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Colistin

Skye

New member
OK.....so I am giving Colistin a try. I just took my second dose this morning. I noticed I was moderately SOB on my walk today compared to my usual. Not near as bad as what Tobi does to me.....but, it was a bit noticeable. It was raining and cold too though....so that could have played into it. Also was going up a steep hill which gets me some times.

I make sure and do albuterol before I start my treatments....then I do HS with vest, pulmozyme, then do Colistin last. I am mixing the Colistin with saline to make it less harsh. Is there anything more I can do to ease into it. Does it get a bit easier once you have been on it for a few days? I really want this to work out as an alternative for me and I want it to be as easy to take as Aztreanam has been for me.
 

Skye

New member
OK.....so I am giving Colistin a try. I just took my second dose this morning. I noticed I was moderately SOB on my walk today compared to my usual. Not near as bad as what Tobi does to me.....but, it was a bit noticeable. It was raining and cold too though....so that could have played into it. Also was going up a steep hill which gets me some times.

I make sure and do albuterol before I start my treatments....then I do HS with vest, pulmozyme, then do Colistin last. I am mixing the Colistin with saline to make it less harsh. Is there anything more I can do to ease into it. Does it get a bit easier once you have been on it for a few days? I really want this to work out as an alternative for me and I want it to be as easy to take as Aztreanam has been for me.
 

Skye

New member
OK.....so I am giving Colistin a try. I just took my second dose this morning. I noticed I was moderately SOB on my walk today compared to my usual. Not near as bad as what Tobi does to me.....but, it was a bit noticeable. It was raining and cold too though....so that could have played into it. Also was going up a steep hill which gets me some times.

I make sure and do albuterol before I start my treatments....then I do HS with vest, pulmozyme, then do Colistin last. I am mixing the Colistin with saline to make it less harsh. Is there anything more I can do to ease into it. Does it get a bit easier once you have been on it for a few days? I really want this to work out as an alternative for me and I want it to be as easy to take as Aztreanam has been for me.
 

Skye

New member
OK.....so I am giving Colistin a try. I just took my second dose this morning. I noticed I was moderately SOB on my walk today compared to my usual. Not near as bad as what Tobi does to me.....but, it was a bit noticeable. It was raining and cold too though....so that could have played into it. Also was going up a steep hill which gets me some times.

I make sure and do albuterol before I start my treatments....then I do HS with vest, pulmozyme, then do Colistin last. I am mixing the Colistin with saline to make it less harsh. Is there anything more I can do to ease into it. Does it get a bit easier once you have been on it for a few days? I really want this to work out as an alternative for me and I want it to be as easy to take as Aztreanam has been for me.
 

Skye

New member
OK.....so I am giving Colistin a try. I just took my second dose this morning. I noticed I was moderately SOB on my walk today compared to my usual. Not near as bad as what Tobi does to me.....but, it was a bit noticeable. It was raining and cold too though....so that could have played into it. Also was going up a steep hill which gets me some times.
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<br />I make sure and do albuterol before I start my treatments....then I do HS with vest, pulmozyme, then do Colistin last. I am mixing the Colistin with saline to make it less harsh. Is there anything more I can do to ease into it. Does it get a bit easier once you have been on it for a few days? I really want this to work out as an alternative for me and I want it to be as easy to take as Aztreanam has been for me.
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