Cf diet issues

Sweetness81 · Jun 3, 2009

I am 27 years old. I have cf, peripheral neuropathy, IBS, PTSD, Epsteins Anomaly(triscupid regurgitation).

I just got some results to my blood work. I didnt receive any good news. I just found out that I have high cholesterol, elevated blood sugar, HYPOTHYROIDISM, and a mild case of Anemia. I now have to go on a very strict diet. How do I make a diet that will accommodate those health issues. A low sugar, low cholesterol, high salt intake, high iron diet? Where do I even begin? I am so confused, and scared. My pcp is concerned that I might be at risk for a stroke or heart attack with these problems. And my risk just went up considerably with the high cholesterol. And now that I was just diagnosed with Hypothyroidism, my doctor says that I could also be at risk for going into a myxedema coma. So I am pretty scared at the moment. As if the cf exacerbations weren't enough. Now I have this. Can anyone offer me any help? Please?

Mary

Sweetness81 · Jun 3, 2009

I am 27 years old. I have cf, peripheral neuropathy, IBS, PTSD, Epsteins Anomaly(triscupid regurgitation).

I just got some results to my blood work. I didnt receive any good news. I just found out that I have high cholesterol, elevated blood sugar, HYPOTHYROIDISM, and a mild case of Anemia. I now have to go on a very strict diet. How do I make a diet that will accommodate those health issues. A low sugar, low cholesterol, high salt intake, high iron diet? Where do I even begin? I am so confused, and scared. My pcp is concerned that I might be at risk for a stroke or heart attack with these problems. And my risk just went up considerably with the high cholesterol. And now that I was just diagnosed with Hypothyroidism, my doctor says that I could also be at risk for going into a myxedema coma. So I am pretty scared at the moment. As if the cf exacerbations weren't enough. Now I have this. Can anyone offer me any help? Please?

Mary

Sweetness81 · Jun 3, 2009

I am 27 years old. I have cf, peripheral neuropathy, IBS, PTSD, Epsteins Anomaly(triscupid regurgitation).

I just got some results to my blood work. I didnt receive any good news. I just found out that I have high cholesterol, elevated blood sugar, HYPOTHYROIDISM, and a mild case of Anemia. I now have to go on a very strict diet. How do I make a diet that will accommodate those health issues. A low sugar, low cholesterol, high salt intake, high iron diet? Where do I even begin? I am so confused, and scared. My pcp is concerned that I might be at risk for a stroke or heart attack with these problems. And my risk just went up considerably with the high cholesterol. And now that I was just diagnosed with Hypothyroidism, my doctor says that I could also be at risk for going into a myxedema coma. So I am pretty scared at the moment. As if the cf exacerbations weren't enough. Now I have this. Can anyone offer me any help? Please?

Mary

Sweetness81 · Jun 3, 2009

I am 27 years old. I have cf, peripheral neuropathy, IBS, PTSD, Epsteins Anomaly(triscupid regurgitation).

I just got some results to my blood work. I didnt receive any good news. I just found out that I have high cholesterol, elevated blood sugar, HYPOTHYROIDISM, and a mild case of Anemia. I now have to go on a very strict diet. How do I make a diet that will accommodate those health issues. A low sugar, low cholesterol, high salt intake, high iron diet? Where do I even begin? I am so confused, and scared. My pcp is concerned that I might be at risk for a stroke or heart attack with these problems. And my risk just went up considerably with the high cholesterol. And now that I was just diagnosed with Hypothyroidism, my doctor says that I could also be at risk for going into a myxedema coma. So I am pretty scared at the moment. As if the cf exacerbations weren't enough. Now I have this. Can anyone offer me any help? Please?

Mary

Sweetness81 · Jun 3, 2009

I am 27 years old. I have cf, peripheral neuropathy, IBS, PTSD, Epsteins Anomaly(triscupid regurgitation).
 
