Cystic Fibrosis Forum (EXP)

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  1. M

    Infant Nutrition

    My son also had issues with gaining weight so I can sympathize with you ~ he's finally at the 50th percentile at age 4. I hope you can get some better solutions at clinic. Both of my children had reflux as infants and were put on zantac and continue to take it to help the Creon. Please let us...
  2. M

    Infant Nutrition

    My son also had issues with gaining weight so I can sympathize with you ~ he's finally at the 50th percentile at age 4. I hope you can get some better solutions at clinic. Both of my children had reflux as infants and were put on zantac and continue to take it to help the Creon. Please let us...
  3. M

    Infant Nutrition

    My son also had issues with gaining weight so I can sympathize with you ~ he's finally at the 50th percentile at age 4. I hope you can get some better solutions at clinic. Both of my children had reflux as infants and were put on zantac and continue to take it to help the Creon. Please let us...
  4. M

    How my kids were diagnosed

    Just wanted to say Welcome! This is a great place to talk to other parents. We also have two children with CF ~ 4 years and 5 months ~
  5. M

    How my kids were diagnosed

    Just wanted to say Welcome! This is a great place to talk to other parents. We also have two children with CF ~ 4 years and 5 months ~
  6. M

    How my kids were diagnosed

    Just wanted to say Welcome! This is a great place to talk to other parents. We also have two children with CF ~ 4 years and 5 months ~
  7. M

    Dilated Bowel on Sonagram

    Congratulations on your pregnancy! Our 3 yo son was born with meconium ilieus - the surgeon was able to take care of it with an enema - no surgery. Our daughter (4 months) showed signs of bright bowel on ultrasounds but didn't have meconium ileus and is doing well. (She was diagnosed with CF...
  8. M

    Dilated Bowel on Sonagram

    Congratulations on your pregnancy! Our 3 yo son was born with meconium ilieus - the surgeon was able to take care of it with an enema - no surgery. Our daughter (4 months) showed signs of bright bowel on ultrasounds but didn't have meconium ileus and is doing well. (She was diagnosed with CF...
  9. M

    Dilated Bowel on Sonagram

    Congratulations on your pregnancy! Our 3 yo son was born with meconium ilieus - the surgeon was able to take care of it with an enema - no surgery. Our daughter (4 months) showed signs of bright bowel on ultrasounds but didn't have meconium ileus and is doing well. (She was diagnosed with CF...
  10. M

    Choosing a Center - CHOP vs duPont

    Just wanted to add that we are extremely happy with CHOP. Everyone we see has such a great, caring attitude with our son, including Dr. Suzanne Beck, Jaime & Dave from PT, Nurses Kerri and Lauren. We feel that they are on top of new therapies/meds/situations and respond to our questions/concerns...
  11. M

    Choosing a Center - CHOP vs duPont

    Just wanted to add that we are extremely happy with CHOP. Everyone we see has such a great, caring attitude with our son, including Dr. Suzanne Beck, Jaime & Dave from PT, Nurses Kerri and Lauren. We feel that they are on top of new therapies/meds/situations and respond to our questions/concerns...
  12. M

    Choosing a Center - CHOP vs duPont

    Just wanted to add that we are extremely happy with CHOP. Everyone we see has such a great, caring attitude with our son, including Dr. Suzanne Beck, Jaime & Dave from PT, Nurses Kerri and Lauren. We feel that they are on top of new therapies/meds/situations and respond to our questions/concerns...
  13. M

    Pulmozyme or Hypertonic Saline

    Our son also used both. He already does vest for 1/2 hour am and pm and the nebs don't take any longer than that.
  14. M

    Pulmozyme or Hypertonic Saline

    Our son also used both. He already does vest for 1/2 hour am and pm and the nebs don't take any longer than that.
  15. M

    Pulmozyme or Hypertonic Saline

    Our son also used both. He already does vest for 1/2 hour am and pm and the nebs don't take any longer than that.
  16. M

    How do you know it is time for a vest?

    We started with CPT twice a day when he was week old as a preventative. When he's sick we go up to four times a day. We received the vest 5 months ago (CPT was becoming a struggle)and LOVE it! No more aching arms/wrists, no more battles. We started at 15 minutes 2x a day and are up to 25 minutes...
  17. M

    How do you know it is time for a vest?

    We started with CPT twice a day when he was week old as a preventative. When he's sick we go up to four times a day. We received the vest 5 months ago (CPT was becoming a struggle)and LOVE it! No more aching arms/wrists, no more battles. We started at 15 minutes 2x a day and are up to 25 minutes...
  18. M

    How do you know it is time for a vest?

    We started with CPT twice a day when he was week old as a preventative. When he's sick we go up to four times a day. We received the vest 5 months ago (CPT was becoming a struggle)and LOVE it! No more aching arms/wrists, no more battles. We started at 15 minutes 2x a day and are up to 25 minutes...
  19. M

    Vest question/help

    Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30...
  20. M

    Vest question/help

    Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30...
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