What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Do you sometimes second-guess doctors & nurses?

Kristen

New member
I wrote a post on another (non-cf) message board about second guessing a nurse, and someone said to me:

"What is it you do for a living? It must be pretty impressive to know that all those doctors and nurses you've met have no idea what they were talking about."

So, my question is, am I abnormal? I feel like, as a CFer, I need to second guess my doctors, because a lot of the time I know so much more about this disease than they do (speaking of my non-CF doctors).

And I have been misdiagnosed many times about random things, so that makes me even more likely to second guess things. Am I alone here? I am really a horrible patient?
 

Kristen

New member
I wrote a post on another (non-cf) message board about second guessing a nurse, and someone said to me:

"What is it you do for a living? It must be pretty impressive to know that all those doctors and nurses you've met have no idea what they were talking about."

So, my question is, am I abnormal? I feel like, as a CFer, I need to second guess my doctors, because a lot of the time I know so much more about this disease than they do (speaking of my non-CF doctors).

And I have been misdiagnosed many times about random things, so that makes me even more likely to second guess things. Am I alone here? I am really a horrible patient?
 

Kristen

New member
I wrote a post on another (non-cf) message board about second guessing a nurse, and someone said to me:

"What is it you do for a living? It must be pretty impressive to know that all those doctors and nurses you've met have no idea what they were talking about."

So, my question is, am I abnormal? I feel like, as a CFer, I need to second guess my doctors, because a lot of the time I know so much more about this disease than they do (speaking of my non-CF doctors).

And I have been misdiagnosed many times about random things, so that makes me even more likely to second guess things. Am I alone here? I am really a horrible patient?
 

Kristen

New member
I wrote a post on another (non-cf) message board about second guessing a nurse, and someone said to me:

"What is it you do for a living? It must be pretty impressive to know that all those doctors and nurses you've met have no idea what they were talking about."

So, my question is, am I abnormal? I feel like, as a CFer, I need to second guess my doctors, because a lot of the time I know so much more about this disease than they do (speaking of my non-CF doctors).

And I have been misdiagnosed many times about random things, so that makes me even more likely to second guess things. Am I alone here? I am really a horrible patient?
 

Kristen

New member
I wrote a post on another (non-cf) message board about second guessing a nurse, and someone said to me:
<br />
<br />"What is it you do for a living? It must be pretty impressive to know that all those doctors and nurses you've met have no idea what they were talking about."
<br />
<br />So, my question is, am I abnormal? I feel like, as a CFer, I need to second guess my doctors, because a lot of the time I know so much more about this disease than they do (speaking of my non-CF doctors).
<br />
<br />And I have been misdiagnosed many times about random things, so that makes me even more likely to second guess things. Am I alone here? I am really a horrible patient?
 

lightNlife

New member
That quote seems very rude. I know many CF doctors who have told me that I know myself much better than they know me because I live with my symptoms everyday. They are only able to advise me based on the input that I give them. In the world of CF care, I believe it's impossible to apply a one-size-fits-all treatment.

You are not abnormal. You're being your own advocate. In my opinion that's not an arrogant sort of second-guessing, it's more like taking what you've been given from the doctors and filtering it through your personal experiences. It's not like you're blatantly disregarding what the doctors say.
 

lightNlife

New member
That quote seems very rude. I know many CF doctors who have told me that I know myself much better than they know me because I live with my symptoms everyday. They are only able to advise me based on the input that I give them. In the world of CF care, I believe it's impossible to apply a one-size-fits-all treatment.

You are not abnormal. You're being your own advocate. In my opinion that's not an arrogant sort of second-guessing, it's more like taking what you've been given from the doctors and filtering it through your personal experiences. It's not like you're blatantly disregarding what the doctors say.
 

lightNlife

New member
That quote seems very rude. I know many CF doctors who have told me that I know myself much better than they know me because I live with my symptoms everyday. They are only able to advise me based on the input that I give them. In the world of CF care, I believe it's impossible to apply a one-size-fits-all treatment.

You are not abnormal. You're being your own advocate. In my opinion that's not an arrogant sort of second-guessing, it's more like taking what you've been given from the doctors and filtering it through your personal experiences. It's not like you're blatantly disregarding what the doctors say.
 

lightNlife

New member
That quote seems very rude. I know many CF doctors who have told me that I know myself much better than they know me because I live with my symptoms everyday. They are only able to advise me based on the input that I give them. In the world of CF care, I believe it's impossible to apply a one-size-fits-all treatment.

You are not abnormal. You're being your own advocate. In my opinion that's not an arrogant sort of second-guessing, it's more like taking what you've been given from the doctors and filtering it through your personal experiences. It's not like you're blatantly disregarding what the doctors say.
 

lightNlife

New member
That quote seems very rude. I know many CF doctors who have told me that I know myself much better than they know me because I live with my symptoms everyday. They are only able to advise me based on the input that I give them. In the world of CF care, I believe it's impossible to apply a one-size-fits-all treatment.
<br />
<br />You are not abnormal. You're being your own advocate. In my opinion that's not an arrogant sort of second-guessing, it's more like taking what you've been given from the doctors and filtering it through your personal experiences. It's not like you're blatantly disregarding what the doctors say.
<br />
<br />
 

Ratatosk

Administrator
Staff member
No, you're not a horrible patient. I think that you know yourself better than someone who maybe spends 5-10 minutes with you every 4-6 months. And we've all been in situations where we know that something isn't quite right, yet we're told by a healthcare professional that we shouldn't worry about it.

