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At what age did you start to notice....

J

jdprecious

New member
And by this I don't mean sob or anything like that, so let me clarify... At what age did you realize that a certain therapy worked better for you than another (for instance, flutter vs. manual cpt vs. vest), what meds either opened you up and made breathing easier or possibly caused tightness in the chest??? I guess, what I am saying is, when were you old enough to notice that this thing works and this other thing does not?

I keep asking Jaelyn how she feels and if she notices any changes when taking each med and doing each type of percussion. Even if her answers are not familiar yet, I want to establish this line of questioning early on. I know she is only six and I may be grilling her a wee bit to soon, but I want her to know how to listen to her body's responses and pick up on that as early as possible. Anything that works well for her and cleans her out best, I want to focus on. Obviously, vice versa on what doesn't work well for her. What advice and experiences on this subject do you have?
 
J

jdprecious

New member
And by this I don't mean sob or anything like that, so let me clarify... At what age did you realize that a certain therapy worked better for you than another (for instance, flutter vs. manual cpt vs. vest), what meds either opened you up and made breathing easier or possibly caused tightness in the chest??? I guess, what I am saying is, when were you old enough to notice that this thing works and this other thing does not?

I keep asking Jaelyn how she feels and if she notices any changes when taking each med and doing each type of percussion. Even if her answers are not familiar yet, I want to establish this line of questioning early on. I know she is only six and I may be grilling her a wee bit to soon, but I want her to know how to listen to her body's responses and pick up on that as early as possible. Anything that works well for her and cleans her out best, I want to focus on. Obviously, vice versa on what doesn't work well for her. What advice and experiences on this subject do you have?
 
J

jdprecious

New member
And by this I don't mean sob or anything like that, so let me clarify... At what age did you realize that a certain therapy worked better for you than another (for instance, flutter vs. manual cpt vs. vest), what meds either opened you up and made breathing easier or possibly caused tightness in the chest??? I guess, what I am saying is, when were you old enough to notice that this thing works and this other thing does not?

I keep asking Jaelyn how she feels and if she notices any changes when taking each med and doing each type of percussion. Even if her answers are not familiar yet, I want to establish this line of questioning early on. I know she is only six and I may be grilling her a wee bit to soon, but I want her to know how to listen to her body's responses and pick up on that as early as possible. Anything that works well for her and cleans her out best, I want to focus on. Obviously, vice versa on what doesn't work well for her. What advice and experiences on this subject do you have?
 
J

jdprecious

New member
And by this I don't mean sob or anything like that, so let me clarify... At what age did you realize that a certain therapy worked better for you than another (for instance, flutter vs. manual cpt vs. vest), what meds either opened you up and made breathing easier or possibly caused tightness in the chest??? I guess, what I am saying is, when were you old enough to notice that this thing works and this other thing does not?

I keep asking Jaelyn how she feels and if she notices any changes when taking each med and doing each type of percussion. Even if her answers are not familiar yet, I want to establish this line of questioning early on. I know she is only six and I may be grilling her a wee bit to soon, but I want her to know how to listen to her body's responses and pick up on that as early as possible. Anything that works well for her and cleans her out best, I want to focus on. Obviously, vice versa on what doesn't work well for her. What advice and experiences on this subject do you have?
 
J

jdprecious

New member
And by this I don't mean sob or anything like that, so let me clarify... At what age did you realize that a certain therapy worked better for you than another (for instance, flutter vs. manual cpt vs. vest), what meds either opened you up and made breathing easier or possibly caused tightness in the chest??? I guess, what I am saying is, when were you old enough to notice that this thing works and this other thing does not?
<br />
<br />I keep asking Jaelyn how she feels and if she notices any changes when taking each med and doing each type of percussion. Even if her answers are not familiar yet, I want to establish this line of questioning early on. I know she is only six and I may be grilling her a wee bit to soon, but I want her to know how to listen to her body's responses and pick up on that as early as possible. Anything that works well for her and cleans her out best, I want to focus on. Obviously, vice versa on what doesn't work well for her. What advice and experiences on this subject do you have?
 
