cfrd

[ej0820]

Ok, I was just diagnosed w/cfrd in october. I feel like I'm getting the hang of it but lately...and this could just be b/c it's the holidays when snacking on cookies and stuff like that is at it's highest...but my sugars seem to kind of be all over. Sometimes in the morning they're in their normal 90s-100s, and some mornings we're looking at 150s. Sometimes with a drink or something, two hours later my sugar is ok, other times it's in the 200s. I'm not really doing anything differently, things are just out of wack or something...does this happen to anyone else?

Also, this is becoming a big concern of mine, I'm not really able to feel my lows really well anymore. About a month ago, if I were in the low 60s/high 50s I would start to feel a little something and be able to get my sugar back up before it sunk below 50, but now...I notice nothing. Just the other night about 2 hours after dinner, my fiance and I were sitting and watching tv. I felt kinda weird...not shaky or really hot like my sugars were low, but I felt kind light headed and assumed it was b/c I was tired. I decided to check my sugar just for kicks and it was 35!!!! I had no idea it went that low, I never felt anything. Same thing happened last night. I just decided to check my sugar because I was thinking about it and it was 51...never even felt a warning sign or anything. Now I'm kinda paranoid about food coverage and stuff. I haven't gotten to see my endocrinologist yet but has this happened to anyone else? Anyone know why this could be happening?

thanks

 

[ej0820]

Ok, I was just diagnosed w/cfrd in october. I feel like I'm getting the hang of it but lately...and this could just be b/c it's the holidays when snacking on cookies and stuff like that is at it's highest...but my sugars seem to kind of be all over. Sometimes in the morning they're in their normal 90s-100s, and some mornings we're looking at 150s. Sometimes with a drink or something, two hours later my sugar is ok, other times it's in the 200s. I'm not really doing anything differently, things are just out of wack or something...does this happen to anyone else?

Also, this is becoming a big concern of mine, I'm not really able to feel my lows really well anymore. About a month ago, if I were in the low 60s/high 50s I would start to feel a little something and be able to get my sugar back up before it sunk below 50, but now...I notice nothing. Just the other night about 2 hours after dinner, my fiance and I were sitting and watching tv. I felt kinda weird...not shaky or really hot like my sugars were low, but I felt kind light headed and assumed it was b/c I was tired. I decided to check my sugar just for kicks and it was 35!!!! I had no idea it went that low, I never felt anything. Same thing happened last night. I just decided to check my sugar because I was thinking about it and it was 51...never even felt a warning sign or anything. Now I'm kinda paranoid about food coverage and stuff. I haven't gotten to see my endocrinologist yet but has this happened to anyone else? Anyone know why this could be happening?

thanks

 

[ej0820]

Ok, I was just diagnosed w/cfrd in october. I feel like I'm getting the hang of it but lately...and this could just be b/c it's the holidays when snacking on cookies and stuff like that is at it's highest...but my sugars seem to kind of be all over. Sometimes in the morning they're in their normal 90s-100s, and some mornings we're looking at 150s. Sometimes with a drink or something, two hours later my sugar is ok, other times it's in the 200s. I'm not really doing anything differently, things are just out of wack or something...does this happen to anyone else?

Also, this is becoming a big concern of mine, I'm not really able to feel my lows really well anymore. About a month ago, if I were in the low 60s/high 50s I would start to feel a little something and be able to get my sugar back up before it sunk below 50, but now...I notice nothing. Just the other night about 2 hours after dinner, my fiance and I were sitting and watching tv. I felt kinda weird...not shaky or really hot like my sugars were low, but I felt kind light headed and assumed it was b/c I was tired. I decided to check my sugar just for kicks and it was 35!!!! I had no idea it went that low, I never felt anything. Same thing happened last night. I just decided to check my sugar because I was thinking about it and it was 51...never even felt a warning sign or anything. Now I'm kinda paranoid about food coverage and stuff. I haven't gotten to see my endocrinologist yet but has this happened to anyone else? Anyone know why this could be happening?

thanks

 

[Joanne]

Erin,

Did you have an endocronoligist person train in you in giving yourself insulin?
If you are hitting 35, you are overdosing on insulin. Also, did they start you on insulin, or oral meds. It seems a quick move to insulin if you were just diagnosed in October.

