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Cause for liver transplant?

kitomd21

New member
Does anyone know the incidence of liver transplant as it relates to a history of meconium ileus? Does anyone have experience (self or other) with liver failure and they didn't have digestive issues other than soft stool?

Thanks...
 

kitomd21

New member
Does anyone know the incidence of liver transplant as it relates to a history of meconium ileus? Does anyone have experience (self or other) with liver failure and they didn't have digestive issues other than soft stool?

Thanks...
 

kitomd21

New member
Does anyone know the incidence of liver transplant as it relates to a history of meconium ileus? Does anyone have experience (self or other) with liver failure and they didn't have digestive issues other than soft stool?

Thanks...
 

kitomd21

New member
Does anyone know the incidence of liver transplant as it relates to a history of meconium ileus? Does anyone have experience (self or other) with liver failure and they didn't have digestive issues other than soft stool?

Thanks...
 

kitomd21

New member
Does anyone know the incidence of liver transplant as it relates to a history of meconium ileus? Does anyone have experience (self or other) with liver failure and they didn't have digestive issues other than soft stool?
<br />
<br />Thanks...
 

Transplantmommy

New member
I had meconium ileus when I was born and was never told that was the cause of my liver problems. I was diagnosed with Cirrhosis, Portal Hypertension, and Hyperslenism (enlarged spleen) when I was 14. I was referred to Pittsburgh Children's Hospital for a Tx eval for the liver right after, and they said that yes there were things wrong with the liver, but a transplant was a ways off.

Well, as I got older, I had more problems with my lungs and liver. The lungs were worse but the liver disease was progressing too. My blood counts were always off (caused by the liver). When I was told in November 2004 that I needed to look into lung transplant, I was also told that it would be a good idea to have the liver done at the same time. The doctors didn't think that my own liver would handle the new medications if they left it in when they transplanted the lungs. So, I was evaluated for all three organs. It took calling a couple of clinics to take my case and Cleveland Clinic decided that they would even though they had never done all three of these organs at once before. So anyway, I was listed for all three and had Cleveland Cllinic's first double lung and liver transplant on 1/31/07.

Anyway, the only digestive issues that I really had were the soft and sometimes greasy stools. Even the liver transplant did not cure that and I don't really think that it would on anyone. My blood counts are better for the most part but I still have problems with my platelets being low caused by the hyperslenism. They said that my spleen should come down in size since the liver transplant and I don't think that it really has yet.

If there's anything else that you want to know, just give me a shout!!
 

Transplantmommy

New member
I had meconium ileus when I was born and was never told that was the cause of my liver problems. I was diagnosed with Cirrhosis, Portal Hypertension, and Hyperslenism (enlarged spleen) when I was 14. I was referred to Pittsburgh Children's Hospital for a Tx eval for the liver right after, and they said that yes there were things wrong with the liver, but a transplant was a ways off.

Well, as I got older, I had more problems with my lungs and liver. The lungs were worse but the liver disease was progressing too. My blood counts were always off (caused by the liver). When I was told in November 2004 that I needed to look into lung transplant, I was also told that it would be a good idea to have the liver done at the same time. The doctors didn't think that my own liver would handle the new medications if they left it in when they transplanted the lungs. So, I was evaluated for all three organs. It took calling a couple of clinics to take my case and Cleveland Clinic decided that they would even though they had never done all three of these organs at once before. So anyway, I was listed for all three and had Cleveland Cllinic's first double lung and liver transplant on 1/31/07.

Anyway, the only digestive issues that I really had were the soft and sometimes greasy stools. Even the liver transplant did not cure that and I don't really think that it would on anyone. My blood counts are better for the most part but I still have problems with my platelets being low caused by the hyperslenism. They said that my spleen should come down in size since the liver transplant and I don't think that it really has yet.

If there's anything else that you want to know, just give me a shout!!
 

Transplantmommy

New member
I had meconium ileus when I was born and was never told that was the cause of my liver problems. I was diagnosed with Cirrhosis, Portal Hypertension, and Hyperslenism (enlarged spleen) when I was 14. I was referred to Pittsburgh Children's Hospital for a Tx eval for the liver right after, and they said that yes there were things wrong with the liver, but a transplant was a ways off.