6

65rosessamurai

Guest
Putting it in that perspective, that's a good question and a good thing for her to try and learn...maybe it could be something a CF doctor can push onto others the same age if it is successfull.

I didn't start noticing what foods go well and what doesn't go well with me until I was about 27, and that was because I suddenly felt better overall with my digestive issues after I came to Japan.
I found the food here suits me well, so anything outside my norm that causes "issues", I would try and back-track as to what might had caused the issue and either avoid it or consume less of it.

Sometimes, the lungs aren't the only thing to be aware of. Some CF'rs have less enzyme secretions than others, so when stomach issues are frequent, it would be wise to start finding out what is tolerable and what isn't at an early age to thrive a bit better in the future.

I was one with mostly stomach issues, so that would be my specialty. As for how the lungs go, it is only a recent thing, and so I'm also learning about what works and what doesn't (i.e. cleaning the house with a mask on, or leaving the house soon after vs. no mask and staying in the room that was just cleaned has its causes and effects)

Definitely, having to argue with the MIL causes serious coughing fits soon after, so I had avoided that at all possible.
 
6

65rosessamurai

Guest
Putting it in that perspective, that's a good question and a good thing for her to try and learn...maybe it could be something a CF doctor can push onto others the same age if it is successfull.

I didn't start noticing what foods go well and what doesn't go well with me until I was about 27, and that was because I suddenly felt better overall with my digestive issues after I came to Japan.
I found the food here suits me well, so anything outside my norm that causes "issues", I would try and back-track as to what might had caused the issue and either avoid it or consume less of it.

Sometimes, the lungs aren't the only thing to be aware of. Some CF'rs have less enzyme secretions than others, so when stomach issues are frequent, it would be wise to start finding out what is tolerable and what isn't at an early age to thrive a bit better in the future.

I was one with mostly stomach issues, so that would be my specialty. As for how the lungs go, it is only a recent thing, and so I'm also learning about what works and what doesn't (i.e. cleaning the house with a mask on, or leaving the house soon after vs. no mask and staying in the room that was just cleaned has its causes and effects)

Definitely, having to argue with the MIL causes serious coughing fits soon after, so I had avoided that at all possible.
 
6

65rosessamurai

Guest
Putting it in that perspective, that's a good question and a good thing for her to try and learn...maybe it could be something a CF doctor can push onto others the same age if it is successfull.

I didn't start noticing what foods go well and what doesn't go well with me until I was about 27, and that was because I suddenly felt better overall with my digestive issues after I came to Japan.
I found the food here suits me well, so anything outside my norm that causes "issues", I would try and back-track as to what might had caused the issue and either avoid it or consume less of it.

Sometimes, the lungs aren't the only thing to be aware of. Some CF'rs have less enzyme secretions than others, so when stomach issues are frequent, it would be wise to start finding out what is tolerable and what isn't at an early age to thrive a bit better in the future.

I was one with mostly stomach issues, so that would be my specialty. As for how the lungs go, it is only a recent thing, and so I'm also learning about what works and what doesn't (i.e. cleaning the house with a mask on, or leaving the house soon after vs. no mask and staying in the room that was just cleaned has its causes and effects)

Definitely, having to argue with the MIL causes serious coughing fits soon after, so I had avoided that at all possible.
 
6

65rosessamurai

Guest
Putting it in that perspective, that's a good question and a good thing for her to try and learn...maybe it could be something a CF doctor can push onto others the same age if it is successfull.

I didn't start noticing what foods go well and what doesn't go well with me until I was about 27, and that was because I suddenly felt better overall with my digestive issues after I came to Japan.
I found the food here suits me well, so anything outside my norm that causes "issues", I would try and back-track as to what might had caused the issue and either avoid it or consume less of it.

Sometimes, the lungs aren't the only thing to be aware of. Some CF'rs have less enzyme secretions than others, so when stomach issues are frequent, it would be wise to start finding out what is tolerable and what isn't at an early age to thrive a bit better in the future.