I have been diabetic for 18 years and I did not start insulin until about 5 years after diagnosis. My glucose readings have been high from time to time, they have been very low, time to time. But most times I am very good on dosing myself. What glucose number are you suppose to be aiming for? Most likely you should aim for 110 area. Are you on prednisone? If you are, then you might have to let the numbers run a bit higher, as that can effect the numbers so much. Talk to a good diabetes team and get trained.

As far as not feeling the lows, and so early on, let the docs know. I think I started not to feel lows after about 8 years or so. Make sure you know the signs, be sure your fiancee knows the signs he should be looking for. Me it was sweating back, light headed, eyes seeing things strangely, not making sense when I talk, confusiong and sudden depression.

Good luck
Joanne

 

[Joanne]

Erin,

Did you have an endocronoligist person train in you in giving yourself insulin?
If you are hitting 35, you are overdosing on insulin. Also, did they start you on insulin, or oral meds. It seems a quick move to insulin if you were just diagnosed in October.

I have been diabetic for 18 years and I did not start insulin until about 5 years after diagnosis. My glucose readings have been high from time to time, they have been very low, time to time. But most times I am very good on dosing myself. What glucose number are you suppose to be aiming for? Most likely you should aim for 110 area. Are you on prednisone? If you are, then you might have to let the numbers run a bit higher, as that can effect the numbers so much. Talk to a good diabetes team and get trained.

As far as not feeling the lows, and so early on, let the docs know. I think I started not to feel lows after about 8 years or so. Make sure you know the signs, be sure your fiancee knows the signs he should be looking for. Me it was sweating back, light headed, eyes seeing things strangely, not making sense when I talk, confusiong and sudden depression.

Good luck
Joanne

 

[Joanne]

Erin,

Did you have an endocronoligist person train in you in giving yourself insulin?
If you are hitting 35, you are overdosing on insulin. Also, did they start you on insulin, or oral meds. It seems a quick move to insulin if you were just diagnosed in October.

I have been diabetic for 18 years and I did not start insulin until about 5 years after diagnosis. My glucose readings have been high from time to time, they have been very low, time to time. But most times I am very good on dosing myself. What glucose number are you suppose to be aiming for? Most likely you should aim for 110 area. Are you on prednisone? If you are, then you might have to let the numbers run a bit higher, as that can effect the numbers so much. Talk to a good diabetes team and get trained.

As far as not feeling the lows, and so early on, let the docs know. I think I started not to feel lows after about 8 years or so. Make sure you know the signs, be sure your fiancee knows the signs he should be looking for. Me it was sweating back, light headed, eyes seeing things strangely, not making sense when I talk, confusiong and sudden depression.

Good luck
Joanne

 

[Rokiss12]

erin- i was diagnosed in august so we can definitly help each other (hehe)

when i first started insulin it went okay and i was at normal numbers up until around dinner. then it went to normall all day except low in the morning. we had to do so much figiting with the numbers! so dont worry im sure thats all you need! what are you on now? i know its really different for everyone, but sometimes all you need is to lower your 24 acting insulin.

i take 1:20 mornings and lunch, 1:25 at dinner, and 8 of lantus at night.

definitly talk to your endo people and they will help you alot.

as for the warning signs... mine are pretttty bad when i get even into the 70's so i don't think i can help you alot. my signs are getting shaky (sometimes..REALLY shaky) feeling really hungry (that feeling when you havent eaten in a while), headache-ish, can't concentrate on ANYthing, and sweats.

maybe you've just gotten used to them? also, people definitly have different norms for their sugars. i like mine to be around 100-120. but some people feel fine at 80. maybe your norm is just a litttle lower. either way... 30's 40's and 50's do not sound healthy!

i hope everything works out for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> we should definitly keep in touch being the newly-diagnosed of the group! good luck! -kate

 

