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I have been on Tirkafta for 2 months now. I have never had a mucus purge, though I was warned of it.
Immediately as it built I have coughed less and gained 15lbs average. Having literal days of no unintentional cough. Pancreatic enzyme levels have been higher, though not normal levels.The only...
some hospitals and interventional radiologists outright refuse to do arm or leg ports. there are none in kansas city that will honor such a request. i know, i asked for myself. their response is there is higher risk of complication. i have not found research supporting this but if they refuse...
port has advantages yes. but what they dont explain to you is the pains after. just basic nerve pain constantly. youll need to request a .5inch needle if you have a small physique and most dont have those. where the line will lay you cannot have anything hit it or it will sting. after about 3...
pros: moving out of kansas less allergies, have a couple friends there and a boyfriend wanting to go to school there at asu(biggest reason)
cons: closest help is 2 hours away for family and no doctors have agreed to see me there as of yet even a primary and i would downgrade in insurance so...
I currently live in the greater kansas city area and see the KU CF team regularly. I am looking at the possibility of moving to Phoenix Arizona. I have a roommate lined up if I do but other than that I would be alone with the nearest family over 2 hours away. I have more than just my CF to...
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