Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. J

    How many hours do you put into treatments and taking care of yourself?

    4,5---5,5 hours daily, with acute infection even more...
  2. J

    How many hours do you put into treatments and taking care of yourself?

    4,5---5,5 hours daily, with acute infection even more...
  3. J

    How many hours do you put into treatments and taking care of yourself?

    4,5---5,5 hours daily, with acute infection even more...
  4. J

    Bad news about denufosol trials :-(

    Hi, page was probably deleted...
  5. J

    Bad news about denufosol trials :-(

    Hi, page was probably deleted...
  6. J

    Bad news about denufosol trials :-(

    Hi, page was probably deleted...
  7. J

    Need a new nebulizer

    Hi, my choice is definitely Pari Eflow (I have european version)... link here... <a target=_blank class=ftalternatingbarlinklarge href="http://www.pari.de/en/products/lower_airways/product/detail/info/eflow_rapid-2.html">http://www.pari.de/en/products...nfo/eflow_rapid-2.html</a>
  8. J

    Need a new nebulizer

    Hi, my choice is definitely Pari Eflow (I have european version)... link here... <a target=_blank class=ftalternatingbarlinklarge href="http://www.pari.de/en/products/lower_airways/product/detail/info/eflow_rapid-2.html">http://www.pari.de/en/products...nfo/eflow_rapid-2.html</a>
  9. J

    Need a new nebulizer

    Hi, my choice is definitely Pari Eflow (I have european version)... link here... <a target=_blank class=ftalternatingbarlinklarge href="http://www.pari.de/en/products/lower_airways/product/detail/info/eflow_rapid-2.html">http://www.pari.de/en/products...nfo/eflow_rapid-2.html</a>
  10. J

    vx770 trial results

    Hi there, I have read through the NEJM G551D article figures... and I found several data very interesting... 1) there were very big improvements in sweat chloride concentrations from baseline to day 28 (people with 150mg or 250 mg drug): 9x very good improvement (40-65 points down), 2x good...
  11. J

    vx770 trial results

    Hi there, I have read through the NEJM G551D article figures... and I found several data very interesting... 1) there were very big improvements in sweat chloride concentrations from baseline to day 28 (people with 150mg or 250 mg drug): 9x very good improvement (40-65 points down), 2x good...
  12. J

    vx770 trial results

    Hi there, I have read through the NEJM G551D article figures... and I found several data very interesting... <br /> <br />1) there were very big improvements in sweat chloride concentrations from baseline to day 28 (people with 150mg or 250 mg drug): 9x very good improvement (40-65 points...
  13. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
  14. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
  15. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
  16. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
  17. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, <br /> <br />definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but...
  18. J

    Ataluren - is here someone in the study - can you PM me?

    Hi, I am just wondering if someone in the forum is in the clinical study for Ataluren (PTC 124). Can you PM me your experiences, thanks.
  19. J

    Ataluren - is here someone in the study - can you PM me?

    Hi, I am just wondering if someone in the forum is in the clinical study for Ataluren (PTC 124). Can you PM me your experiences, thanks.
  20. J

    Ataluren - is here someone in the study - can you PM me?

    Hi, I am just wondering if someone in the forum is in the clinical study for Ataluren (PTC 124). Can you PM me your experiences, thanks.
Top