Bronchial Thickening?

[anonymous]

HI, Our daughters x-rays show bronchial thickening...Last yrs films were normal....Do you all have this, did you get it age 7? She began flovent inhaler last week.....She also has gastro (GERD) and sinus involvement....what do you all say?BTW: we were to have the distirct nurse do a conf call with us and the doc to set up documenting her stools to regulate her meds., as they have refused since Nov. to do this...They didn't do the conf call..they said they didn't know about it...INCREDIBLE, they knew!!!....WE are filing a Due Process with the State and a complaint complaince with the state, all forms are in hand...They just don't care, very sad its affecting our daughters health and education. They will also not let us replace her OT specialist nor talk to the OT company's owner....WE have been restricted...against our civil rights/parent rights.....law suit coming..Hate to drop our kids off at that school, but by law we have too.....Appreciate any/all comments about lung thickening...Thanks!!

 

[anonymous]

She might just be having inflamation of her airways. Very common, especially when couging has been really productive.Document everything!!! Those jerks will get what's comming to them.OUt of curiosity, what does your daughter know about the situation? How informed is she about CF? Stay strong, you're in my thoughts,Debbie22 yr old w/ CF

 

[anonymous]

yes that is why it is so very very important to have them sign everything. you have a meeting like that type it up and have them sign and date it. When they say I did not know you pull the paper out!! Documentation is it!

 

[anonymous]

Hi Debbie, well she is 7 and she knows she is sick and knows the name CF and what it is...we don't hide it form her, but we don't make it all negative..you know. WE want to do the right things to help educate her about cf....she processing info very slow..her twin is a wizz kid.....Alexis is happy, loves life and is very sweet loving....Regarding the school, she knows we are trying to get her help and she knows we are always doing everything becuase we love her so much....WE like her teacher, so that's different form last year....This yr her teacher is now restricited to talk or wirte any from of communication....We have made sure she doesn't feel bad becuase we have to write and drop off letters...she is kinda doesn't understand the whole situation, she processes info at a slower rate and forgets things very often.....she had a brain injury form a 20' 2nd story window before we fostered then adopted.....its called mild cerebral palsy or hemiparesis...she can walk , talk, play, run, but trouble with mind processing things like math, remembering facts, things in general, some days are better then others....I really appreciate your thoughts and kind words of encouragement..it really, really helps!!!Debbie when did you find out you had CF? How did you take it? Can you share anythig that was helpful and what we should NOT do.....Thanks...Any/all advise is appreciated!!! BetJuliet in So. Calif.