Doing MAC treatment-- night sweat

[bloggymom]

I have been doing the 3 drug regime for MAC. I haven't had a night sweat since I started the 3 drugs... almost 3 months. Last night I woke up in the middle of the night with my chest and neck soaking wet. I felt sweaty but not super warm.

What does this mean?? Is the MAC drugs not working or can I expect a random night sweat while on the treatment?? I was hoping to be done with the IV antibiotics on Wednesday. Should I prepare myself to continue the IV drug?? I have been feeling great on the medication-- increased energy, pretty much no cough, and gained back the weight that I lost. The only change is having a rough time sleeping with PiCC and a snoring husband so I have been more tired during the day... and have been doing more activities during the day than normal.

This night sweat has me all discouraged. Should I be??? Have I pushed myself a little bit too hard and body is reacting??

 

[SoyaSauce]

I am currently on for treatment of MAC also,- I am on 8 months and going strong, but it has been hard.

I have taken oral drugs only at this time, but if my cultures keep coming back clean, I might be free from IVs.

3 months is way WAY to short for MAC treatment, You should be seeing a specialist a.k.a.- Infectious Disease, or if its just your CF doctor treating you -you will be expected to be on them for at LEAST a year if not more sometimes even as long as 2-3 years is not uncommon, and either doctor should know that.

With only 3 months of treatment,- I would not get discouraged -an odd/ weird night sweat I would say can be expected, because you haven't been on the drugs long enough. If you get low grade fevers again or the night sweats get really bad, -talk to your doctor right away- if can be the drugs doing it or the MAC doing it.

My symptoms didn't clear up right away,- and I only just felt better 6 month in-only 2 months ago !! This bacteria is very hardy and extremely SLOW-SLLOO -W growing, so super old ones die and new ones 'hatch', until they are outnumbered and poisoned by the drugs.

Keep taking the drugs/ ivs and take them on time to keep them in your system at all times as they will work !

I would also advise you to get as much rest as you can and slow down, and boot the husband to the living room

If you got anymore questions, hit me up,.. (IV)

 

[bloggymom]

Let me clarify something... I am schedule to do the oral drugs for 12-18 months to start out. I am doing IV amikacin for 3 months and then be moved to inhaled Amikacin.

I suffer from insomnia and when I do sleep it is very light. I am on oxygen to help my sleep issues. We do need to something about our dog who likes to "party" in the middle of the night. I might have to sleep again in the guest room. I just hate sleeping separate from my husband.

I started feeling better on the drugs two days into the process. I have very little side effects from the drugs.

I am being treated by National Jewish for my MAC. I guarantee they know what they are doing.

I just didn't expect to get the night sweats back... especially since they had stopped.