Cystic Fibrosis Forum (EXP)

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  1. C

    Not sure what to do....

    Hi! <img src="i/expressions/face-icon-small-smile.gif" border="0"> My daughter had her first lung infection the summer before kindergarten, and we came home, using The Vest machine. She was 5 when she started it, and back then all they had was the black one, with the navy blue pipes. This...
  2. C

    Not sure what to do....

    Hi! <img src="i/expressions/face-icon-small-smile.gif" border="0"> My daughter had her first lung infection the summer before kindergarten, and we came home, using The Vest machine. She was 5 when she started it, and back then all they had was the black one, with the navy blue pipes. This...
  3. C

    Welcome Ambry Genetics

    Steve, First of all I am amazed at the information that you have been able to help people with. I read this forum for pages, and pages (probably 11 or 12, I've been reading for the last two hours) just to see if anyone mentions that they happen to have both of my daughter's mutations...
  4. C

    medical plan

    <P>I feel your pain on this. lol  My daughter and I are getting ready to begin work on a 504 plan for her to have in place.  In kindergarten, I came to the meeting, and was assured that anything we needed done, would be, and that maybe if her illness progressed, we should come back to this, if...
  5. C

    medical plan

    <P>I feel your pain on this. lol My daughter and I are getting ready to begin work on a 504 plan for her to have in place. In kindergarten, I came to the meeting, and was assured that anything we needed done, would be, and that maybe if her illness progressed, we should come back to this, if...
  6. C

    medical plan

    <P>I feel your pain on this. lol My daughter and I are getting ready to begin work on a 504 plan for her to have in place. In kindergarten, I came to the meeting, and was assured that anything we needed done, would be, and that maybe if her illness progressed, we should come back to this, if...
  7. C

    Hello

    Hi, beckyb. I am a new member, as of a few minutes ago, and my child is 5 years old with CF. She was diagnosed at two months, 2 days old, after many, many doctor, and hospital visits, and even one 7 day admission to a hospital that claimed to be a CF center, without a diagnosis. The doctors...
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