Cystic Fibrosis Forum (EXP)

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  1. S

    lung function

    Have MRSA, pseudomonnous and Mac Not able to continue mac treatment due to liver panels and Tobi and cayston aren't working. Any suggestions?
  2. S

    My 11 day old daughter has e60x and the delta508 mutation. Anyone else?

    My daughter is 18 now was born with Delta 508. It is the most serious gene thread, but also the most common and the most research focused. It gets harder as they get older, but my daughter is a freshman at the University of Alabama and living each day as full as she can. Keep hope and faith.
  3. S

    Hope

    I have a wonderful daughter who has MRSA, Pseudomonous, staphlycoccus, a flu and tested positive for the Mac less than a year ago. She is away from home at the University of Alabama as a freshman. The last 2 years we have spent a lot of time in the hospital she went from 120% function to 90% in...
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