[Rokiss12]

erin- i was diagnosed in august so we can definitly help each other (hehe)

when i first started insulin it went okay and i was at normal numbers up until around dinner. then it went to normall all day except low in the morning. we had to do so much figiting with the numbers! so dont worry im sure thats all you need! what are you on now? i know its really different for everyone, but sometimes all you need is to lower your 24 acting insulin.

i take 1:20 mornings and lunch, 1:25 at dinner, and 8 of lantus at night.

definitly talk to your endo people and they will help you alot.

as for the warning signs... mine are pretttty bad when i get even into the 70's so i don't think i can help you alot. my signs are getting shaky (sometimes..REALLY shaky) feeling really hungry (that feeling when you havent eaten in a while), headache-ish, can't concentrate on ANYthing, and sweats.

maybe you've just gotten used to them? also, people definitly have different norms for their sugars. i like mine to be around 100-120. but some people feel fine at 80. maybe your norm is just a litttle lower. either way... 30's 40's and 50's do not sound healthy!

i hope everything works out for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> we should definitly keep in touch being the newly-diagnosed of the group! good luck! -kate

 

[Rokiss12]

erin- i was diagnosed in august so we can definitly help each other (hehe)

when i first started insulin it went okay and i was at normal numbers up until around dinner. then it went to normall all day except low in the morning. we had to do so much figiting with the numbers! so dont worry im sure thats all you need! what are you on now? i know its really different for everyone, but sometimes all you need is to lower your 24 acting insulin.

i take 1:20 mornings and lunch, 1:25 at dinner, and 8 of lantus at night.

definitly talk to your endo people and they will help you alot.

as for the warning signs... mine are pretttty bad when i get even into the 70's so i don't think i can help you alot. my signs are getting shaky (sometimes..REALLY shaky) feeling really hungry (that feeling when you havent eaten in a while), headache-ish, can't concentrate on ANYthing, and sweats.

maybe you've just gotten used to them? also, people definitly have different norms for their sugars. i like mine to be around 100-120. but some people feel fine at 80. maybe your norm is just a litttle lower. either way... 30's 40's and 50's do not sound healthy!

i hope everything works out for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> we should definitly keep in touch being the newly-diagnosed of the group! good luck! -kate

 

[Diane]

When i was diagnosed with diabetes 26 years ago i was started on insulin right away. It took a LONG time to get some kind of pattern set down so to speak. It took me years to figure out which foods affect me and how they affect me. Being alergic to aspartame ( the ingredient of Nutra sweet) meant sugar free foods were out of the question. Different foods affect us all in different ways. I still have blood sugars that bounce all over the place at times, but it is important to know when your insulin peaks so you can schedule in a snack to avoid a low blood sugar episode. Even the best plan will fail at times because of hormones, stress, and infection, but it is a good idea to test your blood sugar often. I test mine about 8 times a day, sometimes more. Its the only way to know exactly whats what. I always test before i eat, to see what it is i can have and how much, and then a few hours after. I basically never eat without testing, unless i know for sure my blood sugar level is in a good range . It is kind of odd but i actually have had dreams where i am in a candy store trying to buy candy, but have no money, or they are out of candy or tasty kakes, and when i wake up i know that is my cue to check my sugars and its never been wrong....They've been low each time. Kind of cool that my subconscious knows i need sugar and aint getting it.

 

[Diane]

When i was diagnosed with diabetes 26 years ago i was started on insulin right away. It took a LONG time to get some kind of pattern set down so to speak. It took me years to figure out which foods affect me and how they affect me. Being alergic to aspartame ( the ingredient of Nutra sweet) meant sugar free foods were out of the question. Different foods affect us all in different ways. I still have blood sugars that bounce all over the place at times, but it is important to know when your insulin peaks so you can schedule in a snack to avoid a low blood sugar episode. Even the best plan will fail at times because of hormones, stress, and infection, but it is a good idea to test your blood sugar often. I test mine about 8 times a day, sometimes more. Its the only way to know exactly whats what. I always test before i eat, to see what it is i can have and how much, and then a few hours after. I basically never eat without testing, unless i know for sure my blood sugar level is in a good range . It is kind of odd but i actually have had dreams where i am in a candy store trying to buy candy, but have no money, or they are out of candy or tasty kakes, and when i wake up i know that is my cue to check my sugars and its never been wrong....They've been low each time. Kind of cool that my subconscious knows i need sugar and aint getting it.

