Cystic Fibrosis Forum (EXP)

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  1. A

    Very confused mother

    thank you for your response being that the preventative therapy is what makes or breaks do you think I have done more damage by him not being on meds at all for two years straight. After being on meds since he was diagnosed I have had him off for two years due to insurance. The only concern I...
  2. A

    Very confused mother

    thank you for your response being that the preventative therapy is what makes or breaks do you think I have done more damage by him not being on meds at all for two years straight. After being on meds since he was diagnosed I have had him off for two years due to insurance. The only concern I...
  3. A

    Very confused mother

    thank you for your response being that the preventative therapy is what makes or breaks do you think I have done more damage by him not being on meds at all for two years straight. After being on meds since he was diagnosed I have had him off for two years due to insurance. The only concern I...
  4. A

    Very confused mother

    Thank You for your reply. My son was going to a CF clinic but due to all my insurance problems I have to wait for another authorization to go through. I finally got my insurance issues settled. It was his pediatrician, but she has lots of CF patients and works very closely with CF teams.
  5. A

    Very confused mother

    Thank You for your reply. My son was going to a CF clinic but due to all my insurance problems I have to wait for another authorization to go through. I finally got my insurance issues settled. It was his pediatrician, but she has lots of CF patients and works very closely with CF teams.
  6. A

    Very confused mother

    Thank You for your reply. My son was going to a CF clinic but due to all my insurance problems I have to wait for another authorization to go through. I finally got my insurance issues settled. It was his pediatrician, but she has lots of CF patients and works very closely with CF teams.
  7. A

    Is he or isn't he?

    Hello~I am new to this site, but not very knowledgeable. I have a 4 yr old son with CF but he hs never been sick. Aside from the instance of him being diagnosed at 2 mos. he is a perfectly healthy child. He hasn't been on any meds due to insurance issues for 2 yrs and yet he is still healthy...
  8. A

    Is he or isn't he?

    Hello~I am new to this site, but not very knowledgeable. I have a 4 yr old son with CF but he hs never been sick. Aside from the instance of him being diagnosed at 2 mos. he is a perfectly healthy child. He hasn't been on any meds due to insurance issues for 2 yrs and yet he is still healthy...
  9. A

    Is he or isn't he?

    Hello~I am new to this site, but not very knowledgeable. I have a 4 yr old son with CF but he hs never been sick. Aside from the instance of him being diagnosed at 2 mos. he is a perfectly healthy child. He hasn't been on any meds due to insurance issues for 2 yrs and yet he is still healthy...
  10. A

    Very confused mother

    Hello this is my first message to this sight. I am a mother of 4 and my 4 yr old has CF. He was diagnosed at 2mos. old through genetic testing. He has not been sick since. He will be 5 in September and he has been off all meds for 2 yrs now due to insurance issues. I'm really scared. I think...
  11. A

    Very confused mother

    Hello this is my first message to this sight. I am a mother of 4 and my 4 yr old has CF. He was diagnosed at 2mos. old through genetic testing. He has not been sick since. He will be 5 in September and he has been off all meds for 2 yrs now due to insurance issues. I'm really scared. I think...
  12. A

    Very confused mother

    Hello this is my first message to this sight. I am a mother of 4 and my 4 yr old has CF. He was diagnosed at 2mos. old through genetic testing. He has not been sick since. He will be 5 in September and he has been off all meds for 2 yrs now due to insurance issues. I'm really scared. I think...
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