 I just got some results to my blood work. I didnt receive any good news. I just found out that I have high cholesterol, elevated blood sugar, HYPOTHYROIDISM, and a mild case of Anemia. I now have to go on a very strict diet. How do I make a diet that will accommodate those health issues. A low sugar, low cholesterol, high salt intake, high iron diet? Where do I even begin? I am so confused, and scared. My pcp is concerned that I might be at risk for a stroke or heart attack with these problems. And my risk just went up considerably with the high cholesterol. And now that I was just diagnosed with Hypothyroidism, my doctor says that I could also be at risk for going into a myxedema coma. So I am pretty scared at the moment. As if the cf exacerbations weren't enough. Now I have this. Can anyone offer me any help? Please?
 
 Mary

MicheleGazelle · Jun 3, 2009

I have read that coconut oil is good for lowering cholesterol and is also good thyroid support. It also has a track record of being helpful for gut issues, like IBS. Peripheral neuropathy and anemia may both be related to not getting enough B vitamins. I have to take a lot of B complex and iron to avoid being anemic. I take iron glycinate. One important thing to remember: don't consume iron and calcium together. This means when you supplement, space them at least two hours apart and it also means don't eat a high calcium food with a high iron food (for example: cheeseburgers). Keeping your high iron foods and high calcium foods separate will help your body maximize use of the iron you are getting.

I cook a lot from scratch. I consume a low sugar, high salt diet and supplement for iron, B vitamins, and calcium -- plus Co-q-10, which is good for the heart. There are a few recipes on my website and in the blog that goes with it, plus a "foods list" (things I purchase and find acceptable to eat), if you care to see some of the things I eat.

MicheleGazelle · Jun 3, 2009

I have read that coconut oil is good for lowering cholesterol and is also good thyroid support. It also has a track record of being helpful for gut issues, like IBS. Peripheral neuropathy and anemia may both be related to not getting enough B vitamins. I have to take a lot of B complex and iron to avoid being anemic. I take iron glycinate. One important thing to remember: don't consume iron and calcium together. This means when you supplement, space them at least two hours apart and it also means don't eat a high calcium food with a high iron food (for example: cheeseburgers). Keeping your high iron foods and high calcium foods separate will help your body maximize use of the iron you are getting.

I cook a lot from scratch. I consume a low sugar, high salt diet and supplement for iron, B vitamins, and calcium -- plus Co-q-10, which is good for the heart. There are a few recipes on my website and in the blog that goes with it, plus a "foods list" (things I purchase and find acceptable to eat), if you care to see some of the things I eat.

MicheleGazelle · Jun 3, 2009

I have read that coconut oil is good for lowering cholesterol and is also good thyroid support. It also has a track record of being helpful for gut issues, like IBS. Peripheral neuropathy and anemia may both be related to not getting enough B vitamins. I have to take a lot of B complex and iron to avoid being anemic. I take iron glycinate. One important thing to remember: don't consume iron and calcium together. This means when you supplement, space them at least two hours apart and it also means don't eat a high calcium food with a high iron food (for example: cheeseburgers). Keeping your high iron foods and high calcium foods separate will help your body maximize use of the iron you are getting.

I cook a lot from scratch. I consume a low sugar, high salt diet and supplement for iron, B vitamins, and calcium -- plus Co-q-10, which is good for the heart. There are a few recipes on my website and in the blog that goes with it, plus a "foods list" (things I purchase and find acceptable to eat), if you care to see some of the things I eat.

MicheleGazelle · Jun 3, 2009

I have read that coconut oil is good for lowering cholesterol and is also good thyroid support. It also has a track record of being helpful for gut issues, like IBS. Peripheral neuropathy and anemia may both be related to not getting enough B vitamins. I have to take a lot of B complex and iron to avoid being anemic. I take iron glycinate. One important thing to remember: don't consume iron and calcium together. This means when you supplement, space them at least two hours apart and it also means don't eat a high calcium food with a high iron food (for example: cheeseburgers). Keeping your high iron foods and high calcium foods separate will help your body maximize use of the iron you are getting.