 

[Diane]

When i was diagnosed with diabetes 26 years ago i was started on insulin right away. It took a LONG time to get some kind of pattern set down so to speak. It took me years to figure out which foods affect me and how they affect me. Being alergic to aspartame ( the ingredient of Nutra sweet) meant sugar free foods were out of the question. Different foods affect us all in different ways. I still have blood sugars that bounce all over the place at times, but it is important to know when your insulin peaks so you can schedule in a snack to avoid a low blood sugar episode. Even the best plan will fail at times because of hormones, stress, and infection, but it is a good idea to test your blood sugar often. I test mine about 8 times a day, sometimes more. Its the only way to know exactly whats what. I always test before i eat, to see what it is i can have and how much, and then a few hours after. I basically never eat without testing, unless i know for sure my blood sugar level is in a good range . It is kind of odd but i actually have had dreams where i am in a candy store trying to buy candy, but have no money, or they are out of candy or tasty kakes, and when i wake up i know that is my cue to check my sugars and its never been wrong....They've been low each time. Kind of cool that my subconscious knows i need sugar and aint getting it.

 

[Lungboy911]

Hi Erin,

First of all, you sound like such a sweetie.

The best thing a doctor told me is that I had to average over 200 levels for 10 consecutive years to hurt myself.

I know that eased my stress when I was having trouble controlling my blood sugar levels.

YES, YES, YES, We all go through periods when it's harder then usual to control your levels.

The only I would suggest that hasn't been mentioned is what I try to do.
I test myself more often during these periods of my life. Which, by the way, still happens and I have had CFRD since 1996.

If your testing 4 times a day like I am. Do it 6 times a day. I usually test myself 2 hours after I eat. That tells me if I need more insulin or a little more food to be at a stable and good sugar level.

Hope this helps and Have a Happy New Year,

 

[Lungboy911]

Hi Erin,

First of all, you sound like such a sweetie.

The best thing a doctor told me is that I had to average over 200 levels for 10 consecutive years to hurt myself.

I know that eased my stress when I was having trouble controlling my blood sugar levels.

YES, YES, YES, We all go through periods when it's harder then usual to control your levels.

The only I would suggest that hasn't been mentioned is what I try to do.
I test myself more often during these periods of my life. Which, by the way, still happens and I have had CFRD since 1996.

If your testing 4 times a day like I am. Do it 6 times a day. I usually test myself 2 hours after I eat. That tells me if I need more insulin or a little more food to be at a stable and good sugar level.

Hope this helps and Have a Happy New Year,

 

[Lungboy911]

Hi Erin,

First of all, you sound like such a sweetie.

The best thing a doctor told me is that I had to average over 200 levels for 10 consecutive years to hurt myself.

I know that eased my stress when I was having trouble controlling my blood sugar levels.

YES, YES, YES, We all go through periods when it's harder then usual to control your levels.

The only I would suggest that hasn't been mentioned is what I try to do.
I test myself more often during these periods of my life. Which, by the way, still happens and I have had CFRD since 1996.

If your testing 4 times a day like I am. Do it 6 times a day. I usually test myself 2 hours after I eat. That tells me if I need more insulin or a little more food to be at a stable and good sugar level.

Hope this helps and Have a Happy New Year,

 

[coltsfan715]

Hey there Erin,

I haven't read all the replies to your post because I don't have too much time, but I wanted to reply before I had to go.

I was started on insulin immediately after my diagnosis 7 years ago - sometimes depending on your blood sugar levels it is deemed necessary like it was for me. My sugars were running at about 400 when I was diagnosed.

