Cystic Fibrosis Forum (EXP)

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  1. S

    On ivs 10 times so far this year..what now...

    Hi Mallory...I don't post on here that often, but this came up on my facebook feed and I just couldn't believe how insanely close it is to me... Since about Feb 2012 I haven't been home for more than a month...I am constantly going back into the hospital to get back on IVs (I have MRSA...
  2. S

    Changing port needle during iv

    Hey I'm 24. I'm on my second port; I got the first one when I was about 14. My doctor at the time actually emphasized patients learning and being taught to access/deaccess their own port (since I do all my own home IVs, it actually was probably a good idea to cut down on infection--both from...
  3. S

    whats your fev1 ?

    currently on home ivs after two weeks in hospital. a year ago FEV1 was 21%; now it's low 30s... i'm 23 and keep fighting but every day sucks... i'm not on oxygen either--just pure will power! <img src="i/expressions/face-icon-small-smile.gif" border="0"> anyone go any lower than that and still...
  4. S

    whats your fev1 ?

    currently on home ivs after two weeks in hospital. a year ago FEV1 was 21%; now it's low 30s... i'm 23 and keep fighting but every day sucks... i'm not on oxygen either--just pure will power! <img src="i/expressions/face-icon-small-smile.gif" border="0"> anyone go any lower than that and still...
  5. S

    Who are you in a nut shell

    My name is Sam. I'm a guy. I'm 21. I live in Wichita, KS. I have CF since birth, but don't know the strain. I weigh 160 and 5'9"--I love to weightlift and workout (when healthy..) I love rock music--Korn is my all-time favorite band. I have a thing for movies...Pulp Fiction is my number 1, but...
  6. S

    ANYONE WIT CF ALSO HAVE DRUG PROBLEMS!!

    I'm definitely going through the same struggles right now and I'm sooo happy I found this website. I really wish there was a way to meet more people locally with CF... Anyway, I have been struggling heavily with depression, suicidal thoughts, anxiety, lonliness, acceptance, and pretty much...
  7. S

    ANYONE WIT CF ALSO HAVE DRUG PROBLEMS!!

    I'm definitely going through the same struggles right now and I'm sooo happy I found this website. I really wish there was a way to meet more people locally with CF... Anyway, I have been struggling heavily with depression, suicidal thoughts, anxiety, lonliness, acceptance, and pretty much...
  8. S

    ANYONE WIT CF ALSO HAVE DRUG PROBLEMS!!

    I'm definitely going through the same struggles right now and I'm sooo happy I found this website. I really wish there was a way to meet more people locally with CF... Anyway, I have been struggling heavily with depression, suicidal thoughts, anxiety, lonliness, acceptance, and pretty much...
  9. S

    ANYONE WIT CF ALSO HAVE DRUG PROBLEMS!!

    I'm definitely going through the same struggles right now and I'm sooo happy I found this website. I really wish there was a way to meet more people locally with CF... Anyway, I have been struggling heavily with depression, suicidal thoughts, anxiety, lonliness, acceptance, and pretty much...
  10. S

    ANYONE WIT CF ALSO HAVE DRUG PROBLEMS!!

    I'm definitely going through the same struggles right now and I'm sooo happy I found this website. I really wish there was a way to meet more people locally with CF... Anyway, I have been struggling heavily with depression, suicidal thoughts, anxiety, lonliness, acceptance, and pretty much...
  11. S

    Looking for CF people to talk to in their 20's

    Yeah so I definitely private messaged a couple of you guys! I'm new to this website...I'm 21 from Wichita, KS and always struggling with the day-to-day problems of CF and "normal" people. I have trouble finding acceptance from everyone, including employers, girlfriends, family members, and...
  12. S

    Looking for CF people to talk to in their 20's

    Yeah so I definitely private messaged a couple of you guys! I'm new to this website...I'm 21 from Wichita, KS and always struggling with the day-to-day problems of CF and "normal" people. I have trouble finding acceptance from everyone, including employers, girlfriends, family members, and...
  13. S

    Looking for CF people to talk to in their 20's

    Yeah so I definitely private messaged a couple of you guys! I'm new to this website...I'm 21 from Wichita, KS and always struggling with the day-to-day problems of CF and "normal" people. I have trouble finding acceptance from everyone, including employers, girlfriends, family members, and...
  14. S

    Looking for CF people to talk to in their 20's

    Yeah so I definitely private messaged a couple of you guys! I'm new to this website...I'm 21 from Wichita, KS and always struggling with the day-to-day problems of CF and "normal" people. I have trouble finding acceptance from everyone, including employers, girlfriends, family members, and...
  15. S

    Looking for CF people to talk to in their 20's

    Yeah so I definitely private messaged a couple of you guys! I'm new to this website...I'm 21 from Wichita, KS and always struggling with the day-to-day problems of CF and "normal" people. I have trouble finding acceptance from everyone, including employers, girlfriends, family members, and...
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