I cook a lot from scratch. I consume a low sugar, high salt diet and supplement for iron, B vitamins, and calcium -- plus Co-q-10, which is good for the heart. There are a few recipes on my website and in the blog that goes with it, plus a "foods list" (things I purchase and find acceptable to eat), if you care to see some of the things I eat.

MicheleGazelle · Jun 3, 2009

I have read that coconut oil is good for lowering cholesterol and is also good thyroid support. It also has a track record of being helpful for gut issues, like IBS. Peripheral neuropathy and anemia may both be related to not getting enough B vitamins. I have to take a lot of B complex and iron to avoid being anemic. I take iron glycinate. One important thing to remember: don't consume iron and calcium together. This means when you supplement, space them at least two hours apart and it also means don't eat a high calcium food with a high iron food (for example: cheeseburgers). Keeping your high iron foods and high calcium foods separate will help your body maximize use of the iron you are getting.
 
 I cook a lot from scratch. I consume a low sugar, high salt diet and supplement for iron, B vitamins, and calcium -- plus Co-q-10, which is good for the heart. There are a few recipes on my website and in the blog that goes with it, plus a "foods list" (things I purchase and find acceptable to eat), if you care to see some of the things I eat.

PedsNP2007 · Jun 4, 2009

Hey Mary,

Sorry about the news. I think the first thing should be getting in GOOD fats. Second, you should not have to go on a low sugar diet. CF people do not have the same blood sugar issues as regular diabetic patients. CF people SHOULD NOT GO on a diabetic diet. The calorie needs of a CF person is more than the normal ADA (american diabetes assoication) diet. In fact, low sugar is not a recommendation. Eating healthy with good caloric intake is the recommendation. If you are having trouble gaining weight, limiting your intake will not help. You manage the blood sugars, NOT the intake. Now, I am not promoting unhealthy sugar intake by any means. But if you enjoy eating high carb foods to maintain/gain weight, you monitor your sugars and give insulin as needed (if it shows you need it).

Have you had an oral glucose tolerance test? Is that what showed the high glucose?

I am tired and have to be up for work early tomorrow. But I wanted to get that information out to you asap.

Please do not think you can't eat normally. I know some may say eat low sugar, but if you can't get in enough calories doing this, you are doing your body a disservice.

Jenn
31 yo cf, mild CFRD

PedsNP2007 · Jun 4, 2009

Hey Mary,

Sorry about the news. I think the first thing should be getting in GOOD fats. Second, you should not have to go on a low sugar diet. CF people do not have the same blood sugar issues as regular diabetic patients. CF people SHOULD NOT GO on a diabetic diet. The calorie needs of a CF person is more than the normal ADA (american diabetes assoication) diet. In fact, low sugar is not a recommendation. Eating healthy with good caloric intake is the recommendation. If you are having trouble gaining weight, limiting your intake will not help. You manage the blood sugars, NOT the intake. Now, I am not promoting unhealthy sugar intake by any means. But if you enjoy eating high carb foods to maintain/gain weight, you monitor your sugars and give insulin as needed (if it shows you need it).

Have you had an oral glucose tolerance test? Is that what showed the high glucose?

I am tired and have to be up for work early tomorrow. But I wanted to get that information out to you asap.

Please do not think you can't eat normally. I know some may say eat low sugar, but if you can't get in enough calories doing this, you are doing your body a disservice.

Jenn
31 yo cf, mild CFRD

PedsNP2007 · Jun 4, 2009

Hey Mary,

Sorry about the news. I think the first thing should be getting in GOOD fats. Second, you should not have to go on a low sugar diet. CF people do not have the same blood sugar issues as regular diabetic patients. CF people SHOULD NOT GO on a diabetic diet. The calorie needs of a CF person is more than the normal ADA (american diabetes assoication) diet. In fact, low sugar is not a recommendation. Eating healthy with good caloric intake is the recommendation. If you are having trouble gaining weight, limiting your intake will not help. You manage the blood sugars, NOT the intake. Now, I am not promoting unhealthy sugar intake by any means. But if you enjoy eating high carb foods to maintain/gain weight, you monitor your sugars and give insulin as needed (if it shows you need it).