I had several problems when I was first put on insulin. I was taking HumilinN and Humalog at the time. I was EXTREMELY sensitive to insulin and was getting low after low after low after meals. They ended up having to cut back my dosages. That sometimes happens when you first start out on insulin.

As for eating more it could very well be that you are eating differently and that is causing the changes in your sugars. Are you noticing that your sugars drop more often at certain times of the day or after specific meals - like always after breakfast or never after breakfast but always after dinner? If so it may be a hormonal thing and you may require less insulin at that time of day.

I was having issues starting in October where my blood sugars were extremely high in the mornings after breakfast - I was giving myself 3 times my normal insulin dose and still getting highs above 200. The doc said it was most likely hormonal. Also he had me do some experimenting with my long acting insulin (which was Lantus and had been for the past yr and a half or so). I was taking 10 units once a day - at night. He had me try taking the lantus in the morning and I was still experiencing problems, then he had me split the dose and give 5-6 units in the AM and 5-6 in the PM. When I started using the smaller doses and giving the lantus twice a day my sugars started to regulate and became easier to control. My doc said that sometimes when people are taking low doses of lantus that the drug is not as effective for 24 hr use - it becomes more like a 12 hr acting insulin, so that is why in some cases patients have to give 2 doses of half the amount in the AM and PM.

I am now taking only Humalog as I just started using an insulin pump. It is nice but has been a bit of an adjustment to not have to tote around all the extra garbage that comes with insulin syringes, meds, bottles, and so on lol.

I will also say that I have noticed that when I eat very sugary foods my blood sugar tends to spike fast and it takes the insulin a little longer to kick in than it takes the sugar and carbs. Also when I eat foods higher in protein I notice that my sugars tend to peak after 3 hours or so. It really does depend on the foods you eat - not just the carb count but the sugars and protein and everything as to how the food effects your sugars.

Also as for the not noticing symptoms of blood sugar lows, your body will change, but you will become adjusted over time. I say just keep a close eye on your sugars - like someone else mentioned I think talk to your doc about cutting back your insulin because if you are getting lows like 35 - 2 hours after eating it is because you took to much insulin. I used to get shaky and my arms would feel rubbery when I first started taking insulin. Then that stopped and I would only get hungry - like the pit of your stomach growling churning hunger - when I got that my sugars were at about 70 - if that feeling went away I didn't feel any other symptoms and my blood sugar would drop lower and lower - it wasn't so much insulin for me in that respect because it was hours after eating (like 4-5) but it was just too long between meals. Now I get severe sweating when my sugars reach the 40s, I get kind of light headed and see little specks when my sugars are in the 60s and I start to feel light headed or my arms and legs will feel weak when my sugars enter the 80-90s. I have found that my symtpoms also vary with the different insulins I have taken over the years.

I hope you are able to work everything out. Your body will give you signs about your blood sugar the only thing I can think to do is to just check your sugar ANYTIME you feel "odd" or "off" this will give you a good idea of how you feel when your sugars are at different places. If you have a headache - which I get alot when my sugars are over 200 - check your sugar if it is normal okay,but it may be high or even low, you may start to notice a pattern. Maybe your body is giving you signs that your sugar is dropping you just may not know that they are signs - I hope that makes sense.

Take Care and Happy Holidays,
Lindsey

 

[coltsfan715]

Hey there Erin,

I haven't read all the replies to your post because I don't have too much time, but I wanted to reply before I had to go.

I was started on insulin immediately after my diagnosis 7 years ago - sometimes depending on your blood sugar levels it is deemed necessary like it was for me. My sugars were running at about 400 when I was diagnosed.

I had several problems when I was first put on insulin. I was taking HumilinN and Humalog at the time. I was EXTREMELY sensitive to insulin and was getting low after low after low after meals. They ended up having to cut back my dosages. That sometimes happens when you first start out on insulin.

As for eating more it could very well be that you are eating differently and that is causing the changes in your sugars. Are you noticing that your sugars drop more often at certain times of the day or after specific meals - like always after breakfast or never after breakfast but always after dinner? If so it may be a hormonal thing and you may require less insulin at that time of day.

