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Hi Tara, My name is Mary and I have two sons. One age 5 wocf and a 2 yo wcf. Our son also has the N1303k mutation and another pretty uncommon one which I can't remember at the moment. He also has more problems with digestion than his lungs and is also on a high enzyme dose. At the moment...

Hi Tara, My name is Mary and I have two sons. One age 5 wocf and a 2 yo wcf. Our son also has the N1303k mutation and another pretty uncommon one which I can't remember at the moment. He also has more problems with digestion than his lungs and is also on a high enzyme dose. At the moment...

Hi Tara, My name is Mary and I have two sons. One age 5 wocf and a 2 yo wcf. Our son also has the N1303k mutation and another pretty uncommon one which I can't remember at the moment. He also has more problems with digestion than his lungs and is also on a high enzyme dose. At the moment...

Hi Kathryn, I remember these feelings, still have the odd moment even now and my son is 2. He was diagnosed at birth and went through 3 operations before he really turned the corner. Now the positive stuff. He is the happiest, cheekiest, funniest child. He keeps amazingly well and has never...

Hi Kathryn, I remember these feelings, still have the odd moment even now and my son is 2. He was diagnosed at birth and went through 3 operations before he really turned the corner. Now the positive stuff. He is the happiest, cheekiest, funniest child. He keeps amazingly well and has never...

Hi Kathryn, I remember these feelings, still have the odd moment even now and my son is 2. He was diagnosed at birth and went through 3 operations before he really turned the corner. Now the positive stuff. He is the happiest, cheekiest, funniest child. He keeps amazingly well and has never...

Hi, Our son, who has just turned 2 was also born with an obstructed bowel. He had surgery at a day old, an ileostomy for 4 months and then 2 more surgeries. Since he was 4 months old, he has kept really well. He has never had a chest infection, never needed hospitalised (other than his...

Hi, Our son, who has just turned 2 was also born with an obstructed bowel. He had surgery at a day old, an ileostomy for 4 months and then 2 more surgeries. Since he was 4 months old, he has kept really well. He has never had a chest infection, never needed hospitalised (other than his...

Hi, Our son, who has just turned 2 was also born with an obstructed bowel. He had surgery at a day old, an ileostomy for 4 months and then 2 more surgeries. Since he was 4 months old, he has kept really well. He has never had a chest infection, never needed hospitalised (other than his...

Hi I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first...

Hi I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first...

Hi I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first...

Hi Just wondering if anyone else has either of the gene mutations N1303K or 621+1G>T. My son, 19 months has these mutations and I'm just curious. Mary

I definately sterilised bottles for the first 12 months for both my sons (1 wcf - 19 months and 1 wocf - 4 yrs). After six months I didn't sterilise dummies (pacifiers, I believe they're called over with you), bowls, spoons, etc just washed them in hot soapy water. I used the AVENT microwave...

Went to see Rod Stewart in Glasgow last July. He was amazing. Going to see the Rolling Stones in August. My sister and I are getting into an annual concert trip with our mum to go and see some of the oldies with her! Mary

I am from Scotland and have an 18 month old son with CF. I have read messages about this same problem on other message boards that I visit. I think your problem is maybe that there is a shortage of ADEKS. We have had similar problems with the vitamins our son is on. First he was on Abidec...

Hi Our son is 17 months and was diagnosed at birth due to meconium ileus. Since diagnosis he has been on Flucloxacillin 2 x daily, Vitamin E, Abidec or Dalivit and Creon 10 000. Till he was 6 months old we did chest physio twice a day. At 6 months our physio introduced him to the PEP mask...

Hi Our son is almost 17 months and still has formula as he still has a bottle in first thing in the morning and before bed at night. When he turned one we tried him on cows milk but he wouldn't take it. Our older son (without CF) was exactly the same. We use cows milk in cooking but as a...

Its snowing on the Isle of Skye in Scotland. This is the first snow we've had all winter. Started on Monday and has snowed every day since.

Its snowing on the Isle of Skye in Scotland. This is the first snow we've had all winter. Started on Monday and has snowed every day since.