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Cystic Fibrosis Forum (EXP)

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Adding to the original lungs question...

serendipity730

New member
Not long ago, someone posted asking if there was anyone over 35 with their "original lungs," so I have 2 questions for those with their original lungs over 35. Were any of you diagnosed within the first 4 years of life? Also, how much lung function did you lose between 25 and 35? Thanks!
 

anonymous

New member
I was diagnosed when I was 6 months old. Like the previous poster - my lungs were good until about 42/43. I still have my "original" lungs.
 

anonymous

New member
Diagnosed at 19, misdiagnosed for many years.... I lost about 20% of my lung function between 25 and 35.

Kim
40 w/cf
 

Diane

New member
I was diagnosed at 3 years old. lung function was in the high 90's till i got b.cepacia around the age of 32 . Then it went slowly down over the years. I'm now in the 40's range, and intend on staying there forever unless they find a way to help me raise it....lol
 
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