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CF Assistance Program - Helps those with CF across the U.S.... check it out

Joanne

New member
Welcome
Lungs for Life (LFL), an all-volunteer 501c3 organization dedicated to assisting individuals and families affected by cystic fibrosis.
Our primary goal is to provide necessary assistance to meet the daily living and medical needs of those with CF. We improve the quality of life for CF individuals as they await a cure and we help to ease the burdens they face as they battle their disease.

Programs and Services -- Under each program area their are different eligibility requirements that must be met. Those who wish to apply should work with your social worker and follow application instructions carefully to ensure your application is not denied.

Application to these programs is through referral from CF and Transplant Social Workers. If you are a CF or approved-CF transplant patient, please get in contact with your social worker to determine if you are able to apply for assistance.

http://www.lungsforlife.org/

EDWARD W. WLODARSKI CF ASSISTANCE PROGRAMS*

Emergency Fund -provides for limited financial assistance to CF individuals or families in need.

Treatment Fund -provides for financial assistance to CF individuals towards such obligations as: co-pays, medications, and out-of-pocket medical costs required to manage their CF.

Special Needs Fund -provides for financial assistance to CF individuals to assist with the purchase of prescribed nutritional supplements and vitamins.

GIFT OF HOPE PROGRAM provides a free copy of "Taking Flight" to those CF individuals waiting for transplant.

TRANSPLANT RELOCATION PROGRAM* provides for limited financial assistance towards transplant relocation expenses to the CF individual that is an approved transplant recipient. This includes 20 minute pre-paid calling cards.

LIFE & BREATH is a newsletter which offers individuals affected by CF: support, updates on research, treatments and other current events relating to cystic fibrosis.

CF FINANCIAL RESOURCES is a comprehensive listing of all known financial resources available to those affected with CF.

We are please to partner with Crystal Allure Creations to offer hand-made, beaded donor awareness bracelets.

http://www.crystalallure.com/


Joanne M. Schum

Cystic Fibrosis
Bi-lateral Lung Transplant Recipient
September 12, 1997
University of North Carolina Hospitals Chapel Hill
Residence: Upstate New York
email: luckylungsforjo@aol.com
Manager of: Transplant Support - Lung, Heart/Lung, Heart
http://groups.msn.com/TransplantSupportLungHeartLungHeart

"Taking Flight - Inspirational Stories of Lung Transplantation"
Compiled by Joanne Schum
Authored by lung recipients around the world
http://www.trafford.com/robots/02-0497.html
http://www.trafford.com/

Lungs for Life Foundation
http://www.lungsforlife.org
Joanne's Bracelet, Transplant Awareness Bracelet, CF Awareness Bracelet
http://www.lungsforlife.org/other_ways/lfl_store.htm
 

Joanne

New member
Welcome
Lungs for Life (LFL), an all-volunteer 501c3 organization dedicated to assisting individuals and families affected by cystic fibrosis.
Our primary goal is to provide necessary assistance to meet the daily living and medical needs of those with CF. We improve the quality of life for CF individuals as they await a cure and we help to ease the burdens they face as they battle their disease.

Programs and Services -- Under each program area their are different eligibility requirements that must be met. Those who wish to apply should work with your social worker and follow application instructions carefully to ensure your application is not denied.

Application to these programs is through referral from CF and Transplant Social Workers. If you are a CF or approved-CF transplant patient, please get in contact with your social worker to determine if you are able to apply for assistance.

http://www.lungsforlife.org/

EDWARD W. WLODARSKI CF ASSISTANCE PROGRAMS*

Emergency Fund -provides for limited financial assistance to CF individuals or families in need.

Treatment Fund -provides for financial assistance to CF individuals towards such obligations as: co-pays, medications, and out-of-pocket medical costs required to manage their CF.

Special Needs Fund -provides for financial assistance to CF individuals to assist with the purchase of prescribed nutritional supplements and vitamins.

GIFT OF HOPE PROGRAM provides a free copy of "Taking Flight" to those CF individuals waiting for transplant.

TRANSPLANT RELOCATION PROGRAM* provides for limited financial assistance towards transplant relocation expenses to the CF individual that is an approved transplant recipient. This includes 20 minute pre-paid calling cards.

LIFE & BREATH is a newsletter which offers individuals affected by CF: support, updates on research, treatments and other current events relating to cystic fibrosis.

CF FINANCIAL RESOURCES is a comprehensive listing of all known financial resources available to those affected with CF.

We are please to partner with Crystal Allure Creations to offer hand-made, beaded donor awareness bracelets.

http://www.crystalallure.com/


Joanne M. Schum

Cystic Fibrosis
Bi-lateral Lung Transplant Recipient
September 12, 1997
University of North Carolina Hospitals Chapel Hill
Residence: Upstate New York
email: luckylungsforjo@aol.com
Manager of: Transplant Support - Lung, Heart/Lung, Heart
http://groups.msn.com/TransplantSupportLungHeartLungHeart

"Taking Flight - Inspirational Stories of Lung Transplantation"
Compiled by Joanne Schum
Authored by lung recipients around the world
http://www.trafford.com/robots/02-0497.html
http://www.trafford.com/

Lungs for Life Foundation
http://www.lungsforlife.org
Joanne's Bracelet, Transplant Awareness Bracelet, CF Awareness Bracelet
http://www.lungsforlife.org/other_ways/lfl_store.htm
 

anonymous

New member
<img src="i/expressions/face-icon-small-confused.gif" border="0"> i am very new to the web-site. although my daughter is 13years old and was diagnosed when she was 3months old.. we live in phoenix, arizona and are wanting to move to bakersfield, california. i'm afraid of not knowing where to take her to the doctor for follow ups. i know that fresno has a children's hospital, but where would i take her for just check ups? i also have two son's with severe astma, it this a good choice to take my children there? i'm not to advanced with computers, so who ever gets this message, please understand...

thank you,

Patricia
in Phoenix, AZ
 

anonymous

New member
<img src="i/expressions/face-icon-small-confused.gif" border="0"> i am very new to the web-site. although my daughter is 13years old and was diagnosed when she was 3months old.. we live in phoenix, arizona and are wanting to move to bakersfield, california. i'm afraid of not knowing where to take her to the doctor for follow ups. i know that fresno has a children's hospital, but where would i take her for just check ups? i also have two son's with severe astma, it this a good choice to take my children there? i'm not to advanced with computers, so who ever gets this message, please understand...

thank you,

Patricia
in Phoenix, AZ
 
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