Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. T

    Taking Back My Home

    Best suggestion is LESS STUFF. Be a minimalist. Go to the library and borrow books, go to the park, children wear pants for a few days,. Keep it simple. They really don't need as much as we buy them. Save money, your sanity, and the Earth.
  2. T

    IVF - CF Female

    I've done IVF three times, two healthy pregnancies. First IVF didn't work. Both pregnancies twins, but lost a twin with each pregnancy. I have two wonderful boys, 16 and 10. IVF wasn't difficult, but the pregnancies were and the birth. IVF in general is well difficult emotionally, physically...
  3. T

    Life Insurance

    I never was able to. If he is employed through a large agency, then during his initial first weeks if he signs up typically there is no medical questions for $50K. Then when they offer increasing with no medical questions he can continue to increase it. I work for a school district.
  4. T

    struggling for answers

    A mother's intuition is almost always correct. I'd push for a genetic test. Yes, it matters as the sooner you can treat , the less lung damage there will be.
  5. T

    R117h

    I sent you a private message. There is such hope with a child born with this mutation. Advances I never thought would happen in my lifetime. Kalydeco is FDA approved for this mutation. Now to get insurance approval and keep your son healthy until he is old enough to take it. You may not feel...
  6. T

    Have I asked too much of my children's elementary school teachers, and nurse?

    I'm a teacher with CF. I grew up without 504s and IEP meetings.My mother talked to the teacher and she taught me how to take care of myself. She was a stay at home mom and my lunch was filled with nutritious high calorie foods I would eat. I was sick frequently and missed school. I was given...
  7. T

    any parents out there dealing with CF adult children that have given up

    Don't be nice about it. Tell him what this is doing to you. He loves you probably more than he loves himself right now.
  8. T

    I have CF and I lost my older brother from CF

    Odd that today I read this post. My brother died 15 years ago today. There are so many emotions. For the rest of the family they lost a love one and they grieve. For me so much more. He was the pioneer who made the trail. The one who gave me advice on what to do and what not to do. My brother...
  9. T

    kids with and without cf

    I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...
  10. T

    kids with and without cf

    I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...
  11. T

    kids with and without cf

    I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...
  12. T

    kids with and without cf

    I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...
  13. T

    kids with and without cf

    I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...
  14. T

    Coping with Cepacia

    I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.
  15. T

    Coping with Cepacia

    I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.
  16. T

    Coping with Cepacia

    I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.
  17. T

    Coping with Cepacia

    I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.
  18. T

    Coping with Cepacia

    I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.
  19. T

    Pre-School

    I would reconsider sending your 2 yr old to preschool. I am 39 parent with CF. My children do not have CF but if they did they wouldn't go. The goal is to decrease the lung damage over time. Your children will be exposed to so much during the course of their school career there is no reason to...
  20. T

    Pre-School

    I would reconsider sending your 2 yr old to preschool. I am 39 parent with CF. My children do not have CF but if they did they wouldn't go. The goal is to decrease the lung damage over time. Your children will be exposed to so much during the course of their school career there is no reason to...
Top