I was one with mostly stomach issues, so that would be my specialty. As for how the lungs go, it is only a recent thing, and so I'm also learning about what works and what doesn't (i.e. cleaning the house with a mask on, or leaving the house soon after vs. no mask and staying in the room that was just cleaned has its causes and effects)

Definitely, having to argue with the MIL causes serious coughing fits soon after, so I had avoided that at all possible.
 
6

65rosessamurai

Guest
Putting it in that perspective, that's a good question and a good thing for her to try and learn...maybe it could be something a CF doctor can push onto others the same age if it is successfull.
<br />
<br />I didn't start noticing what foods go well and what doesn't go well with me until I was about 27, and that was because I suddenly felt better overall with my digestive issues after I came to Japan.
<br />I found the food here suits me well, so anything outside my norm that causes "issues", I would try and back-track as to what might had caused the issue and either avoid it or consume less of it.
<br />
<br />Sometimes, the lungs aren't the only thing to be aware of. Some CF'rs have less enzyme secretions than others, so when stomach issues are frequent, it would be wise to start finding out what is tolerable and what isn't at an early age to thrive a bit better in the future.
<br />
<br />I was one with mostly stomach issues, so that would be my specialty. As for how the lungs go, it is only a recent thing, and so I'm also learning about what works and what doesn't (i.e. cleaning the house with a mask on, or leaving the house soon after vs. no mask and staying in the room that was just cleaned has its causes and effects)
<br />
<br />Definitely, having to argue with the MIL causes serious coughing fits soon after, so I had avoided that at all possible.
 
S

Skye

New member
I noticed the affects of pulmozyme when I was about 24 and noticed the good affects of my flutter at about the same age. I am sure there are many others who were much younger. I did not feel like my life was affected much by CF until I was about 38.

Karen
 
S

Skye

New member
I noticed the affects of pulmozyme when I was about 24 and noticed the good affects of my flutter at about the same age. I am sure there are many others who were much younger. I did not feel like my life was affected much by CF until I was about 38.

Karen
 
S

Skye

New member
I noticed the affects of pulmozyme when I was about 24 and noticed the good affects of my flutter at about the same age. I am sure there are many others who were much younger. I did not feel like my life was affected much by CF until I was about 38.

Karen
 
S

Skye

New member
I noticed the affects of pulmozyme when I was about 24 and noticed the good affects of my flutter at about the same age. I am sure there are many others who were much younger. I did not feel like my life was affected much by CF until I was about 38.

Karen
 
S

Skye

New member
I noticed the affects of pulmozyme when I was about 24 and noticed the good affects of my flutter at about the same age. I am sure there are many others who were much younger. I did not feel like my life was affected much by CF until I was about 38.
<br />
<br />Karen
 
M

MCGrad2006

Guest
When I was in college, I wasnt very good at doing meds...so I didnt know exactly what worked and what didnt. I only used pulmozyme at the time and I would MAYBE notice a difference if I didnt do it for say three days or a week. I did manual chest PT and didnt notice much from that either. I never coughed stuff up and only had a tickly cough in conjunction with the chest pt.

When I finished college, I started on the aztreonam study, as well as HTS and those made a hug difference for me. The HTS helps me to get stuff out and it really makes my lungs feel clear. The aztreonam helps my PFT's and my bacteria count (for PA at least). In addition I have started to use the vest (so now I have the vest, alb, pulmo, hts, aztreonam) and I can definitely tell when I dont do nebs. I cough much more during the day and generally dont feel as clear as when I do the nebs.

As for the enzyme issue, I still have trouble figuring out what foods are not good for me. Or maybe thats cuz I am stubborn and still eat those foods that give me belly aches...haha. I know that if I dont take enough enzymes or that if I just dont take them...I will not feel good. I am smarter about that now and almost always take them.

Glad to see you backk Jess...hope everything is going well!!
 
M

MCGrad2006

Guest
When I was in college, I wasnt very good at doing meds...so I didnt know exactly what worked and what didnt. I only used pulmozyme at the time and I would MAYBE notice a difference if I didnt do it for say three days or a week. I did manual chest PT and didnt notice much from that either. I never coughed stuff up and only had a tickly cough in conjunction with the chest pt.

