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Thanks Autumn. Good guess we are in Australia, I think the drug was developed here. Little concerned about the irritation aspect as Ben has had problems with hemoptysis and last November had an embolisation to stop the bleeding. He can't pulmozime or saline as this tends to cause bleeding...
Hi, our family which includes 2 children, Hannah 15 & Ben 12yo/cf is travelling to NYC on September 9 and touring MA, PA and DC for 3 weeks. Assuming the weather will be kind this time of the year has anyone got some tips on traveling around this area. Oh! and Ben wants to see an NFL gamebut the...
Hi, our family which includes 2 children, Hannah 15 & Ben 12yo/cf is travelling to NYC on September 9 and touring MA, PA and DC for 3 weeks. Assuming the weather will be kind this time of the year has anyone got some tips on traveling around this area. Oh! and Ben wants to see an NFL gamebut the...
Hi, our family which includes 2 children, Hannah 15 & Ben 12yo/cf is travelling to NYC on September 9 and touring MA, PA and DC for 3 weeks. Assuming the weather will be kind this time of the year has anyone got some tips on traveling around this area. Oh! and Ben wants to see an NFL gamebut the...
Hi, our family which includes 2 children, Hannah 15 & Ben 12yo/cf is travelling to NYC on September 9 and touring MA, PA and DC for 3 weeks. Assuming the weather will be kind this time of the year has anyone got some tips on traveling around this area. Oh! and Ben wants to see an NFL gamebut the...
Hi, our family which includes 2 children, Hannah 15 & Ben 12yo/cf is travelling to NYC on September 9 and touring MA, PA and DC for 3 weeks. Assuming the weather will be kind this time of the year has anyone got some tips on traveling around this area. Oh! and Ben wants to see an NFL gamebut the...
Hi everyone, I am very interested in some feedback from someonr who has used the physio vest, sorry I don't know the correct name but I am from Australia and they don't seem to exist here. But if I get some positive feedback from users of the vest I will endeavour to locate and purchase one.<img...
Hi everyone, I am very interested in some feedback from someonr who has used the physio vest, sorry I don't know the correct name but I am from Australia and they don't seem to exist here. But if I get some positive feedback from users of the vest I will endeavour to locate and purchase one.<img...
We have a nine year old with CF (Ben) and plan to visit NEW YORK in late September.
Does anyone have any accommodation advise or contacts that can help us for about ten days.
We also plan to tour New England for 10 days as well
Chris
Hi everyone
I'am from Melbourne Australia and we are planning a trip to New York in September/October.
We have a 9 year old with CF (Ben).
Can anyone help us with Accommodation advice in New York, we are on a tight budget.
Chris
We are from Melbourne Australia and have 2 kids Hannah 12 and Ben 9 (CF).
We are planning a trip to the East Coast in late September to New York and New England.
Looking for some accommodation in Manhatten for one week, if anyone knows a nice b&b could
you please let me know.
Ben continues...
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