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It was over ten years ago that my son grew nocardia and to tell you the truth the Drs kind of freaked. Now ten years later both of my kids will culture it off and on. Drs watch it. We do more frequent CATScans. My daughter is goin in this week for a bronch and PICC line. My son was on...

Just wanted to get a feel on how common is it for your centers to want to do a bronchoscopy to see what is (or could be) growing in lungs? It use to be fairly common when my son was younger never had any results from them, so I started to refuse them. Now they are wanting to do one on...

We were in your shoes exactly a year ago. We still haven't gone for evaluation but getting ready too. In the past year I have really educated myself, a lot of reading the transplant forum on this site. It really took awhile for us to wrap our heads around this. my son is older than yours...

I am sorry for your loss but know that your prince is with the Prince of Peace. I am lifting you and your family up. Mom to 3, 2 with Cf

I am sorry for your loss but know that your prince is with the Prince of Peace. I am lifting you and your family up. Mom to 3, 2 with Cf

Thanks so much for your reply. I don't want to appear dumb but I can't figure out how to message you.

Thanks so much for your reply. I don't want to appear dumb but I can't figure out how to message you.

It has been suggested to my son that we start the evaluation for transplant. Does anyone have any experience with centers in Texas. Any information would be appreciated. Thanks, Mom to 3, 2 with CF

It has been suggested to my son that we start the evaluation for transplant. Does anyone have any experience with centers in Texas. Any information would be appreciated. Thanks, Mom to 3, 2 with CF

Both of my kids have had bouts with pleurisy ( ages 20 & 15) especially the last few years. We took a trip to emergency room a couple of weeks ago the pain was so bad for my 16 year old. CF doctors wanted to rule evrything else out. I have wondered if it may have to do with the bugs they...

Both of my kids have had bouts with pleurisy ( ages 20 & 15) especially the last few years. We took a trip to emergency room a couple of weeks ago the pain was so bad for my 16 year old. CF doctors wanted to rule evrything else out. I have wondered if it may have to do with the bugs they...

I have two children with CF my oldest bother had CF. My mom was diagnosed with sarcoidosis years ago her Pulmologist suggested a link between the two diseases then. I could find no information. I would love to hear more.

I have two children with CF my oldest bother had CF. My mom was diagnosed with sarcoidosis years ago her Pulmologist suggested a link between the two diseases then. I could find no information. I would love to hear more.

I breastfed all three of my babies, including the two with CF. my daughter began to drop on the weight chart at about 8 weeks. The Drs were afraid she wasn't getting enough so they had me supplement using a device. I checked and it is still available, It is from Medela and it is called...

I breastfed all three of my babies, including the two with CF. my daughter began to drop on the weight chart at about 8 weeks. The Drs were afraid she wasn't getting enough so they had me supplement using a device. I checked and it is still available, It is from Medela and it is called...

Yes we have been on long term Bactrim, high dose for Nocardia. Fortunately we did not have problems with vomiting. It sounds like you are doing all I can think of already with the yogurt and acidophilus. I hope you can get some help?

Yes we have been on long term Bactrim, high dose for Nocardia. Fortunately we did not have problems with vomiting. It sounds like you are doing all I can think of already with the yogurt and acidophilus. I hope you can get some help?

Yes we have been on long term Bactrim, high dose for Nocardia. Fortunately we did not have problems with vomiting. It sounds like you are doing all I can think of already with the yogurt and acidophilus. I hope you can get some help?

<P>This is exactly what has been going through my mind lately.  I mean I know there have been major adavances done in the treatment of CF.  But hasn't the average life predicted been affected by all these adults that aren't even diagnosed until they are well into the adulthood.  They must have...

<P>This is exactly what has been going through my mind lately. I mean I know there have been major adavances done in the treatment of CF. But hasn't the average life predicted been affected by all these adults that aren't even diagnosed until they are well into the adulthood. They must have had...