CHECK IT ALL OUT

[JazzysMom]

There is a ton of info on CysticFibrosis.Com!!

Besides the forum where we post or the chat, there are videos of various sorts, the home page shows any & all news that is reported about CF. There is the remembering & gallery section and more!!

Check it all out so you can get to know us better & appreciate our "family" here!!!

 

[JazzysMom]

There is a ton of info on CysticFibrosis.Com!!

Besides the forum where we post or the chat, there are videos of various sorts, the home page shows any & all news that is reported about CF. There is the remembering & gallery section and more!!

Check it all out so you can get to know us better & appreciate our "family" here!!!

 

[JazzysMom]

There is a ton of info on CysticFibrosis.Com!!

Besides the forum where we post or the chat, there are videos of various sorts, the home page shows any & all news that is reported about CF. There is the remembering & gallery section and more!!

Check it all out so you can get to know us better & appreciate our "family" here!!!

 

[JazzysMom]

There is a ton of info on CysticFibrosis.Com!!

Besides the forum where we post or the chat, there are videos of various sorts, the home page shows any & all news that is reported about CF. There is the remembering & gallery section and more!!

Check it all out so you can get to know us better & appreciate our "family" here!!!

 

[JazzysMom]

There is a ton of info on CysticFibrosis.Com!!
<br />
<br />Besides the forum where we post or the chat, there are videos of various sorts, the home page shows any & all news that is reported about CF. There is the remembering & gallery section and more!!
<br />
<br />Check it all out so you can get to know us better & appreciate our "family" here!!!
<br />
<br />

 

[Mrsbjolly]

Dear Jazzy's mum,
I noticed that my earlier post, which has since been deleted offended you and your 'family' here which I assure you was not my intention. I fully appreaciate that there is a good support network on the site and know that many of you are familiar with each other. There are a lot of posts however that tell the troubling truth of fear that exists in the younger ones who have CF and of some of the new parents too and all I wanted to do was set a myspace group that built a bridge of communication with them and with other people like myself who have battled and beaten the negative prognosis of CF, marching into adulthood positively. When I was a teenager and a young adult I would have loved to have heard real stories of success from those who were already there and beating the odds, instead of getting all my information out of medical books, which lets face it - doesn't make cheery reading. It would have been a real comfort to talk to others with CF and perhaps the choices I made back then would have been different. In no way did I want to threaten the community here; I think it's a great place. I was surprised to see that my post had been deleted, especially when I read through the code of conducts and found that I had not broken any of them. I can only think that some members must have viewed it as disrespectful to the communtiy. That was not my intention though. It's plainly obvious that this is a place of support and all I wanted to do was extend that support. I noticed on your CF Blog that you too have a myspace URL. You can add me if you like. Mine is

<a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/mrsbjollythankful">http://www.myspace.com/mrsbjollythankful</a>

 

[Mrsbjolly]

Dear Jazzy's mum,
I noticed that my earlier post, which has since been deleted offended you and your 'family' here which I assure you was not my intention. I fully appreaciate that there is a good support network on the site and know that many of you are familiar with each other. There are a lot of posts however that tell the troubling truth of fear that exists in the younger ones who have CF and of some of the new parents too and all I wanted to do was set a myspace group that built a bridge of communication with them and with other people like myself who have battled and beaten the negative prognosis of CF, marching into adulthood positively. When I was a teenager and a young adult I would have loved to have heard real stories of success from those who were already there and beating the odds, instead of getting all my information out of medical books, which lets face it - doesn't make cheery reading. It would have been a real comfort to talk to others with CF and perhaps the choices I made back then would have been different. In no way did I want to threaten the community here; I think it's a great place. I was surprised to see that my post had been deleted, especially when I read through the code of conducts and found that I had not broken any of them. I can only think that some members must have viewed it as disrespectful to the communtiy. That was not my intention though. It's plainly obvious that this is a place of support and all I wanted to do was extend that support. I noticed on your CF Blog that you too have a myspace URL. You can add me if you like. Mine is

