Any CF runners?

[anonymous]

Hi,
I'm just curious how many of us run either on a treadmill or outside? If you run, how often and how long or far do you go without stopping for a walk? Do you jog or run fast?
I run a couple times a week. I alternate my running on the treadmill with biking or elliptical cause I've had ankle injuries and don't want to overdo it.
I run for about a mile at 11 1/2 minutes per mile. I feel awesome after I run, though my HR is usually over 180, and I'm usually ready to drop when I'm done with the mile! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyway, just wondering if other CFers' run and what their experiences are with it? Do you find it really difficult but push yourself anyway? Do you run a few minutes, walk, run, walk? What is your routine?

Sonia

 

[anonymous]

Hi,
I'm just curious how many of us run either on a treadmill or outside? If you run, how often and how long or far do you go without stopping for a walk? Do you jog or run fast?
I run a couple times a week. I alternate my running on the treadmill with biking or elliptical cause I've had ankle injuries and don't want to overdo it.
I run for about a mile at 11 1/2 minutes per mile. I feel awesome after I run, though my HR is usually over 180, and I'm usually ready to drop when I'm done with the mile! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyway, just wondering if other CFers' run and what their experiences are with it? Do you find it really difficult but push yourself anyway? Do you run a few minutes, walk, run, walk? What is your routine?

Sonia

 

[anonymous]

Hi Sonia,

My name is Jennifer. I run/walk on my treadmill 5 days per week. I usually run 2 miles each day. The first quarter mile I walk as a warm-up. Then, I run another quarter mile. From then on, I alternate with each quarter mile. The last lap I walk as a cool-down. It takes me about 30 minutes. I use to run the whole thing in 20 minutes, but I beat myself up way too much. I'd run the two miles and at first I'd feel fine. An hour later, I start feeling terrible all over. Two hours later, I'd run a fever of 100F. Then, I'd take an Advil or something to feel better. My PFT's were around 89%. Now with run/walking, they are around 87%. Also, I get just the right amount of exercise and have no after effects. Although, I noticed that when I only walk, I get no benefit at all. I run higher blood sugars and have lower PFT's. For me, only walking is worthless.

Jennifer (24-with CF)

 

[anonymous]

Hi Sonia,

My name is Jennifer. I run/walk on my treadmill 5 days per week. I usually run 2 miles each day. The first quarter mile I walk as a warm-up. Then, I run another quarter mile. From then on, I alternate with each quarter mile. The last lap I walk as a cool-down. It takes me about 30 minutes. I use to run the whole thing in 20 minutes, but I beat myself up way too much. I'd run the two miles and at first I'd feel fine. An hour later, I start feeling terrible all over. Two hours later, I'd run a fever of 100F. Then, I'd take an Advil or something to feel better. My PFT's were around 89%. Now with run/walking, they are around 87%. Also, I get just the right amount of exercise and have no after effects. Although, I noticed that when I only walk, I get no benefit at all. I run higher blood sugars and have lower PFT's. For me, only walking is worthless.

Jennifer (24-with CF)

 

[anonymous]

Hi Sonia

Throughout my late teens and my twenties I would walk fast and jog like what you describe a ten minute mile. sometimes I would run a nine minute mile when I was in good shape. Now that I am older I only do eliptical at level eight (precor) which is difficult and sometimes I go at a lower level but I go very fast. I also use the treadmill and jog fast on my mini trampoline. I love it.

I have found to keep my Blood Glucose in the low one hundreds I must do a forty minute session of aerobics non stop and go at a fast pace. I load up on good carbs/protein and away I go.

The only problem I have is I work out every day and I really need a rest so tomorrow I hope I just walk fast on my treadmill. I am gaining a lot of weight with my current program. I am five eight and weigh 131 llbs. I want to get up to 145 and I will be happier.

Risa

 

[anonymous]

Hi Sonia

Throughout my late teens and my twenties I would walk fast and jog like what you describe a ten minute mile. sometimes I would run a nine minute mile when I was in good shape. Now that I am older I only do eliptical at level eight (precor) which is difficult and sometimes I go at a lower level but I go very fast. I also use the treadmill and jog fast on my mini trampoline. I love it.

I have found to keep my Blood Glucose in the low one hundreds I must do a forty minute session of aerobics non stop and go at a fast pace. I load up on good carbs/protein and away I go.

