Cystic Fibrosis Forum (EXP)

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  1. J

    Relationship between CF and Klinefleters Syndrome (47XXY) in men

    Yes, I know that, I am a 47,XXYer, I am genetically a women in a man's body. Thought it was appropriate, that there was a red haired women (girl), that I can associate with. I look male, but my primary hormone is not testosterone, it is estrogen. Thanks for noticing. Cheers, John Shannon
  2. J

    Relationship between CF and Klinefleters Syndrome (47XXY) in men

    Yes, I know that, I am a 47,XXYer, I am genetically a women in a man's body. Thought it was appropriate, that there was a red haired women (girl), that I can associate with. I look male, but my primary hormone is not testosterone, it is estrogen. Thanks for noticing. Cheers, John Shannon
  3. J

    Relationship between CF and Klinefleters Syndrome (47XXY) in men

    I am new to the forum and am currently being tested for CF against gene Delta F508, which I've been told is the most common gene mutation. I am a klinefleter, with low testosterone, very low BMD, low calcium, vitamin D deficiency, on 2000 IU of supplements a day. Might contact the M.I.N.D...
  4. J

    Relationship between CF and Klinefleters Syndrome (47XXY) in men

    I am new to the forum and am currently being tested for CF against gene Delta F508, which I've been told is the most common gene mutation. I am a klinefleter, with low testosterone, very low BMD, low calcium, vitamin D deficiency, on 2000 IU of supplements a day. Might contact the M.I.N.D...
  5. J

    In a crappy situation need some words of wisdom

    Hey D1G1L10, I was doubled over in intense stomach pain last night, having an adverse reaction to Metronidazole, which I was taking to stop persistent IBS-D symptoms (that I have been having for the last 3 weeks). Personally, I have so many medical issues - I just don't worry about them. I have...
  6. J

    In a crappy situation need some words of wisdom

    Hey D1G1L10, I was doubled over in intense stomach pain last night, having an adverse reaction to Metronidazole, which I was taking to stop persistent IBS-D symptoms (that I have been having for the last 3 weeks). Personally, I have so many medical issues - I just don't worry about them. I have...
  7. J

    Should I get tested for CF?

    I have these symptoms too - anemia not caused from not enough iron, and also low vitamin D even though I doubled my dose to 2000IU a day, and I live in one of sunniest countries in the world, along with the other symptoms. I have had sudden onset of IBS-D symptoms - that have not abated for 3...
  8. J

    Should I get tested for CF?

    I have these symptoms too - anemia not caused from not enough iron, and also low vitamin D even though I doubled my dose to 2000IU a day, and I live in one of sunniest countries in the world, along with the other symptoms. I have had sudden onset of IBS-D symptoms - that have not abated for 3...
  9. J

    Taking CF medication - having bad reactions

    I have every CF symptom - growing up as a kid (almost died as an 8 yr old with a temperature of 108 deg F - was put in a bath of ice - to drop the temperature). My mother an Emergency Care Nurse saved my life that night. -except the skin tasting like salt - mind you i have never done a specific...
  10. J

    Taking CF medication - having bad reactions

    I have every CF symptom - growing up as a kid (almost died as an 8 yr old with a temperature of 108 deg F - was put in a bath of ice - to drop the temperature). My mother an Emergency Care Nurse saved my life that night. -except the skin tasting like salt - mind you i have never done a specific...
  11. J

    Taking CF medication - having bad reactions

    Hi, First of all want to say I admire anyone with CF, so much suffering that today my body is going out in sympathy with you. I am a klinefleter, a genetic female trapped in a male body. Naturally very low testosterone, and very high estrogen. I have for the last 21 days had IBS-D symptoms and...
  12. J

    Taking CF medication - having bad reactions

    Hi, First of all want to say I admire anyone with CF, so much suffering that today my body is going out in sympathy with you. I am a klinefleter, a genetic female trapped in a male body. Naturally very low testosterone, and very high estrogen. I have for the last 21 days had IBS-D symptoms and...
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