Cystic Fibrosis Forum (EXP)

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  1. J

    New Born Screening Positive

    Thank you Liza. My granddaughter and I have bonded since the time she was 1/2 hour old. My wife and I will not be having any more children...we're in our 50's and although it's possible it ain't gonna happen I tell ya. lol None of our three grown children have cf. Only found out my daughter...
  2. J

    New Born Screening Positive

    Thank you Liza. My granddaughter and I have bonded since the time she was 1/2 hour old. My wife and I will not be having any more children...we're in our 50's and although it's possible it ain't gonna happen I tell ya. lol None of our three grown children have cf. Only found out my daughter...
  3. J

    Children affected by CF

    I too am part of the group who didn't care for the pictures. We get enough of the "feed the hungry children," "support the SPCA" crap on TV. I'm not cold hearted at all but I hate the attempt to manipulate the audience by tugging at their heart strings. JJ, Grampy to Brielle born March...
  4. J

    Children affected by CF

    I too am part of the group who didn't care for the pictures. We get enough of the "feed the hungry children," "support the SPCA" crap on TV. I'm not cold hearted at all but I hate the attempt to manipulate the audience by tugging at their heart strings. JJ, Grampy to Brielle born March...
  5. J

    New Born Screening Positive

    We received the diagnosis for our granddaughter of homozygous Delta F508 when she was just 9 days old. She is now 12 days old and already on enzyme therapy. The day following the diagnosis, and we were devastated when first hearing it, we had an appointment at Children's Hospital in Boston...
  6. J

    New Born Screening Positive

    We received the diagnosis for our granddaughter of homozygous Delta F508 when she was just 9 days old. She is now 12 days old and already on enzyme therapy. The day following the diagnosis, and we were devastated when first hearing it, we had an appointment at Children's Hospital in Boston...
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