I was having issues starting in October where my blood sugars were extremely high in the mornings after breakfast - I was giving myself 3 times my normal insulin dose and still getting highs above 200. The doc said it was most likely hormonal. Also he had me do some experimenting with my long acting insulin (which was Lantus and had been for the past yr and a half or so). I was taking 10 units once a day - at night. He had me try taking the lantus in the morning and I was still experiencing problems, then he had me split the dose and give 5-6 units in the AM and 5-6 in the PM. When I started using the smaller doses and giving the lantus twice a day my sugars started to regulate and became easier to control. My doc said that sometimes when people are taking low doses of lantus that the drug is not as effective for 24 hr use - it becomes more like a 12 hr acting insulin, so that is why in some cases patients have to give 2 doses of half the amount in the AM and PM.

I am now taking only Humalog as I just started using an insulin pump. It is nice but has been a bit of an adjustment to not have to tote around all the extra garbage that comes with insulin syringes, meds, bottles, and so on lol.

I will also say that I have noticed that when I eat very sugary foods my blood sugar tends to spike fast and it takes the insulin a little longer to kick in than it takes the sugar and carbs. Also when I eat foods higher in protein I notice that my sugars tend to peak after 3 hours or so. It really does depend on the foods you eat - not just the carb count but the sugars and protein and everything as to how the food effects your sugars.

Also as for the not noticing symptoms of blood sugar lows, your body will change, but you will become adjusted over time. I say just keep a close eye on your sugars - like someone else mentioned I think talk to your doc about cutting back your insulin because if you are getting lows like 35 - 2 hours after eating it is because you took to much insulin. I used to get shaky and my arms would feel rubbery when I first started taking insulin. Then that stopped and I would only get hungry - like the pit of your stomach growling churning hunger - when I got that my sugars were at about 70 - if that feeling went away I didn't feel any other symptoms and my blood sugar would drop lower and lower - it wasn't so much insulin for me in that respect because it was hours after eating (like 4-5) but it was just too long between meals. Now I get severe sweating when my sugars reach the 40s, I get kind of light headed and see little specks when my sugars are in the 60s and I start to feel light headed or my arms and legs will feel weak when my sugars enter the 80-90s. I have found that my symtpoms also vary with the different insulins I have taken over the years.

I hope you are able to work everything out. Your body will give you signs about your blood sugar the only thing I can think to do is to just check your sugar ANYTIME you feel "odd" or "off" this will give you a good idea of how you feel when your sugars are at different places. If you have a headache - which I get alot when my sugars are over 200 - check your sugar if it is normal okay,but it may be high or even low, you may start to notice a pattern. Maybe your body is giving you signs that your sugar is dropping you just may not know that they are signs - I hope that makes sense.

Take Care and Happy Holidays,
Lindsey

 

[coltsfan715]

Hey there Erin,

I haven't read all the replies to your post because I don't have too much time, but I wanted to reply before I had to go.

I was started on insulin immediately after my diagnosis 7 years ago - sometimes depending on your blood sugar levels it is deemed necessary like it was for me. My sugars were running at about 400 when I was diagnosed.

I had several problems when I was first put on insulin. I was taking HumilinN and Humalog at the time. I was EXTREMELY sensitive to insulin and was getting low after low after low after meals. They ended up having to cut back my dosages. That sometimes happens when you first start out on insulin.

As for eating more it could very well be that you are eating differently and that is causing the changes in your sugars. Are you noticing that your sugars drop more often at certain times of the day or after specific meals - like always after breakfast or never after breakfast but always after dinner? If so it may be a hormonal thing and you may require less insulin at that time of day.

I was having issues starting in October where my blood sugars were extremely high in the mornings after breakfast - I was giving myself 3 times my normal insulin dose and still getting highs above 200. The doc said it was most likely hormonal. Also he had me do some experimenting with my long acting insulin (which was Lantus and had been for the past yr and a half or so). I was taking 10 units once a day - at night. He had me try taking the lantus in the morning and I was still experiencing problems, then he had me split the dose and give 5-6 units in the AM and 5-6 in the PM. When I started using the smaller doses and giving the lantus twice a day my sugars started to regulate and became easier to control. My doc said that sometimes when people are taking low doses of lantus that the drug is not as effective for 24 hr use - it becomes more like a 12 hr acting insulin, so that is why in some cases patients have to give 2 doses of half the amount in the AM and PM.

