Cystic Fibrosis Forum (EXP)

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  1. M

    Great Strides t-shirts on walk day??

    Hello, I am walking this year and would like to get a picture of my grandson on it. Any ideas on how to do that? Just a tshirt place any that you have used? Thanks Margo
  2. M

    Hymns

    I love Hymns and think it is awesome that you do. They are a great comfort especially dealing with health issues. How Great Thou Art and Blessed Assurance are some really good ones. Margo B
  3. M

    potty training the little ones

    Hello, I work in a day care and have for many years so not to worry. Potty training takes time for some kids. Each child is different. I also have a grandson who has cf and wondering if he should go to daycare as the parents both work? How is your experiance with daycare? My grandson is 1years...
  4. M

    daughter with newly diagnosed CF

    I sure know what you are going through. My grandson is 1`3 months and really do not know what is going on. He is not gaining weight still on some baby foods. The cystic fibrosis website might be a good source of information for you. Sending you love and encouragement. MargoB
  5. M

    daughter with newly diagnosed CF

    I sure know what you are going through. My grandson is 1`3 months and really do not know what is going on. He is not gaining weight still on some baby foods. The cystic fibrosis website might be a good source of information for you. Sending you love and encouragement. MargoB
  6. M

    out of the hospital

    Hello, Well Aspen is out of the hospital. Yeah they adjusted his meds hopefully that will work. Just want to encourage everyone to use this forum. Does anyone know if there are support groups for this and have they gone to them. I think there is on the main cf organization. I want to start...
  7. M

    out of the hospital

    Hello, Well Aspen is out of the hospital. Yeah they adjusted his meds hopefully that will work. Just want to encourage everyone to use this forum. Does anyone know if there are support groups for this and have they gone to them. I think there is on the main cf organization. I want to start...
  8. M

    Hello everyone

    Thank you so much for your words of hope and kindness. It sure has helped me. My son and girlfriend are going through so much with my grandson. I really do not know much about this disease but it sure is heartbreaking to see anyone suffer. My question is since it is so hard for anyone to gain...
  9. M

    Hello everyone

    Thank you so much for your words of hope and kindness. It sure has helped me. My son and girlfriend are going through so much with my grandson. I really do not know much about this disease but it sure is heartbreaking to see anyone suffer. My question is since it is so hard for anyone to gain...
  10. M

    new to forum

    My grandson is 13 months old and in the hospital to find out why he is not gaining weight. He has cystic fibrosis and I wonder if any one has any ideas what they can do or what they are looking for to help this situation. I understand this is part of the disease. He is not growing in length...
  11. M

    new to forum

    My grandson is 13 months old and in the hospital to find out why he is not gaining weight. He has cystic fibrosis and I wonder if any one has any ideas what they can do or what they are looking for to help this situation. I understand this is part of the disease. He is not growing in length...
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