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Have you asked your local CF clinic if they have any compressors available? Sometimes they have extra compressors from drug manufacturers for testing......

The CF Foundation has always been great at keeping the CF community informed. At present there is a lot of misinformation spreading about the impact this will have on CF adults, children and families. There are a lot of scared CF patients including myself who want to mobilize and...

The CF Foundation has always been great at keeping the CF community informed. At present there is a lot of misinformation spreading about the impact this will have on CF adults, children and families. There are a lot of scared CF patients including myself who want to mobilize and direct our...

Start with sending an email to the CF Foundation immediately from yourself and anybody you know and take a moment to explain the impact it would have on you and others. That is step 1.

WE HAVE AN EMERGENCY On February 3, 2013, the Social Security Administration (SSA) proposed changes to medical eligibility criteria which, if enacted as is, would result in thousands of people with Cystic Fibrosis losing their Social Security Disability Insurance, SSI, Medicare and...

WE HAVE AN EMERGENCY On February 3, 2013, the Social Security Administration (SSA) proposed changes to medical eligibility criteria which, if enacted as is, would result in thousands of people with Cystic Fibrosis losing their Social Security Disability Insurance, SSI, Medicare and Medicaid...

I am sorry that this thread is so far off topic regarding the Rx. To date I have only ordered the dressing change kit and didn't need the Rx as long as it was shipped to my doctor's office. After placing my order I spoke with Terry at Accessmedicalusa about my situation and then he mentioned...

Thank you for bringing this up. The law says that he cannot ship the product to me so he shipped it directly to my doctor's office. However I paid for it. Then it is up to my doctor's office to "dispense" the item to me which involves handing over the package. So, it is legal.

What would you like to know? I have been on it for years on an aerosolized formula.

First let me begin by saying that I have no affiliation with this company. I have a port and have been receiving my monthly port flush supplies (Dressing Change Kit & Huber Needle) from my home healthcare company for $100 per month. Medicare Insurance doesn't cover these expenses. After a...

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I use the eflow with xopenex, hypersaline, colistin, vanco, pulmozyme per doctor's orders. It isn't FDA approved for all drugs but some doctors are comfortable prescribing it. You have to change the concentration levels to use eflow.

I use the eflow with xopenex, hypersaline, colistin, vanco, pulmozyme per doctor's orders. It isn't FDA approved for all drugs but some doctors are comfortable prescribing it. You have to change the concentration levels to use eflow.

I use the eflow with xopenex, hypersaline, colistin, vanco, pulmozyme per doctor's orders. <br /> <br />It isn't FDA approved for all drugs but some doctors are comfortable prescribing it. <br /> <br />You have to change the concentration levels to use eflow.

Aside from the horrible taste, I get a large amount of white residue on my tongue. It is so bad that I immediately have to stop my aerosol treatments to rinse/brush my tongue/mouth. Does anybody else have this problem? FYI, I mix 10cc sterile water w/ vial of Vanco and use 5 cc per treatment...