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I just had a quick question for all of you that know about Pseudomonas. My daughter Maggie was diag with CF 6 months ago, she has been pretty healthy since then but cultured Pseudomonas 6 weeks ago. I have been waiting for her to start Tobi but am having trouble getting the Meds. The CF doctors...
I just wanted to say that i had to do the same. I pushed and pushed intill I took Maggie to Childrens and said I wasn't going home intill she was better. she had a sweat test done at her Ped. office and it came back positive and they refered me to Childrens but they wanted me to wait 10 days to...
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