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  1. R

    Late Diagnosis of atypical or "variant" CF questions-late onset PI?

    Thanks Printer...I am rather quickly seeing what you mean. Since my symptoms have progressed, and I am responding to my new treatments, I am no longer willing to be dismissed. After doing my own research here, I believe that my referral for care shouldn't depend solely on if I have a "common"...
  2. R

    Late Diagnosis of atypical or "variant" CF questions-late onset PI?

    Thanks Printer...I am rather quickly seeing what you mean. Since my symptoms have progressed, and I am responding to my new treatments, I am no longer willing to be dismissed. After doing my own research here, I believe that my referral for care shouldn't depend solely on if I have a "common"...
  3. R

    Late Diagnosis of atypical or "variant" CF questions-late onset PI?

    Late Diagnosis of atypical or Thanks Just Ducky. You are so right, atypical cases seem to present such a challenge. My genetics clinic seems to be confused with me because the screen came back negative. They said if I came back with at least one mutation they'd refer me to a pulmonologist. As...
  4. R

    Late Diagnosis of atypical or "variant" CF questions-late onset PI?

    Late Diagnosis of atypical or Thanks Just Ducky. You are so right, atypical cases seem to present such a challenge. My genetics clinic seems to be confused with me because the screen came back negative. They said if I came back with at least one mutation they'd refer me to a pulmonologist. As...
  5. R

    Late Diagnosis of atypical or "variant" CF questions-late onset PI?

    Hello, I am looking for help. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just received my results from a standard mutation screen (50 mutations?) and they were negative. I would think this would be good, but I'm still without answers. I am feeling a bit lost<img...
  6. R

    Late Diagnosis of atypical or "variant" CF questions-late onset PI?

    Hello, I am looking for help. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just received my results from a standard mutation screen (50 mutations?) and they were negative. I would think this would be good, but I'm still without answers. I am feeling a bit lost<img...
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