The only problem I have is I work out every day and I really need a rest so tomorrow I hope I just walk fast on my treadmill. I am gaining a lot of weight with my current program. I am five eight and weigh 131 llbs. I want to get up to 145 and I will be happier.

Risa

 

[anonymous]

THAT'S EXCELLENT FOR BOTH OF YOU!!!! Thanks for sharing your stories. I often feel bad talking about running, since many CFers can't do so, and it is a chore just to walk. So, I feel good knowing there are other CFers with mild-moderate disease that can and do physical activity.

Sonia

 

[anonymous]

THAT'S EXCELLENT FOR BOTH OF YOU!!!! Thanks for sharing your stories. I often feel bad talking about running, since many CFers can't do so, and it is a chore just to walk. So, I feel good knowing there are other CFers with mild-moderate disease that can and do physical activity.

Sonia

 

[anonymous]

I find cross training works for me.

I swim once to twice a week, cycle to and from places, walk at night go jogging, lift weights 3-4 times a week just keep active take the stairs park the car a lil away

i think activity levels combined with some luck has helped me stay out of the hospital for all of my 27 years!

 

[anonymous]

I find cross training works for me.

I swim once to twice a week, cycle to and from places, walk at night go jogging, lift weights 3-4 times a week just keep active take the stairs park the car a lil away

i think activity levels combined with some luck has helped me stay out of the hospital for all of my 27 years!

 

[cdale613]

Yeah CF runners!

I ran competitively in HS and College, and it has made all the difference in my fight against CF.

I continue to run a couple times a week, at much slower paces, for much less time. I also lift 3-4 days a week, bike to work several days a week (in the warmer months), and swim occasionally. For about 5 years, I ran 70 miles a week. My PR's were decent, I was in the middle of the pack in the NCAA Division III races... some of my better days: ran a 55 minute 15K, a 4:34 mile, and 28min. 8 sec. 5 mile.

I agree with Sonia about being a little self conscious on the board, but these are some of my proudest accomplishments, and I hope that some people reading this find them personally encouraging.


Chris

25 w/CF

 

[cdale613]

Yeah CF runners!

I ran competitively in HS and College, and it has made all the difference in my fight against CF.

I continue to run a couple times a week, at much slower paces, for much less time. I also lift 3-4 days a week, bike to work several days a week (in the warmer months), and swim occasionally. For about 5 years, I ran 70 miles a week. My PR's were decent, I was in the middle of the pack in the NCAA Division III races... some of my better days: ran a 55 minute 15K, a 4:34 mile, and 28min. 8 sec. 5 mile.

I agree with Sonia about being a little self conscious on the board, but these are some of my proudest accomplishments, and I hope that some people reading this find them personally encouraging.


Chris

25 w/CF

 

[anonymous]

Chris,

Thank you for sharing your accomplishments and GOOD JOB!!!! You've certainly inspired me!!!!!

<img src="i/expressions/face-icon-small-smile.gif" border="0">

Sonia

 

[anonymous]

Chris,

Thank you for sharing your accomplishments and GOOD JOB!!!! You've certainly inspired me!!!!!

<img src="i/expressions/face-icon-small-smile.gif" border="0">

Sonia

 

[mousesmom]

There was a CF guy (I think he was in his twenties) who completed the Comrade's marathon last year. I don't know him but saw it on the TV coverage. That's a +-75km race up and down some really steep hills!

 

[mousesmom]

There was a CF guy (I think he was in his twenties) who completed the Comrade's marathon last year. I don't know him but saw it on the TV coverage. That's a +-75km race up and down some really steep hills!

 

[threecolors]

Most of my running is treadmill but I also run outdoors at least once a week. I have entered a couple of 10k runs in the past and my next one is in May. I'm aiming for a time of about 55minutes which isn't too shabby for a CFer <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[threecolors]

Most of my running is treadmill but I also run outdoors at least once a week. I have entered a couple of 10k runs in the past and my next one is in May. I'm aiming for a time of about 55minutes which isn't too shabby for a CFer <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

I just started running on a regular basis in November. I had a double lung transplant nearly 6 years ago. I credit exercise with much of my success after transplant.

I've completed three 5K races and have an 8K on Sunday. I love running! It feels so good. Six years ago, walking to the mailbox was a struggle.

 

[anonymous]

I just started running on a regular basis in November. I had a double lung transplant nearly 6 years ago. I credit exercise with much of my success after transplant.

I've completed three 5K races and have an 8K on Sunday. I love running! It feels so good. Six years ago, walking to the mailbox was a struggle.