Cystic Fibrosis Forum (EXP)

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  1. C

    cf deal breakers

    wow, note to self: stay away from that drug! I never wanted to see myself on 24 hour oxygen. Here I am though at 2 liters. I'm afraid of the ventilator..
  2. C

    Adult CF Clinics

    I have the whole team. As far as which I liked better... It's kind of give and take. Since your switching Doctors they're not as in tune with your history or the situation at home like your old Doc's are so there's a 'breaking in period" which with my Doctors seems to be taking forever. I'm...
  3. C

    where is your clinic and what do you think?

    I got to Hartford Hospital in Ct, the Childrens medical center for Ct is right next door so most of my Clinics are there with the kiddies. The hospital staff is awesome. I hang out with my RT all the time! I don't get along with the Adult Dr.s so well, they're kinda pushy. Except for Dr...
  4. C

    Rita!!!

    well its not for me thankfully a friend of mine is from texas and they dont know how they're going to evacuate. They cant put the quadriplegic member of the family in a car drive for hours and then run out of gas.. Thanks for the help
  5. C

    Low oxygen?

    That does help thanks, Medicare is such a pain...
  6. C

    Rita!!!

    does anyone know if there is a med-evac service in/around houston? do you just call 911?
  7. C

    chest pain?

    When I have chest pain it feels as if someone is jabbing or poking me really hard. I felt that when I had a very small partial collapse of one of my lungs which eventually fixed itself. I had this same pain a couple weeks ago while in rehab and was eventually re-admitted for that pain. Luckily...
  8. C

    Low oxygen?

    How did you get your oximeter Emilee? Did you have to buy it on your own or did insurance pay for it?
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