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I did do the CFTR2 search and I found the first gene but I can't find anything on the second. We're scheduled for a Bronchoschopy for next week (just bawled my eyes out over that whole procedure) and pulm and genetics the following week and another sweat test on the 2nd. I'll ask about the...

Thank you so much for sharing with me and for your answers. We're at such a confused state right now. I feel like I'm doing the right thing by pestering the docs, I don't feel that we are over paranoid. I just don't personally KNOW anyone else to share these experiences with.

Oh my goodness... My bug was breastfed until he was 8 months. I was purely pumping with him because of everything that happened during his birth and I just couldn't keep up with it! So he started on formula and I feel like the nasty poo part has just gotten nastier! I always hated the "is it...

HI, we are being seen at an accredited center. And his first sweat test was done there also initially before he was even referred to be there as a patient with the pulmonologist (which is also the CF specialist/clinic) . I guess that is where my confusing is also. If he has two mutated genes...

She did say they would be doing cultures and I know she tested his mucous from his throat at our last appointment and it was clean. I can only be happy about that... Maybe this is silly but the ever obsession with poop watching gets to me every day because while his movements are NOT formed and...

I'm new to this site so here's a little background. My son, now 13 months, was born in Jan 2012 by emergency c-Section due to Placental Abruption. He lost a good deal of his blood and ingested and inhaled blood . He was resuscitated at birth and again later that same day . He was transferred to...