Have you had an oral glucose tolerance test? Is that what showed the high glucose?

I am tired and have to be up for work early tomorrow. But I wanted to get that information out to you asap.

Please do not think you can't eat normally. I know some may say eat low sugar, but if you can't get in enough calories doing this, you are doing your body a disservice.

Jenn
31 yo cf, mild CFRD

PedsNP2007 · Jun 4, 2009

Hey Mary,

Sorry about the news. I think the first thing should be getting in GOOD fats. Second, you should not have to go on a low sugar diet. CF people do not have the same blood sugar issues as regular diabetic patients. CF people SHOULD NOT GO on a diabetic diet. The calorie needs of a CF person is more than the normal ADA (american diabetes assoication) diet. In fact, low sugar is not a recommendation. Eating healthy with good caloric intake is the recommendation. If you are having trouble gaining weight, limiting your intake will not help. You manage the blood sugars, NOT the intake. Now, I am not promoting unhealthy sugar intake by any means. But if you enjoy eating high carb foods to maintain/gain weight, you monitor your sugars and give insulin as needed (if it shows you need it).

Have you had an oral glucose tolerance test? Is that what showed the high glucose?

I am tired and have to be up for work early tomorrow. But I wanted to get that information out to you asap.

Please do not think you can't eat normally. I know some may say eat low sugar, but if you can't get in enough calories doing this, you are doing your body a disservice.

Jenn
31 yo cf, mild CFRD

PedsNP2007 · Jun 4, 2009

Hey Mary,
 
 Sorry about the news. I think the first thing should be getting in GOOD fats. Second, you should not have to go on a low sugar diet. CF people do not have the same blood sugar issues as regular diabetic patients. CF people SHOULD NOT GO on a diabetic diet. The calorie needs of a CF person is more than the normal ADA (american diabetes assoication) diet. In fact, low sugar is not a recommendation. Eating healthy with good caloric intake is the recommendation. If you are having trouble gaining weight, limiting your intake will not help. You manage the blood sugars, NOT the intake. Now, I am not promoting unhealthy sugar intake by any means. But if you enjoy eating high carb foods to maintain/gain weight, you monitor your sugars and give insulin as needed (if it shows you need it).
 
 Have you had an oral glucose tolerance test? Is that what showed the high glucose?
 
 I am tired and have to be up for work early tomorrow. But I wanted to get that information out to you asap.
 
 Please do not think you can't eat normally. I know some may say eat low sugar, but if you can't get in enough calories doing this, you are doing your body a disservice.
 
 Jenn
 31 yo cf, mild CFRD

ej0820 · Jun 4, 2009

hey there!

so sorry to hear about your news. last hospital stay just about every level of anything was high b/c my kidneys were compromised from the IVs...I was on such a strict diet that all I ate was jello for a week b/c if there wasn't one thing in something, there was another that I couldn't/ shouldn't have. UGH! anyway, I just wanted to offer a suggestion for the elevated blood sugar. I don't know how elevated "elevated" is, or if you have CFRD and can adjust insulin, but I know cinnamon helps lower blood sugar. a friend of the family was diagnosed with Type II diabetes and NOTHING would get her sugars down...she lost some weight, went on numerous diets, tried different insulin regimines, etc. she went to a GNC-type store and got cinnamon pills and BAM! her sugars started getting to a more normal range and she just generally felt better. I've never tried taking the cinnamon capsules before but when I incorporate cinnamon into my diet a little more (I don't always), for example have it with cereal or in a cup of tea at breakfast, I notice a difference through out my day.

hope this helps, good luck, and I hope you feel better soon!

ej0820 · Jun 4, 2009

hey there!

