Search results

Carey, Hopefully you are still checking this topic. I'd love a copy of the letter! My email is: Augustmoon0003@aol.com. Thank you so much!!!!!

My son was diagnosed in December '03 and I joined the Great Strides Commitee in January. I needed to do SOMETHING and I found that getting involved in the CFF was my way to fight it. I felt helpless and, yes, alone and needed to be around people who knew what I was going through. (So I guess...

I will be having the same problem, as there are MANY CF families in my area also. We have around 10 CF families in my town alone...and these are just the families I KNOW of (through Great Strides, etc.). There are about 20 I know of in the surrounding communities (again, these are the only...

I will be having the same problem, as there are MANY CF families in my area also. We have around 10 CF families in my town alone...and these are just the families I KNOW of (through Great Strides, etc.). There are about 20 I know of in the surrounding communities (again, these are the only...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>My wife and I also had a prenatal confirmation that our fetus had CF just weeks ago. While the decision was difficult, we and our doctor decided to terminate the pregnancy. No one should have to go through life with such a...

Jake,My thoughts exactly! It's also good to know that they are looking at many different things! Time will tell...

Here's one thing I have found....http://www.healthscout.com/news/1/519864/main.html

Has anyone heard about this new "study" or "finding" that shows that CF patients actually have less mucus in the airway? That it's pus in the lungs and that the mucus is actually protecting the body???? Just wondering...I've gotten a few emails about it and I guess it was in the "LA Times"...

Dear Concerned Aunt,First of all, it sounds like they are very lucky to have you in their lives! Your support is very important if this is, in fact, CF. Also, your knowledge of CF will also help tremendously!It's really hard to determine how well someone with CF will do, unfortunately, but...

Nedda,I don't know how much I can help, but I'll try <img src="i/expressions/face-icon-small-blush.gif" border="0">/ Have you tried to change his formula? What about adding rice cereal IN the bottle (this helped my daughter GREATLY). What about Zantac? These are some of the things that...

Don't mean anything bad when I "cursed" but I'm mad and I'm not even the mother going through it! SORRY!<img src="i/expressions/face-icon-small-sad.gif" border="0">

OMG!!! I can't believe your dr. is putting you through this!!! I'm soooo sorry for you! I've been thinking of you and checking a couple of times a day to see how you are doing and if those d*** tests came back yet!! What nerve your doctor has!!! <img...

I probably can't help too much (my son is only 10 months) but, does she like peanut butter? If she likes it and will eat it, she could eat it with the celery and carrots. Cook things with olive oil? I'm sure I will have this problem soon! <img src="i/expressions/face-icon-small-blush.gif"...

How horrible to make you wait! I went thru that too...it's awful! I will be checking back often to hear from you...I'm thinkin' about you!!!! Email me if you need to talk...or vent...augustmoon0003@aol.com. I'm always here....<img src="i/expressions/face-icon-small-happy.gif" border="0"><img...

Yes, I forgot to mention that too...A very good friend of mine was pregnant the same time as me (with my first...w/o CF) and she went to full term and on her due date did not feel the fetus move, went to the dr., and found out the baby had died. No reason was ever found. She now has two kids...

I've been thinking of you!!! Please let us know! I pray that it's negative, but if not, we'll get through this...all of us together! There are so many great things happening for CF patients and we have to remember that! PLEASE let us know...

I don't know what to say except I am so sorry for your loss. That is heartbreaking and I will be praying for you. I, too, have a (now 10 month old) son with CF. If it makes you feel ANY better, I would've done the same in your situation...and I think most people would have. I know how guilty...

She should have the sweat test done...THEN move on to everything else. She shouldn't put your son through all of this!!! No...the sweat test doesn't take very long and it doesn't hurt AT ALL!!! It doesn't take long to get results back (usually same day). If I had your doctor's number, I'd...

Melissa,I AGREE 200% WITH YOU!!! When I had my son tested, I waited waited and waited. No one ever called. The next day I called my ped. and they said that they didn't get the results (I now know that they did) but since I had to bring my daughter in, they would see if they were in then (ya...

Wow! You definitely need a new ped! That's absolutely ridiculous! What about a sweat test? It doesn't hurt AT ALL???? Why is she putting him through all of that when she can AT LEAST try the sweat test first????? If you are that frustrated (and I would be!) you could call that CF Center...