What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Colistin vs. Tobi

Skye

New member
I may be trying Colistin at my next clinic visit. I have always hated Tobi. It makes me SOB and kicks my FEV1 arse. What can I expect with Colistin? Do any of you like it and what are some of the positives about it? I can take the Aztreanam Lysine just fine and it really helps me; but, I truly hate Tobi.
 

Skye

New member
I may be trying Colistin at my next clinic visit. I have always hated Tobi. It makes me SOB and kicks my FEV1 arse. What can I expect with Colistin? Do any of you like it and what are some of the positives about it? I can take the Aztreanam Lysine just fine and it really helps me; but, I truly hate Tobi.
 

Skye

New member
I may be trying Colistin at my next clinic visit. I have always hated Tobi. It makes me SOB and kicks my FEV1 arse. What can I expect with Colistin? Do any of you like it and what are some of the positives about it? I can take the Aztreanam Lysine just fine and it really helps me; but, I truly hate Tobi.
 

Skye

New member
I may be trying Colistin at my next clinic visit. I have always hated Tobi. It makes me SOB and kicks my FEV1 arse. What can I expect with Colistin? Do any of you like it and what are some of the positives about it? I can take the Aztreanam Lysine just fine and it really helps me; but, I truly hate Tobi.
 

Skye

New member
I may be trying Colistin at my next clinic visit. I have always hated Tobi. It makes me SOB and kicks my FEV1 arse. What can I expect with Colistin? Do any of you like it and what are some of the positives about it? I can take the Aztreanam Lysine just fine and it really helps me; but, I truly hate Tobi.
 

AnD

New member
I like it. I alternate between Colistin and Tobi (I have the same problem with Tobi from time to time, like today <img src="i/expressions/face-icon-small-frown.gif" border="0"> ) when I have a flare up (Tobi for one flare up, Colistin the next). I believe it is also supposed to help fight resistance (according to my nurse several years ago when I started it). It doesn't "kick p.a. butt" quite as dramatically as Tobi does for me, but if I take it with an oral antibiotic, it seems to ratchet it up a knot. You can also get it in generic, which for me is a lot cheaper copay. I hope you like it too! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I like it. I alternate between Colistin and Tobi (I have the same problem with Tobi from time to time, like today <img src="i/expressions/face-icon-small-frown.gif" border="0"> ) when I have a flare up (Tobi for one flare up, Colistin the next). I believe it is also supposed to help fight resistance (according to my nurse several years ago when I started it). It doesn't "kick p.a. butt" quite as dramatically as Tobi does for me, but if I take it with an oral antibiotic, it seems to ratchet it up a knot. You can also get it in generic, which for me is a lot cheaper copay. I hope you like it too! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I like it. I alternate between Colistin and Tobi (I have the same problem with Tobi from time to time, like today <img src="i/expressions/face-icon-small-frown.gif" border="0"> ) when I have a flare up (Tobi for one flare up, Colistin the next). I believe it is also supposed to help fight resistance (according to my nurse several years ago when I started it). It doesn't "kick p.a. butt" quite as dramatically as Tobi does for me, but if I take it with an oral antibiotic, it seems to ratchet it up a knot. You can also get it in generic, which for me is a lot cheaper copay. I hope you like it too! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I like it. I alternate between Colistin and Tobi (I have the same problem with Tobi from time to time, like today <img src="i/expressions/face-icon-small-frown.gif" border="0"> ) when I have a flare up (Tobi for one flare up, Colistin the next). I believe it is also supposed to help fight resistance (according to my nurse several years ago when I started it). It doesn't "kick p.a. butt" quite as dramatically as Tobi does for me, but if I take it with an oral antibiotic, it seems to ratchet it up a knot. You can also get it in generic, which for me is a lot cheaper copay. I hope you like it too! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I like it. I alternate between Colistin and Tobi (I have the same problem with Tobi from time to time, like today <img src="i/expressions/face-icon-small-frown.gif" border="0"> ) when I have a flare up (Tobi for one flare up, Colistin the next). I believe it is also supposed to help fight resistance (according to my nurse several years ago when I started it). It doesn't "kick p.a. butt" quite as dramatically as Tobi does for me, but if I take it with an oral antibiotic, it seems to ratchet it up a knot. You can also get it in generic, which for me is a lot cheaper copay. I hope you like it too! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Kristen

New member
Tobi made me cough my arse off. I have no issues with Colistin. I hate that it gets all foamy so easily, though.
 

Kristen

New member
Tobi made me cough my arse off. I have no issues with Colistin. I hate that it gets all foamy so easily, though.
 

Kristen

New member
Tobi made me cough my arse off. I have no issues with Colistin. I hate that it gets all foamy so easily, though.
 

Kristen

New member
Tobi made me cough my arse off. I have no issues with Colistin. I hate that it gets all foamy so easily, though.
 

Kristen

New member
Tobi made me cough my arse off. I have no issues with Colistin. I hate that it gets all foamy so easily, though.
 

AnD

New member
Do you mix yours with sterile water or saline? I think the foaming issue has decrease significantly with the sterile water, as compared to when I was mixing it with the saline...
 

AnD

New member
Do you mix yours with sterile water or saline? I think the foaming issue has decrease significantly with the sterile water, as compared to when I was mixing it with the saline...
 

AnD

New member
Do you mix yours with sterile water or saline? I think the foaming issue has decrease significantly with the sterile water, as compared to when I was mixing it with the saline...
 

AnD

New member
Do you mix yours with sterile water or saline? I think the foaming issue has decrease significantly with the sterile water, as compared to when I was mixing it with the saline...
 

AnD

New member
Do you mix yours with sterile water or saline? I think the foaming issue has decrease significantly with the sterile water, as compared to when I was mixing it with the saline...
 
Top