Cystic Fibrosis Forum (EXP)
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"Cepaciagal"
- Thread starter Diane
- Start date
"Cepaciagal
(((Diane)))...been trying to fight infections, I know it is getting close to IV time because I smell like pseudomonas and cepacia. Even my daughter said that she coculd smell the lovely perfume of those bugs!. Unfortunately my port is clogged yet again and now they have to mess with it on Friday to seee if they can unclog it otherwise I will need a new port. Keep your fingers crossed everyone....and prayers sure help too. Thank you for thinking of me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
(((Diane)))...been trying to fight infections, I know it is getting close to IV time because I smell like pseudomonas and cepacia. Even my daughter said that she coculd smell the lovely perfume of those bugs!. Unfortunately my port is clogged yet again and now they have to mess with it on Friday to seee if they can unclog it otherwise I will need a new port. Keep your fingers crossed everyone....and prayers sure help too. Thank you for thinking of me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
"Cepaciagal
Jenn,
I will definitely keep you in my prayers <img src="i/expressions/rose.gif" border="0">. I hope they can unclog the port so you dont have to have another. Im just glad to see that you posted again, i was beginning to get worried....................
~~~~~~ Amy, i have wondered about Sean Davis also where has he been? It's awful quiet and calm without him here<img src="i/expressions/face-icon-small-confused.gif" border="0">
Jenn,
I will definitely keep you in my prayers <img src="i/expressions/rose.gif" border="0">. I hope they can unclog the port so you dont have to have another. Im just glad to see that you posted again, i was beginning to get worried....................
~~~~~~ Amy, i have wondered about Sean Davis also where has he been? It's awful quiet and calm without him here<img src="i/expressions/face-icon-small-confused.gif" border="0">
S
skh
Guest
"Cepaciagal
Jenn, you're in my thoughts and prayers also.
Anyone have an update on beautifulsoul?
Jenn, you're in my thoughts and prayers also.
Anyone have an update on beautifulsoul?
"Cepaciagal
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>skh</b></i>
Jenn, you're in my thoughts and prayers also.
Anyone have an update on beautifulsoul?</end quote></div>
Beautifulsoul posted on her blog & I responded that she needs to post on here since people are asking.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>skh</b></i>
Jenn, you're in my thoughts and prayers also.
Anyone have an update on beautifulsoul?</end quote></div>
Beautifulsoul posted on her blog & I responded that she needs to post on here since people are asking.
thelizardqueen
New member
"Cepaciagal
You're in my thoughts Jenn! Hope things work out for you!
You're in my thoughts Jenn! Hope things work out for you!
beautifulsoul
Super Moderator
"Cepaciagal
HI everyone who was wondering where I went. I'm back! I was busy with school and such for a while. I'm glad to be back. sorry I have been gone so long. By the way,thanks Melissa for letting me know to post here. I have an update in my blog,check it out!
HI everyone who was wondering where I went. I'm back! I was busy with school and such for a while. I'm glad to be back. sorry I have been gone so long. By the way,thanks Melissa for letting me know to post here. I have an update in my blog,check it out!
"Cepaciagal
Thank all of you for your well wishes..I am so thankful that all of you are here when things are hitting the fan (and when things go well and you just want to share it all before you burst!). Tomorrow is fast approaching...I am sitting here hoping that the "draino" will work. I saw my doc yesterday (my primary doc....she's sending me up to the CF clinic so that the ID docs can get their hands on me so that they can tweak my treatment better) She did increase pain meds...any of you on the Fentanyl patch? Powerful stuff, takes a bit to get used to but it works. Thanks for keeping me in your thoughts and prayers, I really do appreciate them!
Sean, I hope you are doing okay as well as all of the others who have been MIA. Good to see you beautifulsoul, bet you are glad you are done with school for awhile now.
Hugs to all of you, I will keep you all updated. Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thank all of you for your well wishes..I am so thankful that all of you are here when things are hitting the fan (and when things go well and you just want to share it all before you burst!). Tomorrow is fast approaching...I am sitting here hoping that the "draino" will work. I saw my doc yesterday (my primary doc....she's sending me up to the CF clinic so that the ID docs can get their hands on me so that they can tweak my treatment better) She did increase pain meds...any of you on the Fentanyl patch? Powerful stuff, takes a bit to get used to but it works. Thanks for keeping me in your thoughts and prayers, I really do appreciate them!
Sean, I hope you are doing okay as well as all of the others who have been MIA. Good to see you beautifulsoul, bet you are glad you are done with school for awhile now.
Hugs to all of you, I will keep you all updated. Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">