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The fundoplication could be to tight some doctors make them to tight and it can cause wretching, bloating, stomach pain , and inability to vomit .it woulld be wise to see a different GI to determine if the Fundo is to tight.. @PENCF it is a GI procedure inwitch the top of the stomach is wrapped...

Recently I got a copy of my daughters genetic work up and the report says that the mutations are consistant with CF or a CF like illness. Today here is my question does anyone experience extremely sweaty palms and sole of feet as well as lethargy for no reason at all .? any input would be...

Being in the field of nursing for over 25years I am n ever afraid to question a Dr they are human not gods And don't know everything just the fact that I have sought out info on my own and not just taking the Dr who is not aCF specialists word for it that she does not have CF makes me pretty...

Thanks Heather .I am currently on the hunt for The right DRS and I really want to be sure it is or it isnt CF but as I well know some times tests dont have all the answers sometime symptoms override test results as far as a sweat test I am not sure it would work on her because of the meds she...

Can some one tell me how do I get the private messages I was sent this Forum thing is new to me ??? and I am stuck I want to read them ,,

Bill and Everyone , I was not being nasty in my previous response .I am looking for info. and support if available.I am confused because from what I have read 2 mutatios means CF that is why I am questioning what the dr has said ...I am a nurse ..and DRs do not know it all .sometimes it is the...

BILL, I did not choose to ignor your private messages first and for most I did not seek info to be belittled judged or accused of child neglect ....I am not a cf expert i was seeking in put from the community that knows this the best as persons or families of people witrh the medical...

Thanks everyone. I am currently looking into having my daughter seen by the CF team at AI dupont Hospital in Wilmington DE. as she currently sees 5 other specialists there she has a complex history. I know that there are a couple CF doctors near my home they are in New brunswick NJ .But I have...

The Dr says my daughter has 2 mutations on the CFTR gene doesn't have cf she has no real pulmonary. Issues but many gi.problems she just spent 35 days in the hospital with her 7 th bout of pancreatitis in the last 2 years. Is it always necessary to have the pulmonary. Problems she or can you...