I am now taking only Humalog as I just started using an insulin pump. It is nice but has been a bit of an adjustment to not have to tote around all the extra garbage that comes with insulin syringes, meds, bottles, and so on lol.

I will also say that I have noticed that when I eat very sugary foods my blood sugar tends to spike fast and it takes the insulin a little longer to kick in than it takes the sugar and carbs. Also when I eat foods higher in protein I notice that my sugars tend to peak after 3 hours or so. It really does depend on the foods you eat - not just the carb count but the sugars and protein and everything as to how the food effects your sugars.

Also as for the not noticing symptoms of blood sugar lows, your body will change, but you will become adjusted over time. I say just keep a close eye on your sugars - like someone else mentioned I think talk to your doc about cutting back your insulin because if you are getting lows like 35 - 2 hours after eating it is because you took to much insulin. I used to get shaky and my arms would feel rubbery when I first started taking insulin. Then that stopped and I would only get hungry - like the pit of your stomach growling churning hunger - when I got that my sugars were at about 70 - if that feeling went away I didn't feel any other symptoms and my blood sugar would drop lower and lower - it wasn't so much insulin for me in that respect because it was hours after eating (like 4-5) but it was just too long between meals. Now I get severe sweating when my sugars reach the 40s, I get kind of light headed and see little specks when my sugars are in the 60s and I start to feel light headed or my arms and legs will feel weak when my sugars enter the 80-90s. I have found that my symtpoms also vary with the different insulins I have taken over the years.

I hope you are able to work everything out. Your body will give you signs about your blood sugar the only thing I can think to do is to just check your sugar ANYTIME you feel "odd" or "off" this will give you a good idea of how you feel when your sugars are at different places. If you have a headache - which I get alot when my sugars are over 200 - check your sugar if it is normal okay,but it may be high or even low, you may start to notice a pattern. Maybe your body is giving you signs that your sugar is dropping you just may not know that they are signs - I hope that makes sense.

Take Care and Happy Holidays,
Lindsey

 

[CaliSally]

I love all the comments and personal experience here - I have CFRD and HATE it. If God came to me and told me He would miraculously (sp?) heal one disease - I'd pick the diabetes over the CF, hands down.


Anyway - the only comment I have about feeling the highs and lows>
I was told that our body becomes accustomed to whatever our "normal" is.
For example, in the beginning when mine were over 400, and then drop to 300, I thought I was crashing and would eat, without testing. Same goes the other way. If you normally run low, it will feel like THAT is normal..therefore dropping 20 points doesn't feel like much (like if you were 140 and went to 120 - you might not feel a "crash") However if it's 60 to begin with and you drop 20...well, I hope you understand the thinking here.

Thankfully I learned this early on, about 20 years ago, and I'm surprised how little the doctors tell you these days.

well, hope that is beneficial. Testing IS the key.

Best wishes to all

 

[CaliSally]

I love all the comments and personal experience here - I have CFRD and HATE it. If God came to me and told me He would miraculously (sp?) heal one disease - I'd pick the diabetes over the CF, hands down.


Anyway - the only comment I have about feeling the highs and lows>
I was told that our body becomes accustomed to whatever our "normal" is.
For example, in the beginning when mine were over 400, and then drop to 300, I thought I was crashing and would eat, without testing. Same goes the other way. If you normally run low, it will feel like THAT is normal..therefore dropping 20 points doesn't feel like much (like if you were 140 and went to 120 - you might not feel a "crash") However if it's 60 to begin with and you drop 20...well, I hope you understand the thinking here.

Thankfully I learned this early on, about 20 years ago, and I'm surprised how little the doctors tell you these days.

well, hope that is beneficial. Testing IS the key.

Best wishes to all