Cystic Fibrosis Forum (EXP)

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  1. M

    CF tattoos

    I found a facebook page that has tons of pics of CF tats. It is where I got my idea to get mine for my son. http://www.facebook.com/#!/CFTattoos I love mine, it's simple but what I wanted. Good luck!
  2. M

    D508/R117 mutations

    My son also has F508 and R117H. His doctor has always said that he will most likely be "mild" his whole life. In fact he has gone 9 years before he started to show "signs" of having CF. Within this past year he got (and got rid of) Pa, x-ray showed damage, and his lung functions went down...but...
  3. M

    Maybe CF, Maybe not?

    WildCherry I too am more or less a lurker but I wanted to share our experience. My son was dx at birth from the newborn screening. DeltaF508 and R117H. He had 3 sweat test done, all coming back 30 (borderline) at St Chris (also has a CF cert center). He was treated with meds for resp and...
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