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Ferris - thanks. The waiting and the uncertainty is super hard, though. I'm in England, and we don't know yet when it will be made available here. Hopefully within the next few months.
Ferris - thanks. The waiting and the uncertainty is super hard, though. I'm in England, and we don't know yet when it will be made available here. Hopefully within the next few months.
Thanks for the reply. I know 70% is good compared to 30%, sure, but I had been hoping that Kalydeco would mean that I'd be able to stop most (all?) of my treatments (as well as stabilize me) because at the moment, my routine is exhausting, it takes up so much of my time and I miss my freedom...
Thanks for the reply. I know 70% is good compared to 30%, sure, but I had been hoping that Kalydeco would mean that I'd be able to stop most (all?) of my treatments (as well as stabilize me) because at the moment, my routine is exhausting, it takes up so much of my time and I miss my freedom...
Hi, I'm waiting to get Kalydeco (I'm a g551d), and my fev1 is around 70-75% when well (clear). I still have to do a lot of treatment to maintain it though and I get put on IVs a lot. I'm worried that my lungs are too damaged to benefit significantly from the new drug (my fev1 used to be 96%...
Hi, I'm waiting to get Kalydeco (I'm a g551d), and my fev1 is around 70-75% when well (clear). I still have to do a lot of treatment to maintain it though and I get put on IVs a lot. I'm worried that my lungs are too damaged to benefit significantly from the new drug (my fev1 used to be 96%...
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