When I finished college, I started on the aztreonam study, as well as HTS and those made a hug difference for me. The HTS helps me to get stuff out and it really makes my lungs feel clear. The aztreonam helps my PFT's and my bacteria count (for PA at least). In addition I have started to use the vest (so now I have the vest, alb, pulmo, hts, aztreonam) and I can definitely tell when I dont do nebs. I cough much more during the day and generally dont feel as clear as when I do the nebs.

As for the enzyme issue, I still have trouble figuring out what foods are not good for me. Or maybe thats cuz I am stubborn and still eat those foods that give me belly aches...haha. I know that if I dont take enough enzymes or that if I just dont take them...I will not feel good. I am smarter about that now and almost always take them.

Glad to see you backk Jess...hope everything is going well!!
 
M

MCGrad2006

Guest
When I was in college, I wasnt very good at doing meds...so I didnt know exactly what worked and what didnt. I only used pulmozyme at the time and I would MAYBE notice a difference if I didnt do it for say three days or a week. I did manual chest PT and didnt notice much from that either. I never coughed stuff up and only had a tickly cough in conjunction with the chest pt.

When I finished college, I started on the aztreonam study, as well as HTS and those made a hug difference for me. The HTS helps me to get stuff out and it really makes my lungs feel clear. The aztreonam helps my PFT's and my bacteria count (for PA at least). In addition I have started to use the vest (so now I have the vest, alb, pulmo, hts, aztreonam) and I can definitely tell when I dont do nebs. I cough much more during the day and generally dont feel as clear as when I do the nebs.

As for the enzyme issue, I still have trouble figuring out what foods are not good for me. Or maybe thats cuz I am stubborn and still eat those foods that give me belly aches...haha. I know that if I dont take enough enzymes or that if I just dont take them...I will not feel good. I am smarter about that now and almost always take them.

Glad to see you backk Jess...hope everything is going well!!
 
M

MCGrad2006

Guest
When I was in college, I wasnt very good at doing meds...so I didnt know exactly what worked and what didnt. I only used pulmozyme at the time and I would MAYBE notice a difference if I didnt do it for say three days or a week. I did manual chest PT and didnt notice much from that either. I never coughed stuff up and only had a tickly cough in conjunction with the chest pt.

When I finished college, I started on the aztreonam study, as well as HTS and those made a hug difference for me. The HTS helps me to get stuff out and it really makes my lungs feel clear. The aztreonam helps my PFT's and my bacteria count (for PA at least). In addition I have started to use the vest (so now I have the vest, alb, pulmo, hts, aztreonam) and I can definitely tell when I dont do nebs. I cough much more during the day and generally dont feel as clear as when I do the nebs.

As for the enzyme issue, I still have trouble figuring out what foods are not good for me. Or maybe thats cuz I am stubborn and still eat those foods that give me belly aches...haha. I know that if I dont take enough enzymes or that if I just dont take them...I will not feel good. I am smarter about that now and almost always take them.

Glad to see you backk Jess...hope everything is going well!!
 
M

MCGrad2006

Guest
When I was in college, I wasnt very good at doing meds...so I didnt know exactly what worked and what didnt. I only used pulmozyme at the time and I would MAYBE notice a difference if I didnt do it for say three days or a week. I did manual chest PT and didnt notice much from that either. I never coughed stuff up and only had a tickly cough in conjunction with the chest pt.
<br />
<br />When I finished college, I started on the aztreonam study, as well as HTS and those made a hug difference for me. The HTS helps me to get stuff out and it really makes my lungs feel clear. The aztreonam helps my PFT's and my bacteria count (for PA at least). In addition I have started to use the vest (so now I have the vest, alb, pulmo, hts, aztreonam) and I can definitely tell when I dont do nebs. I cough much more during the day and generally dont feel as clear as when I do the nebs.
<br />
<br />As for the enzyme issue, I still have trouble figuring out what foods are not good for me. Or maybe thats cuz I am stubborn and still eat those foods that give me belly aches...haha. I know that if I dont take enough enzymes or that if I just dont take them...I will not feel good. I am smarter about that now and almost always take them.
<br />
<br />Glad to see you backk Jess...hope everything is going well!!
 
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