Well, as I got older, I had more problems with my lungs and liver. The lungs were worse but the liver disease was progressing too. My blood counts were always off (caused by the liver). When I was told in November 2004 that I needed to look into lung transplant, I was also told that it would be a good idea to have the liver done at the same time. The doctors didn't think that my own liver would handle the new medications if they left it in when they transplanted the lungs. So, I was evaluated for all three organs. It took calling a couple of clinics to take my case and Cleveland Clinic decided that they would even though they had never done all three of these organs at once before. So anyway, I was listed for all three and had Cleveland Cllinic's first double lung and liver transplant on 1/31/07.

Anyway, the only digestive issues that I really had were the soft and sometimes greasy stools. Even the liver transplant did not cure that and I don't really think that it would on anyone. My blood counts are better for the most part but I still have problems with my platelets being low caused by the hyperslenism. They said that my spleen should come down in size since the liver transplant and I don't think that it really has yet.

If there's anything else that you want to know, just give me a shout!!
 

Transplantmommy

New member
I had meconium ileus when I was born and was never told that was the cause of my liver problems. I was diagnosed with Cirrhosis, Portal Hypertension, and Hyperslenism (enlarged spleen) when I was 14. I was referred to Pittsburgh Children's Hospital for a Tx eval for the liver right after, and they said that yes there were things wrong with the liver, but a transplant was a ways off.

Well, as I got older, I had more problems with my lungs and liver. The lungs were worse but the liver disease was progressing too. My blood counts were always off (caused by the liver). When I was told in November 2004 that I needed to look into lung transplant, I was also told that it would be a good idea to have the liver done at the same time. The doctors didn't think that my own liver would handle the new medications if they left it in when they transplanted the lungs. So, I was evaluated for all three organs. It took calling a couple of clinics to take my case and Cleveland Clinic decided that they would even though they had never done all three of these organs at once before. So anyway, I was listed for all three and had Cleveland Cllinic's first double lung and liver transplant on 1/31/07.

Anyway, the only digestive issues that I really had were the soft and sometimes greasy stools. Even the liver transplant did not cure that and I don't really think that it would on anyone. My blood counts are better for the most part but I still have problems with my platelets being low caused by the hyperslenism. They said that my spleen should come down in size since the liver transplant and I don't think that it really has yet.

If there's anything else that you want to know, just give me a shout!!
 

Transplantmommy

New member
I had meconium ileus when I was born and was never told that was the cause of my liver problems. I was diagnosed with Cirrhosis, Portal Hypertension, and Hyperslenism (enlarged spleen) when I was 14. I was referred to Pittsburgh Children's Hospital for a Tx eval for the liver right after, and they said that yes there were things wrong with the liver, but a transplant was a ways off.
<br />
<br />Well, as I got older, I had more problems with my lungs and liver. The lungs were worse but the liver disease was progressing too. My blood counts were always off (caused by the liver). When I was told in November 2004 that I needed to look into lung transplant, I was also told that it would be a good idea to have the liver done at the same time. The doctors didn't think that my own liver would handle the new medications if they left it in when they transplanted the lungs. So, I was evaluated for all three organs. It took calling a couple of clinics to take my case and Cleveland Clinic decided that they would even though they had never done all three of these organs at once before. So anyway, I was listed for all three and had Cleveland Cllinic's first double lung and liver transplant on 1/31/07.
<br />
<br />Anyway, the only digestive issues that I really had were the soft and sometimes greasy stools. Even the liver transplant did not cure that and I don't really think that it would on anyone. My blood counts are better for the most part but I still have problems with my platelets being low caused by the hyperslenism. They said that my spleen should come down in size since the liver transplant and I don't think that it really has yet.
<br />
<br />If there's anything else that you want to know, just give me a shout!!
 

just1more

New member
Two questions, are you having liver issues with your little one? and did she possibly get TPN (IV feeds) post-op? Sometimes they will use TPN while the gut heals depending on the scope of the surgery. TPN unfortunately can cause liver damage pretty quickly and it is permanent.

To my knowledge, meconium ileus alone should not cause liver issues, though the same issues that caused it can effect other organs. Some cystics have liver issues, some live their own life w/o any. I think it just is a matter of chance.

We have an follow-up appointment with our liver transplant program to get an update/status on our son after some more labs/tests they ran. We have been told that between TPN and the CF complications he will need a new liver, but so far nobody will give us a timeline so right now we wait & see.
 

just1more

New member
Two questions, are you having liver issues with your little one? and did she possibly get TPN (IV feeds) post-op? Sometimes they will use TPN while the gut heals depending on the scope of the surgery. TPN unfortunately can cause liver damage pretty quickly and it is permanent.