In our case it's usually someone at urgent care who isn't familiar with cf and maybe prescribes something that isn't necessarily in DS' best interest.

And that was kind of a rude comment for the person to say...
 

Ratatosk

Administrator
Staff member
No, you're not a horrible patient. I think that you know yourself better than someone who maybe spends 5-10 minutes with you every 4-6 months. And we've all been in situations where we know that something isn't quite right, yet we're told by a healthcare professional that we shouldn't worry about it.

In our case it's usually someone at urgent care who isn't familiar with cf and maybe prescribes something that isn't necessarily in DS' best interest.

And that was kind of a rude comment for the person to say...
 

Ratatosk

Administrator
Staff member
No, you're not a horrible patient. I think that you know yourself better than someone who maybe spends 5-10 minutes with you every 4-6 months. And we've all been in situations where we know that something isn't quite right, yet we're told by a healthcare professional that we shouldn't worry about it.

In our case it's usually someone at urgent care who isn't familiar with cf and maybe prescribes something that isn't necessarily in DS' best interest.

And that was kind of a rude comment for the person to say...
 

Ratatosk

Administrator
Staff member
No, you're not a horrible patient. I think that you know yourself better than someone who maybe spends 5-10 minutes with you every 4-6 months. And we've all been in situations where we know that something isn't quite right, yet we're told by a healthcare professional that we shouldn't worry about it.

In our case it's usually someone at urgent care who isn't familiar with cf and maybe prescribes something that isn't necessarily in DS' best interest.

And that was kind of a rude comment for the person to say...
 

Ratatosk

Administrator
Staff member
No, you're not a horrible patient. I think that you know yourself better than someone who maybe spends 5-10 minutes with you every 4-6 months. And we've all been in situations where we know that something isn't quite right, yet we're told by a healthcare professional that we shouldn't worry about it.
<br />
<br />In our case it's usually someone at urgent care who isn't familiar with cf and maybe prescribes something that isn't necessarily in DS' best interest.
<br />
<br />And that was kind of a rude comment for the person to say...
 

JennifersHope

New member
As a nurse I can tell you...Second and Triple guess a nurse and a doctor.... Always.... A patient knows there body better then anyone.. in almost every situation.

You are your only advocate... Nurses and doctors for the most part mean well, but are humans who get distracted, are thinking of other things and can easily make a mistake.

I encourage everyone to always be there own advocate... and I would caution anyone to blindly trust anyone for any reason...

Not to say nurses and doctors don't know anything, just saying as a nurse and a patient, I say advocate for yourself
 

JennifersHope

New member
As a nurse I can tell you...Second and Triple guess a nurse and a doctor.... Always.... A patient knows there body better then anyone.. in almost every situation.

You are your only advocate... Nurses and doctors for the most part mean well, but are humans who get distracted, are thinking of other things and can easily make a mistake.

I encourage everyone to always be there own advocate... and I would caution anyone to blindly trust anyone for any reason...

Not to say nurses and doctors don't know anything, just saying as a nurse and a patient, I say advocate for yourself
 

JennifersHope

New member
As a nurse I can tell you...Second and Triple guess a nurse and a doctor.... Always.... A patient knows there body better then anyone.. in almost every situation.

You are your only advocate... Nurses and doctors for the most part mean well, but are humans who get distracted, are thinking of other things and can easily make a mistake.

I encourage everyone to always be there own advocate... and I would caution anyone to blindly trust anyone for any reason...

Not to say nurses and doctors don't know anything, just saying as a nurse and a patient, I say advocate for yourself
 

JennifersHope

New member
As a nurse I can tell you...Second and Triple guess a nurse and a doctor.... Always.... A patient knows there body better then anyone.. in almost every situation.

You are your only advocate... Nurses and doctors for the most part mean well, but are humans who get distracted, are thinking of other things and can easily make a mistake.

I encourage everyone to always be there own advocate... and I would caution anyone to blindly trust anyone for any reason...

Not to say nurses and doctors don't know anything, just saying as a nurse and a patient, I say advocate for yourself
 

JennifersHope

New member
As a nurse I can tell you...Second and Triple guess a nurse and a doctor.... Always.... A patient knows there body better then anyone.. in almost every situation.
<br />
<br />You are your only advocate... Nurses and doctors for the most part mean well, but are humans who get distracted, are thinking of other things and can easily make a mistake.
<br />
<br />I encourage everyone to always be there own advocate... and I would caution anyone to blindly trust anyone for any reason...
<br />
<br />Not to say nurses and doctors don't know anything, just saying as a nurse and a patient, I say advocate for yourself
 
Top