Cepacia and transplant

[anonymous]

I know there are many of you on here who've had transplants, and a few who've had cepacia. I am interested in talking to people who've had transplants and have cepacia also...I know of the person who is 55 ( i remember the signature ) and posts occasionally, but know there are a lot of people on these boards who just read and dont necessarily post. Anyway, i was wondering mainly, was your cepacia pan resistant when you were transplanted and i have some other questions concerning meds, etc....you can write back to this if you are interested or my email is catalinaohara@aol.com

thanks

Caitlin

 

[anonymous]

Caitlin - my husand has Type III Cepacia and was just transplant 10-31-05 at Methodist Hospital, Indianapolis. Write me anytime, or I will try to look for your posts. You're right, there is a 55 year old 5.5 years out from tx.

Jan
(wife of Greg, 45 cf'er w/cepacia, tx'd 10-31-05)
www.standinginthegap4Greg.org
standinginthegap4greg@hotmail.com

 

[anonymous]

Jan

Could you please update us with your husbands transplant. How is he doing? is he still in the hospital?

Sandy

 

[anonymous]

<a target=new class=ftalternatingbarlinklarge href="http://www.standinginthegap4greg.org/?id=Latest%20Health%20Update
">http://www.standinginthegap4greg.org/?id=Latest%20Health%20Update
</a>I'm not Jan, but often check his website for updates & this seems to be the latest.
Hope