Are you (or your child) getting the most out of your treatments?

beleache · Nov 18, 2007

I have recently changed centers, and have been retrained in the use of the vest.. To my surprise, i actually started to get junk up.. I had always said: " i'm not productive" wrong, i just needed to be taught the correct way of doing it... Amy (bittyhorse) had answered the post "how do you feel about all the medication" part of her answer was "If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer *it is how we us them.* You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself.. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.. That was exactly what i was doing for so many years.. So if you think that you or your child is not doing the vest the right way, then i would check it out ASAP.. Take care and God Bless <img src="i/expressions/vest.gif" border="0"> joni

beleache · Nov 18, 2007

I have recently changed centers, and have been retrained in the use of the vest.. To my surprise, i actually started to get junk up.. I had always said: " i'm not productive" wrong, i just needed to be taught the correct way of doing it... Amy (bittyhorse) had answered the post "how do you feel about all the medication" part of her answer was "If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer *it is how we us them.* You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself.. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.. That was exactly what i was doing for so many years.. So if you think that you or your child is not doing the vest the right way, then i would check it out ASAP.. Take care and God Bless <img src="i/expressions/vest.gif" border="0"> joni

beleache · Nov 18, 2007

I have recently changed centers, and have been retrained in the use of the vest.. To my surprise, i actually started to get junk up.. I had always said: " i'm not productive" wrong, i just needed to be taught the correct way of doing it... Amy (bittyhorse) had answered the post "how do you feel about all the medication" part of her answer was "If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer *it is how we us them.* You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself.. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.. That was exactly what i was doing for so many years.. So if you think that you or your child is not doing the vest the right way, then i would check it out ASAP.. Take care and God Bless <img src="i/expressions/vest.gif" border="0"> joni

beleache · Nov 18, 2007

I have recently changed centers, and have been retrained in the use of the vest.. To my surprise, i actually started to get junk up.. I had always said: " i'm not productive" wrong, i just needed to be taught the correct way of doing it... Amy (bittyhorse) had answered the post "how do you feel about all the medication" part of her answer was "If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer *it is how we us them.* You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself.. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.. That was exactly what i was doing for so many years.. So if you think that you or your child is not doing the vest the right way, then i would check it out ASAP.. Take care and God Bless <img src="i/expressions/vest.gif" border="0"> joni

beleache · Nov 18, 2007

I have recently changed centers, and have been retrained in the use of the vest.. To my surprise, i actually started to get junk up.. I had always said: " i'm not productive" wrong, i just needed to be taught the correct way of doing it... Amy (bittyhorse) had answered the post "how do you feel about all the medication" part of her answer was "If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer *it is how we us them.* You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself.. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.. That was exactly what i was doing for so many years.. So if you think that you or your child is not doing the vest the right way, then i would check it out ASAP.. Take care and God Bless <img src="i/expressions/vest.gif" border="0"> joni

sue35 · Nov 18, 2007

Can you tell us how you were using it vs. how you are now? I have a feeling I don't use it the right way either

sue35 · Nov 18, 2007

Can you tell us how you were using it vs. how you are now? I have a feeling I don't use it the right way either

sue35 · Nov 18, 2007

Can you tell us how you were using it vs. how you are now? I have a feeling I don't use it the right way either

sue35 · Nov 18, 2007

Can you tell us how you were using it vs. how you are now? I have a feeling I don't use it the right way either

sue35 · Nov 18, 2007

Can you tell us how you were using it vs. how you are now? I have a feeling I don't use it the right way either

MCGrad2006 · Nov 18, 2007

Hmmmmm....thank you so much for posting this Joni.

That could explain a lot in my case...I used to be so stubborn as far as coughing junk up. In the last year I have swicthed from Pulmo (b/c it wasnt doing anything for me, prob b/c I wasnt using it right) to HTS (forcing me to hack stuff up). I learned how to and now I can spit like the best of them...lol. Since the big switch and learning to cough up crap, I have not been in the hosp, when before I was in like about every six months (its been 11 months now). And thats also probably why I have been able to recover from so many colds with oral abx insteaad of IV's. Although I have also had the beneift of the aztreonam...but not since June.

MCGrad2006 · Nov 18, 2007

Hmmmmm....thank you so much for posting this Joni.

That could explain a lot in my case...I used to be so stubborn as far as coughing junk up. In the last year I have swicthed from Pulmo (b/c it wasnt doing anything for me, prob b/c I wasnt using it right) to HTS (forcing me to hack stuff up). I learned how to and now I can spit like the best of them...lol. Since the big switch and learning to cough up crap, I have not been in the hosp, when before I was in like about every six months (its been 11 months now). And thats also probably why I have been able to recover from so many colds with oral abx insteaad of IV's. Although I have also had the beneift of the aztreonam...but not since June.

MCGrad2006 · Nov 18, 2007

Hmmmmm....thank you so much for posting this Joni.

That could explain a lot in my case...I used to be so stubborn as far as coughing junk up. In the last year I have swicthed from Pulmo (b/c it wasnt doing anything for me, prob b/c I wasnt using it right) to HTS (forcing me to hack stuff up). I learned how to and now I can spit like the best of them...lol. Since the big switch and learning to cough up crap, I have not been in the hosp, when before I was in like about every six months (its been 11 months now). And thats also probably why I have been able to recover from so many colds with oral abx insteaad of IV's. Although I have also had the beneift of the aztreonam...but not since June.

MCGrad2006 · Nov 18, 2007

Hmmmmm....thank you so much for posting this Joni.

That could explain a lot in my case...I used to be so stubborn as far as coughing junk up. In the last year I have swicthed from Pulmo (b/c it wasnt doing anything for me, prob b/c I wasnt using it right) to HTS (forcing me to hack stuff up). I learned how to and now I can spit like the best of them...lol. Since the big switch and learning to cough up crap, I have not been in the hosp, when before I was in like about every six months (its been 11 months now). And thats also probably why I have been able to recover from so many colds with oral abx insteaad of IV's. Although I have also had the beneift of the aztreonam...but not since June.

MCGrad2006 · Nov 18, 2007

Hmmmmm....thank you so much for posting this Joni.

That could explain a lot in my case...I used to be so stubborn as far as coughing junk up. In the last year I have swicthed from Pulmo (b/c it wasnt doing anything for me, prob b/c I wasnt using it right) to HTS (forcing me to hack stuff up). I learned how to and now I can spit like the best of them...lol. Since the big switch and learning to cough up crap, I have not been in the hosp, when before I was in like about every six months (its been 11 months now). And thats also probably why I have been able to recover from so many colds with oral abx insteaad of IV's. Although I have also had the beneift of the aztreonam...but not since June.

Rickiesmom · Nov 18, 2007