<a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/mrsbjollythankful">http://www.myspace.com/mrsbjollythankful</a>

 

[Mrsbjolly]

Dear Jazzy's mum,
I noticed that my earlier post, which has since been deleted offended you and your 'family' here which I assure you was not my intention. I fully appreaciate that there is a good support network on the site and know that many of you are familiar with each other. There are a lot of posts however that tell the troubling truth of fear that exists in the younger ones who have CF and of some of the new parents too and all I wanted to do was set a myspace group that built a bridge of communication with them and with other people like myself who have battled and beaten the negative prognosis of CF, marching into adulthood positively. When I was a teenager and a young adult I would have loved to have heard real stories of success from those who were already there and beating the odds, instead of getting all my information out of medical books, which lets face it - doesn't make cheery reading. It would have been a real comfort to talk to others with CF and perhaps the choices I made back then would have been different. In no way did I want to threaten the community here; I think it's a great place. I was surprised to see that my post had been deleted, especially when I read through the code of conducts and found that I had not broken any of them. I can only think that some members must have viewed it as disrespectful to the communtiy. That was not my intention though. It's plainly obvious that this is a place of support and all I wanted to do was extend that support. I noticed on your CF Blog that you too have a myspace URL. You can add me if you like. Mine is

<a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/mrsbjollythankful">http://www.myspace.com/mrsbjollythankful</a>

 

[Mrsbjolly]

Dear Jazzy's mum,
I noticed that my earlier post, which has since been deleted offended you and your 'family' here which I assure you was not my intention. I fully appreaciate that there is a good support network on the site and know that many of you are familiar with each other. There are a lot of posts however that tell the troubling truth of fear that exists in the younger ones who have CF and of some of the new parents too and all I wanted to do was set a myspace group that built a bridge of communication with them and with other people like myself who have battled and beaten the negative prognosis of CF, marching into adulthood positively. When I was a teenager and a young adult I would have loved to have heard real stories of success from those who were already there and beating the odds, instead of getting all my information out of medical books, which lets face it - doesn't make cheery reading. It would have been a real comfort to talk to others with CF and perhaps the choices I made back then would have been different. In no way did I want to threaten the community here; I think it's a great place. I was surprised to see that my post had been deleted, especially when I read through the code of conducts and found that I had not broken any of them. I can only think that some members must have viewed it as disrespectful to the communtiy. That was not my intention though. It's plainly obvious that this is a place of support and all I wanted to do was extend that support. I noticed on your CF Blog that you too have a myspace URL. You can add me if you like. Mine is

<a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/mrsbjollythankful">http://www.myspace.com/mrsbjollythankful</a>

 

[Mrsbjolly]

Dear Jazzy's mum,
<br />I noticed that my earlier post, which has since been deleted offended you and your 'family' here which I assure you was not my intention. I fully appreaciate that there is a good support network on the site and know that many of you are familiar with each other. There are a lot of posts however that tell the troubling truth of fear that exists in the younger ones who have CF and of some of the new parents too and all I wanted to do was set a myspace group that built a bridge of communication with them and with other people like myself who have battled and beaten the negative prognosis of CF, marching into adulthood positively. When I was a teenager and a young adult I would have loved to have heard real stories of success from those who were already there and beating the odds, instead of getting all my information out of medical books, which lets face it - doesn't make cheery reading. It would have been a real comfort to talk to others with CF and perhaps the choices I made back then would have been different. In no way did I want to threaten the community here; I think it's a great place. I was surprised to see that my post had been deleted, especially when I read through the code of conducts and found that I had not broken any of them. I can only think that some members must have viewed it as disrespectful to the communtiy. That was not my intention though. It's plainly obvious that this is a place of support and all I wanted to do was extend that support. I noticed on your CF Blog that you too have a myspace URL. You can add me if you like. Mine is
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/mrsbjollythankful">http://www.myspace.com/mrsbjollythankful</a>