Cystic Fibrosis Forum (EXP)

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  1. L

    Transplant Fundraising

    Has anyone had to do tx fundraising? I'm about to get on the tx list and need some information. Thanks!
  2. L

    I hate CF and I want to complain (long tirade ensuing)

    I'm 42 and have gone to these clinics the majority of my life. I equate them to a cattle call. I've never been told to make 4 appointments per year. Tell them NO. If you don't need the social worker or the dietician, tell them NO. Every patient has the right to be involved in their care...
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