Search results

I always worry about the specialist teams at the cf centers. Do they get cough swabbed regularly in case they are chronically carrying any of the worst bacteria? I read that 25% of medical staff are carrying nasty bacteria all the time and that the rest are carrying some occasionally. I have...

Thank you Poolshark and Printer I agree with you both . We are a little obsessed with making sure she gets all the right food containing all the necessary vitamins and minerals of course any parent should be but when you know they have cf it makes it a lot more important. This is my first...

Thanks triples15 This experience has already made me and my partner feel less isolated. Just being able to say what you feel without the worry of being judged by someone in authority is great especially when you really are looking for advice. I have been reading several older threads and...

Thank you everyone it is extremely good to talk openly with people about my fears and hopes. It is very difficult to discuss anything here in the U.K. as we were told very early on if we did not follow the advice given by the specialist there would be consequences and we would be reported to...

Oh and thank you for replying i already feel less alone. we are discouraged from talking to other parents here except on a very censored forum.

I live in London, England . Over here you just get sent to the nearest hospital with a specialist cf clinic . You can't go to a private hospital because the cf doctors have formed a syndicate agreeing not to see cf patients outside of the national health service. I understand my daughter has the...

Hello everyone I have a daughter now 3 years old who was diagnosed with newborn screening . The diagnosis was made without a sweat test which she has still not had as the doctors at the hospital told us the genetics are enough to confirm she has cystic fibrosis the disease. She has never shown...