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Hi there, This is the same mutation that my 4 children have. They have not found any other mutation yet. The only thing that I can say about this mutation is that is rare. From what Ambry told us, they don't know much about it. Each one of my kids are different as far as symptoms. One is not...

Hi there, This is the same mutation that my 4 children have. They have not found any other mutation yet. The only thing that I can say about this mutation is that is rare. From what Ambry told us, they don't know much about it. Each one of my kids are different as far as symptoms. One is not...

Hi there, This is the same mutation that my 4 children have. They have not found any other mutation yet. The only thing that I can say about this mutation is that is rare. From what Ambry told us, they don't know much about it. Each one of my kids are different as far as symptoms. One is not...

Hi there, This is the same mutation that my 4 children have. They have not found any other mutation yet. The only thing that I can say about this mutation is that is rare. From what Ambry told us, they don't know much about it. Each one of my kids are different as far as symptoms. One is not...

Hi there, <br /> <br />This is the same mutation that my 4 children have. They have not found any other mutation yet. The only thing that I can say about this mutation is that is rare. From what Ambry told us, they don't know much about it. <br /> <br />Each one of my kids are different as far...

We have already went down that road. Our 11 year old had a G-tube put in last October. He is doing really well and yes, it did take a lot of stress about the amount of food he wasn't consuming without the tube.... He looks so good now.... Tina

We have already went down that road. Our 11 year old had a G-tube put in last October. He is doing really well and yes, it did take a lot of stress about the amount of food he wasn't consuming without the tube.... He looks so good now.... Tina

We have already went down that road. Our 11 year old had a G-tube put in last October. He is doing really well and yes, it did take a lot of stress about the amount of food he wasn't consuming without the tube.... He looks so good now.... Tina

We have already went down that road. Our 11 year old had a G-tube put in last October. He is doing really well and yes, it did take a lot of stress about the amount of food he wasn't consuming without the tube.... He looks so good now.... Tina

We have already went down that road. Our 11 year old had a G-tube put in last October. He is doing really well and yes, it did take a lot of stress about the amount of food he wasn't consuming without the tube.... <br /> <br />He looks so good now.... <br /> <br />Tina

I think the one thing that I am stressing about the most is making sure they get done everytime he eats. I am no longer at stay at home mom, so when my husband and I are working, we have to count on our older kids do it for us... I think in time it will also become the normal....I know things...

I think the one thing that I am stressing about the most is making sure they get done everytime he eats. I am no longer at stay at home mom, so when my husband and I are working, we have to count on our older kids do it for us... I think in time it will also become the normal....I know things...

I think the one thing that I am stressing about the most is making sure they get done everytime he eats. I am no longer at stay at home mom, so when my husband and I are working, we have to count on our older kids do it for us... I think in time it will also become the normal....I know things...

I think the one thing that I am stressing about the most is making sure they get done everytime he eats. I am no longer at stay at home mom, so when my husband and I are working, we have to count on our older kids do it for us... I think in time it will also become the normal....I know things...

I think the one thing that I am stressing about the most is making sure they get done everytime he eats. I am no longer at stay at home mom, so when my husband and I are working, we have to count on our older kids do it for us... <br /> <br />I think in time it will also become the normal....I...

Thanks guys for the good advice...I sometimes wish that they were dianosed as infants so this could just be the normal for them. I think I will try the applesauce first...its cheaper..then ice cream if need be. I do have the special cup Heather and thank you for reminding me about it...

Thanks guys for the good advice...I sometimes wish that they were dianosed as infants so this could just be the normal for them. I think I will try the applesauce first...its cheaper..then ice cream if need be. I do have the special cup Heather and thank you for reminding me about it...

Thanks guys for the good advice...I sometimes wish that they were dianosed as infants so this could just be the normal for them. I think I will try the applesauce first...its cheaper..then ice cream if need be. I do have the special cup Heather and thank you for reminding me about it...

Thanks guys for the good advice...I sometimes wish that they were dianosed as infants so this could just be the normal for them. I think I will try the applesauce first...its cheaper..then ice cream if need be. I do have the special cup Heather and thank you for reminding me about it...

Thanks guys for the good advice...I sometimes wish that they were dianosed as infants so this could just be the normal for them. <br /> <br />I think I will try the applesauce first...its cheaper..then ice cream if need be. I do have the special cup Heather and thank you for reminding me about...