Hello Everyone,
I have not posted much but, I feel it is needed. I use to be a "track star" but I stopped and had many excuses why I couldn't or did not want to run. Last September (2009) I got the H1N1 flu and I was down for 6+ weeks. My PFTs went from FEV1 110% (aug 09, during exacerbation) to 91% (October 09, which was really low for me(end of swine flu)). I was a little worried but figured I would be fine. I always was, my numbers always came back up. WRONG...5 months later (this Monday) I went to clinic, feeling a little sick and SOB, not bad though and my FEV1 was 81% (lower than ever) and my weight down 15 pounds (since the last appt). That was the shock of my life. For the first time in MANY years, there were changes all over my x-ray...mucus plugging (little circles everywhere). Usually my lungs look normal.
I know I had been not so great about treatments and CPT. I am in a doctoral program and commute 75 miles one was and have 12 hour days at least 3 times a week, plus homework. There was no time to do homework or sleep let alone do treatments.
Yesterday, after a whole lot of praying I decided to take a leave of absence from school and focus on my health. I am on I.Vs and I will be running again. I am 32 and a mother and this was a huge reality check. I can not afford to let my numbers continue to decline, 29% points is a whole lot to lose in 5-6 months. No school, no work just me and my running shoes (nebbs and vest too). I have faith that I can turn this around and I know it is going to be really tough, I have asthma too and the air quality in the central valley (california) is terrible. I go back in June, lets see if I can make a difference in a couple months.
Thank you all
Amy Guinn-Long
32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
The Lord is my Strength and my Rock!
I have not posted much but, I feel it is needed. I use to be a "track star" but I stopped and had many excuses why I couldn't or did not want to run. Last September (2009) I got the H1N1 flu and I was down for 6+ weeks. My PFTs went from FEV1 110% (aug 09, during exacerbation) to 91% (October 09, which was really low for me(end of swine flu)). I was a little worried but figured I would be fine. I always was, my numbers always came back up. WRONG...5 months later (this Monday) I went to clinic, feeling a little sick and SOB, not bad though and my FEV1 was 81% (lower than ever) and my weight down 15 pounds (since the last appt). That was the shock of my life. For the first time in MANY years, there were changes all over my x-ray...mucus plugging (little circles everywhere). Usually my lungs look normal.
I know I had been not so great about treatments and CPT. I am in a doctoral program and commute 75 miles one was and have 12 hour days at least 3 times a week, plus homework. There was no time to do homework or sleep let alone do treatments.
Yesterday, after a whole lot of praying I decided to take a leave of absence from school and focus on my health. I am on I.Vs and I will be running again. I am 32 and a mother and this was a huge reality check. I can not afford to let my numbers continue to decline, 29% points is a whole lot to lose in 5-6 months. No school, no work just me and my running shoes (nebbs and vest too). I have faith that I can turn this around and I know it is going to be really tough, I have asthma too and the air quality in the central valley (california) is terrible. I go back in June, lets see if I can make a difference in a couple months.
Thank you all
Amy Guinn-Long
32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
The Lord is my Strength and my Rock!