so sorry to hear about your news. last hospital stay just about every level of anything was high b/c my kidneys were compromised from the IVs...I was on such a strict diet that all I ate was jello for a week b/c if there wasn't one thing in something, there was another that I couldn't/ shouldn't have. UGH! anyway, I just wanted to offer a suggestion for the elevated blood sugar. I don't know how elevated "elevated" is, or if you have CFRD and can adjust insulin, but I know cinnamon helps lower blood sugar. a friend of the family was diagnosed with Type II diabetes and NOTHING would get her sugars down...she lost some weight, went on numerous diets, tried different insulin regimines, etc. she went to a GNC-type store and got cinnamon pills and BAM! her sugars started getting to a more normal range and she just generally felt better. I've never tried taking the cinnamon capsules before but when I incorporate cinnamon into my diet a little more (I don't always), for example have it with cereal or in a cup of tea at breakfast, I notice a difference through out my day.

hope this helps, good luck, and I hope you feel better soon!

ej0820 · Jun 4, 2009

hey there!

so sorry to hear about your news. last hospital stay just about every level of anything was high b/c my kidneys were compromised from the IVs...I was on such a strict diet that all I ate was jello for a week b/c if there wasn't one thing in something, there was another that I couldn't/ shouldn't have. UGH! anyway, I just wanted to offer a suggestion for the elevated blood sugar. I don't know how elevated "elevated" is, or if you have CFRD and can adjust insulin, but I know cinnamon helps lower blood sugar. a friend of the family was diagnosed with Type II diabetes and NOTHING would get her sugars down...she lost some weight, went on numerous diets, tried different insulin regimines, etc. she went to a GNC-type store and got cinnamon pills and BAM! her sugars started getting to a more normal range and she just generally felt better. I've never tried taking the cinnamon capsules before but when I incorporate cinnamon into my diet a little more (I don't always), for example have it with cereal or in a cup of tea at breakfast, I notice a difference through out my day.

hope this helps, good luck, and I hope you feel better soon!

ej0820 · Jun 4, 2009

hey there!

so sorry to hear about your news. last hospital stay just about every level of anything was high b/c my kidneys were compromised from the IVs...I was on such a strict diet that all I ate was jello for a week b/c if there wasn't one thing in something, there was another that I couldn't/ shouldn't have. UGH! anyway, I just wanted to offer a suggestion for the elevated blood sugar. I don't know how elevated "elevated" is, or if you have CFRD and can adjust insulin, but I know cinnamon helps lower blood sugar. a friend of the family was diagnosed with Type II diabetes and NOTHING would get her sugars down...she lost some weight, went on numerous diets, tried different insulin regimines, etc. she went to a GNC-type store and got cinnamon pills and BAM! her sugars started getting to a more normal range and she just generally felt better. I've never tried taking the cinnamon capsules before but when I incorporate cinnamon into my diet a little more (I don't always), for example have it with cereal or in a cup of tea at breakfast, I notice a difference through out my day.

hope this helps, good luck, and I hope you feel better soon!

ej0820 · Jun 4, 2009

hey there!
 
 so sorry to hear about your news. last hospital stay just about every level of anything was high b/c my kidneys were compromised from the IVs...I was on such a strict diet that all I ate was jello for a week b/c if there wasn't one thing in something, there was another that I couldn't/ shouldn't have. UGH! anyway, I just wanted to offer a suggestion for the elevated blood sugar. I don't know how elevated "elevated" is, or if you have CFRD and can adjust insulin, but I know cinnamon helps lower blood sugar. a friend of the family was diagnosed with Type II diabetes and NOTHING would get her sugars down...she lost some weight, went on numerous diets, tried different insulin regimines, etc. she went to a GNC-type store and got cinnamon pills and BAM! her sugars started getting to a more normal range and she just generally felt better. I've never tried taking the cinnamon capsules before but when I incorporate cinnamon into my diet a little more (I don't always), for example have it with cereal or in a cup of tea at breakfast, I notice a difference through out my day.
 
 hope this helps, good luck, and I hope you feel better soon!

Cf diet issues

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