give her too many antibiotics the pseudo may become resistant and harder to treat. Thats just my opinion though and some people may suggest 3 months of...

I looked at a few recent articles online and it appears that a direct correlation between genotype and phenotype has not been scientifically established and that variabilty is the highest when it comes to progression of pulmonary disease. This does not mean that a correlation doesn't exist. My...

I looked at a few recent articles online and it appears that a direct correlation between genotype and phenotype has not been scientifically established and that variabilty is the highest when it comes to progression of pulmonary disease. This does not mean that a correlation doesn't exist. My...

You know any double deltas that were diagnosed in their 50's because I sure don't? Modifier genes do change specific outcomes for people with the same genotype but I do believe that some aspect of severity is related to the genotype with I and II homozygotes being and severe and people with...