To my knowledge, meconium ileus alone should not cause liver issues, though the same issues that caused it can effect other organs. Some cystics have liver issues, some live their own life w/o any. I think it just is a matter of chance.

We have an follow-up appointment with our liver transplant program to get an update/status on our son after some more labs/tests they ran. We have been told that between TPN and the CF complications he will need a new liver, but so far nobody will give us a timeline so right now we wait & see.
 

just1more

New member
Two questions, are you having liver issues with your little one? and did she possibly get TPN (IV feeds) post-op? Sometimes they will use TPN while the gut heals depending on the scope of the surgery. TPN unfortunately can cause liver damage pretty quickly and it is permanent.

To my knowledge, meconium ileus alone should not cause liver issues, though the same issues that caused it can effect other organs. Some cystics have liver issues, some live their own life w/o any. I think it just is a matter of chance.

We have an follow-up appointment with our liver transplant program to get an update/status on our son after some more labs/tests they ran. We have been told that between TPN and the CF complications he will need a new liver, but so far nobody will give us a timeline so right now we wait & see.
 

just1more

New member
Two questions, are you having liver issues with your little one? and did she possibly get TPN (IV feeds) post-op? Sometimes they will use TPN while the gut heals depending on the scope of the surgery. TPN unfortunately can cause liver damage pretty quickly and it is permanent.

To my knowledge, meconium ileus alone should not cause liver issues, though the same issues that caused it can effect other organs. Some cystics have liver issues, some live their own life w/o any. I think it just is a matter of chance.

We have an follow-up appointment with our liver transplant program to get an update/status on our son after some more labs/tests they ran. We have been told that between TPN and the CF complications he will need a new liver, but so far nobody will give us a timeline so right now we wait & see.
 

just1more

New member
Two questions, are you having liver issues with your little one? and did she possibly get TPN (IV feeds) post-op? Sometimes they will use TPN while the gut heals depending on the scope of the surgery. TPN unfortunately can cause liver damage pretty quickly and it is permanent.
<br />
<br />To my knowledge, meconium ileus alone should not cause liver issues, though the same issues that caused it can effect other organs. Some cystics have liver issues, some live their own life w/o any. I think it just is a matter of chance.
<br />
<br />We have an follow-up appointment with our liver transplant program to get an update/status on our son after some more labs/tests they ran. We have been told that between TPN and the CF complications he will need a new liver, but so far nobody will give us a timeline so right now we wait & see.
 

Ratatosk

Administrator
Staff member
I thought it had partly to do with the double delta f508 gene, which can also cause Meconium Illeus.

DS was on TPN while he recovered from his surgery and his liver levels did start to increase. He's been on actigall ever since and his liver function/levels are checked each year with his bloodwork. Believe there's something called a Factor 2 test, which can be used to test for initial liver damage.
 

Ratatosk

Administrator
Staff member
I thought it had partly to do with the double delta f508 gene, which can also cause Meconium Illeus.

DS was on TPN while he recovered from his surgery and his liver levels did start to increase. He's been on actigall ever since and his liver function/levels are checked each year with his bloodwork. Believe there's something called a Factor 2 test, which can be used to test for initial liver damage.
 

Ratatosk

Administrator
Staff member
I thought it had partly to do with the double delta f508 gene, which can also cause Meconium Illeus.

DS was on TPN while he recovered from his surgery and his liver levels did start to increase. He's been on actigall ever since and his liver function/levels are checked each year with his bloodwork. Believe there's something called a Factor 2 test, which can be used to test for initial liver damage.
 

Ratatosk

Administrator
Staff member
I thought it had partly to do with the double delta f508 gene, which can also cause Meconium Illeus.

DS was on TPN while he recovered from his surgery and his liver levels did start to increase. He's been on actigall ever since and his liver function/levels are checked each year with his bloodwork. Believe there's something called a Factor 2 test, which can be used to test for initial liver damage.
 

Ratatosk

Administrator
Staff member
I thought it had partly to do with the double delta f508 gene, which can also cause Meconium Illeus.
<br />
<br />DS was on TPN while he recovered from his surgery and his liver levels did start to increase. He's been on actigall ever since and his liver function/levels are checked each year with his bloodwork. Believe there's something called a Factor 2 test, which can be used to test for initial liver damage.
 
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