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Without access to data it is really difficult to know what is the wide spread effects of the drug on people. But with anecdotal evidence presented here in the forums, there at least seems to be some people who experience tightness in the chest and other issues.
After starting Orkambi a while...
I have the double Δ508 mutation. Furthermore, I'm in my 30s, and have lung function studies with a FEV1 above 90%.
However, my lung functions were on a consistent downward trend over the past few years(more so than in the past). Last summer(2015), I started Orkambi, and did not experience any...
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