Cystic Fibrosis Forum (EXP)

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  1. P

    pre-trans quality of life

    <P>Hi All, </P> <P>I have been transplanted now for over a year.  Before the transplant I could hardly breath,  tieing my shoes was a challenge.  I was on oxygen 24/7  My fev1 got to be less than 16% and most of the times I never wanted to move from the bed.  medial tasks were now unable to be...
  2. P

    pre-trans quality of life

    <P>Hi All, </P> <P>I have been transplanted now for over a year. Before the transplant I could hardly breath, tieing my shoes was a challenge. I was on oxygen 24/7 My fev1 got to be less than 16% and most of the times I never wanted to move from the bed. medial tasks were now unable to be...
  3. P

    pre-trans quality of life

    <P><BR>Hi All, </P> <P>I have been transplanted now for over a year. Before the transplant I could hardly breath, tieing my shoes was a challenge. I was on oxygen 24/7 My fev1 got to be less than 16% and most of the times I never wanted to move from the bed. medial tasks were now unable to be...
  4. P

    Do you stay home to do home ivs or go to work with ivs?

    <P>I have done both.  Thier really is not alot to it depending on who you have takeing care of the medication disribuition.  You will get a few looks the first time or so then it becomes more of an education thing for you and others.  I have been doing this for many years. </P> <P> </P> <P>good...
  5. P

    Do you stay home to do home ivs or go to work with ivs?

    <P>I have done both. Thier really isnot alot to it depending on who you have takeing care of the medication disribuition. You will get a few looks the first time or so then itbecomes more of an education thing for you and others. I have been doing this for many years. </P> <P></P> <P>good luck...
  6. P

    Do you stay home to do home ivs or go to work with ivs?

    <P><BR>I have done both. Thier really isnot alot to it depending on who you have takeing care of the medication disribuition. You will get a few looks the first time or so then itbecomes more of an education thing for you and others. I have been doing this for many years. </P> <P></P> <P>good...
  7. P

    Transplant Center

    <P>oh yea good point to the below responders.</P> <P> </P> <P> The waiting list last year was about 18 days at duke.  now that can change depending on your health and what is available.  I waited 36 day after i was listed.  I was actually their for about 7 to 8 months previous to that because I...
  8. P

    Transplant Center

    <P>oh yea good point to the below responders.</P> <P></P> <P>The waiting list last year was about 18 days at duke. now that can change depending on your health and what is available. I waited 36 day after i was listed. I was actually their for about 7 to 8 months previous to that because I was...
  9. P

    Transplant Center

    <P>oh yea good point to the below responders.</P> <P></P> <P>The waiting list last year was about 18 days at duke. now that can change depending on your health and what is available. I waited 36 day after i was listed. I was actually their for about 7 to 8 months previous to that because I was...
  10. P

    Transplant Center

    <P>Hi , </P> <P> </P> <P>I had a really amazing social worker at the hospital that followed my CF CHKD.  They had several choices for me to research.  I started with researching each site ,  compiling a list of possible centers that was in reason travel distance and once that had the most sucess...
  11. P

    Transplant Center

    <P>Hi , </P> <P></P> <P>I had a really amazing social worker at the hospital that followed my CF CHKD. They had several choices for me to research. I started with researching each site , compiling a list of possible centers that was in reason travel distance and once that had the most sucess...
  12. P

    Transplant Center

    <P><BR>Hi , </P> <P></P> <P>I had a really amazing social worker at the hospital that followed my CF CHKD. They had several choices for me to research. I started with researching each site , compiling a list of possible centers that was in reason travel distance and once that had the most sucess...
  13. P

    Pre-transplant depression

    Pre-transplant with jitters, depression, low self confidence I to am a very private and active person. I can only tell you about my experience and that is give up the feeling you can do this alone. You cant! No transplant center will let you do it with out a network of people. Even if you...
  14. P

    Pre-transplant depression

    Pre-transplant with jitters, depression, low self confidence I to am a very private and active person. I can only tell you about my experience and that is give up the feeling you can do this alone. You cant! No transplant center will let you do it with out a network of people. Even if you...
  15. P

    Pre-transplant depression

    Pre-transplant with jitters, depression, low self confidence I to am a very private and active person. I can only tell you about my experience and that is give up the feeling you can do this alone. You cant! No transplant center will let you do it with out a network of people. Even if you...
  16. P

    Pre-transplant depression

    Pre-transplant with jitters, depression, low self confidence I to am a very private and active person. I can only tell you about my experience and that is give up the feeling you can do this alone. You cant! No transplant center will let you do it with out a network of people. Even if you...
  17. P

    Pre-transplant depression

    Pre-transplant with jitters, depression, low self confidence I to am a very private and active person. I can only tell you about my experience and that is give up the feeling you can do this alone. You cant! No transplant center will let you do it with out a network of people. Even if you...
  18. P

    Six minute walk test

    that was suppose to be feet, sorry everyone.
  19. P

    Six minute walk test

    that was suppose to be feet, sorry everyone.
  20. P

    Six minute walk test

    that was suppose to be feet, sorry everyone.
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