Cystic Fibrosis Forum (EXP)

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  1. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I replied to each post, but just realized that this forum doesn't link the reply to the one replied to. Sorry if my comments are not clear.
  2. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I replied to each post, but just realized that this forum doesn't link the reply to the one replied to. Sorry if my comments are not clear.
  3. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I replied to each post, but just realized that this forum doesn't link the reply to the one replied to. Sorry if my comments are not clear.
  4. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) We have just gotten our Albuterol and Pulmozyme from local pharmacies. We have NEVER been given neb cups with the meds. We use mail order for other meds, because our insurance does 3 months meds for 2X...
  5. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) We have just gotten our Albuterol and Pulmozyme from local pharmacies. We have NEVER been given neb cups with the meds. We use mail order for other meds, because our insurance does 3 months meds for 2X...
  6. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) We have just gotten our Albuterol and Pulmozyme from local pharmacies. We have NEVER been given neb cups with the meds. We use mail order for other meds, because our insurance does 3 months meds for 2X...
  7. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Our CF Clinic in Fort Worth is accredited, but the RT department seems lacking in the breadth of info that most CFers online seem to have. They are sticking to the basics, and not sharing info on steamers...
  8. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Our CF Clinic in Fort Worth is accredited, but the RT department seems lacking in the breadth of info that most CFers online seem to have. They are sticking to the basics, and not sharing info on steamers...
  9. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Our CF Clinic in Fort Worth is accredited, but the RT department seems lacking in the breadth of info that most CFers online seem to have. They are sticking to the basics, and not sharing info on steamers...
  10. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Yes, sadly, the clear plastic ones do seem to melt quickly. I was told the Avent was THE steamer to get, because of the temp and duration of the steam. I understand vinegar does little to nothing to...
  11. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Yes, sadly, the clear plastic ones do seem to melt quickly. I was told the Avent was THE steamer to get, because of the temp and duration of the steam. I understand vinegar does little to nothing to...
  12. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Yes, sadly, the clear plastic ones do seem to melt quickly. I was told the Avent was THE steamer to get, because of the temp and duration of the steam. I understand vinegar does little to nothing to...
  13. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Isn't boiling water as hot as a dishwasher? I know that the drying feature on a dishwasher gets hot, but is it hotter than 212 degrees? My point is that it seems like boiling would be as hard on the neb...
  14. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Isn't boiling water as hot as a dishwasher? I know that the drying feature on a dishwasher gets hot, but is it hotter than 212 degrees? My point is that it seems like boiling would be as hard on the neb...
  15. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Isn't boiling water as hot as a dishwasher? I know that the drying feature on a dishwasher gets hot, but is it hotter than 212 degrees? My point is that it seems like boiling would be as hard on the neb...
  16. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I think this is the problem. Until the past couple of days, I thought all neb cups were the disposable kind, but you just used them as long as they appeared to work. The neb cups we have been using are not...
  17. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I think this is the problem. Until the past couple of days, I thought all neb cups were the disposable kind, but you just used them as long as they appeared to work. The neb cups we have been using are not...
  18. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I think this is the problem. Until the past couple of days, I thought all neb cups were the disposable kind, but you just used them as long as they appeared to work. The neb cups we have been using are not...
  19. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I just learned about the Avent IQ24 and the Germ Guardian. My five-year-old son has CF and my wife typically does the treatments. We usually wash the neb cups in the dishwasher and let them air dry on...
  20. J

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) I just learned about the Avent IQ24 and the Germ Guardian. My five-year-old son has CF and my wife typically does the treatments. We usually wash the neb cups in the dishwasher and let them air dry on...
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