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My daughter is between sizes as well and her torso is long. Respirtech sent me a sizing sheet. I measured her and they were able to create a custom vest to fit her measurements.

I just bought a copy and can't wait to read it. :0)

Our clinic has always told us to sterilize/boil the fishy masks.

Great idea. Anything I have tried to make ahead of time breaks down in the refidgerator (ie. separates).

I think your doctor is leaving the decision up to you because you need to weigh the cost/benefit for your child since the current data did not support putting a child under 6 on the drug. My daughter started CPT at 8 days old and nebs at 1 month old. She nebs Mucomyst and Albuterol. She now has...

I am surprised that your doctor did not inform you of this side effect before putting your child on the drug. Especially knowing her history. Our daughter is 4 and the doctor told us of this potential effect before putting her on the drug. She also let us know that the percene of people that...

Our clinic (the University of Minnesota) prescribes proactive treatments. Our daughter started on CPT at 8 days old and nebs at 1 month old. She got a Vest at 1 year old. Her baseline is no cough and she had her first hospitalization for pnemonia and influenza at age 4 1/2. We are HUGE advocates...

I agree. Post in the family section and you will get a lot of info from the moms/dads there.

Interesting! I am also interested in the cost. The site states they are creating children's models, which makes me wonder about how they handle the child's growth. Would a person need to purchase multiple vests over a lifetime?

I disagree. There are several CF drugs available that slow progression. I really doubt they all decrease sweat chloride. I don't think sweat chloride is the only predictor of whether the drug works or not.

I believe the .09% was the control group. The participants that actually got HTSrecieved 7%. My daughter participated in the study. She does not have significant lung involvement yet. She had her first hospitalization recently (for pnemonia and influenza). She is 4 1/2. My personal opinion is...

Does anyone havea link to the study results? My daughter is 4and is currently on a 3 week round of HTS due to having been hospitalized for pnemonia and influenza. At this point, we do not plan to continue HTS after the 3 weeks. My daughter was a part of the ISIS study that tested HTS on children...

semperfiohana, the list you posted are the most common mutations. <strong>Not</strong> the most common <strong>gating</strong> mutations. Does anyone have a list of what mutations are gating mutations?

semperfiohana, the list you posted are the most common mutations. <strong>Not</strong> the most common <strong>gating</strong> mutations. Does anyone have a list of what mutations are gating mutations?

<P>Our daughter goes to the University of Minnesota.  It is one of the clinics featured in the previously mentioned article.  Dr. Warren Warrick was a Pioneer in CF and invented the Vest.  He has now retired.  </P> <P> </P> <P>We love the staff.  The clinic has a Median Life Expectency that is...

<P>Our daughter goes to theUniversity of Minnesota. It is one of the clinics featured in the previously mentioned article. Dr. Warren Warrick was a Pioneer in CF and invented the Vest. He has now retired. </P> <P></P> <P>We love the staff. The clinic has a MedianLife Expectency that is 11 years...

<P><BR>Our daughter goes to theUniversity of Minnesota. It is one of the clinics featured in the previously mentioned article. Dr. Warren Warrick was a Pioneer in CF and invented the Vest. He has now retired. </P> <P></P> <P>We love the staff. The clinic has a MedianLife Expectency that is 11...

Test results can vary greatly by day and by tester.

Test results can vary greatly by day and by tester.

Test results can vary greatly by day and by tester.