Cystic Fibrosis Forum (EXP)

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  1. L

    Vertex 770 question

    Thanks for the info. I will pass it on to my 'resource'. Hopefully six more months and some of us will be breathing better.
  2. L

    Vertex 770 question

    Thanks for the info. I will pass it on to my 'resource'. Hopefully six more months and some of us will be breathing better.
  3. L

    Vertex 770 question

    Thanks for the info. I will pass it on to my 'resource'. Hopefully six more months and some of us will be breathing better.
  4. L

    Vertex 770 question

    If you are colonized with psuedomonas, does the medicine still work? I heard through contacts that I have that if you have psuedo, the medicine doesn't work. I hope I heard wrong because That knocks out most of the CF community.
  5. L

    Vertex 770 question

    If you are colonized with psuedomonas, does the medicine still work? I heard through contacts that I have that if you have psuedo, the medicine doesn't work. I hope I heard wrong because That knocks out most of the CF community.
  6. L

    Vertex 770 question

    <BR>If you are colonized with psuedomonas, does the medicine still work? I heard through contacts that I have that if you have psuedo, the medicine doesn't work. I hope I heard wrong because That knocks out most of the CF community.
  7. L

    Living on a farm? And quesetions about soil.

    I grew up playing on a farm and helping my uncle with stuff around the farm and the only thing I had problems with was cleaning wheat and most likely you won't be doing that on WWOOF. I suggest to all to play in the dirt.
  8. L

    Living on a farm? And quesetions about soil.

    I grew up playing on a farm and helping my uncle with stuff around the farm and the only thing I had problems with was cleaning wheat and most likely you won't be doing that on WWOOF. I suggest to all to play in the dirt.
  9. L

    Living on a farm? And quesetions about soil.

    I grew up playing on a farm and helping my uncle with stuff around the farm and the only thing I had problems with was cleaning wheat and most likely you won't be doing that on WWOOF. I suggest to all to play in the dirt.
  10. L

    percussor

    I also have the electro flo 5000 percussor and absolutely love. I actually use this as it mimics more of manual percussion. I do have my husband percuss my back but I can do all other lobes. I took it with me to the hospital the last time I was in and the RT's in there loved it too because it...
  11. L

    percussor

    I also have the electro flo 5000 percussor and absolutely love. I actually use this as it mimics more of manual percussion. I do have my husband percuss my back but I can do all other lobes. I took it with me to the hospital the last time I was in and the RT's in there loved it too because it...
  12. L

    percussor

    I also have the electro flo 5000 percussor and absolutely love. I actually use this as it mimics more of manual percussion. I do have my husband percuss my back but I can do all other lobes. I took it with me to the hospital the last time I was in and the RT's in there loved it too because it...
  13. L

    med port

    I am a port lover also. Mine is in my upper left chest. I have had it for almost 14 years. I access it myself and it saved me from 10 to 12 iv sticks each time an IV blew which was about every 8 hours or so. I also got my first port (in 1991) before PICC lines were popular. During high school, I...
  14. L

    med port

    I am a port lover also. Mine is in my upper left chest. I have had it for almost 14 years. I access it myself and it saved me from 10 to 12 iv sticks each time an IV blew which was about every 8 hours or so. I also got my first port (in 1991) before PICC lines were popular. During high school, I...
  15. L

    med port

    I am a port lover also. Mine is in my upper left chest. I have had it for almost 14 years. I access it myself and it saved me from 10 to 12 iv sticks each time an IV blew which was about every 8 hours or so. I also got my first port (in 1991) before PICC lines were popular. During high school, I...
  16. L

    Cook Children's in Fort Worth, Texas

    I saw Dr. Cunningham back in the late 80's and I really liked him. He communicated very well with my primary physicians and we were located in Whichita Falls. Good luck in your move.
  17. L

    Cook Children's in Fort Worth, Texas

    I saw Dr. Cunningham back in the late 80's and I really liked him. He communicated very well with my primary physicians and we were located in Whichita Falls. Good luck in your move.
  18. L

    Cook Children's in Fort Worth, Texas

    I saw Dr. Cunningham back in the late 80's and I really liked him. He communicated very well with my primary physicians and we were located in Whichita Falls. Good luck in your move.
  19. L

    antibiotics allergies

    I am 29 and allergic to almost every antibiotic under the sun including oral and IV. My doctor has done some desensitization on some just because we were out of options. I too have taken some antibiotics for years before becoming allergic to them. My doctors cringe when I call in that I am...
  20. L

    antibiotics allergies

    I am 29 and allergic to almost every antibiotic under the sun including oral and IV. My doctor has done some desensitization on some just because we were out of options. I too have taken some antibiotics for years before becoming allergic to them. My doctors cringe when I call in that I am...
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