Emotional

[Jane]

Many of you have said recently that you have been very emotional recently, sad, crying, depressed etc. As I was reading Allie's blog, after reading Melissa's blog, I realized that in reading people's blog the past few weeks, we have been left raw. We are hurting for each other, for ourselves. Its what happens in group therapy (which is what this is). We weep, we get angry, we vent, we release, we share, we support, we remember.

We are all feeling it and we are fortunate to have this opportunity to feel. Sometimes I forget to feel because I'm so busy dealing.

Thanks guys


Jane

 

[anonymous]

I agree with you Jane. Sometimes I'm at work and reading these I get tears in my eyes. Of course, I'm so emotional anyway - I can cry at any movie! I just want Allie and Karen to know that I hope someday my son can find someone as caring, understanding and loving as they are! It's just not fair that Troy has to deal with cancer on top of this disease. Like I told my family the other day - It (anything bad) always seems to get the good people. I guess we all know we might be faced with some of the same stuff someday. And some of the other blog's - (Jennifer and I can't remember the other one) I feel so bad for them. I hope as a mother - me kids will always feel that they can come to me and know that I love them. (Sometimes now they get tired of being hugged & kissed - but I know deep down they like it I guess as a parent I know I caused the disease(not knowingly) and I'll do anything to help them. I think you're all great!

Mother of 9yr boyw cf
12yr old girl no cf

 

[anonymous]

Good point, Jane.
I think sometimes in our preforum isolation we used denial bigtime as a coping mechanism. Can't come up here and read some of the posts and do that.

Probably that's just as well (let's us get in touch with our feelings and the feelings of others), but maybe have to pace ourselves as to how much of the hard stuff we take in any one day. In my experience, denial is a highly underrated coping mechanism for someone living with a progressive illness.

Take care,
LisaV

 

[JazzysMom]

I cried all day today until I broke down & called Emilee. Just actually hearing the voice of my pal eased my burden. I just felt stuck, overwhelmed & frustrated. I am much better tonite. I am VERY tired, but a different tired that I have been. Its emotionally tired so maybe I will sleep great!

 

[skh]

I agree with all of the above. I too have a tendency to come to this forum when I am at work and boy, there are times when I hope no one comes into my office because I am a mess!

I spent some time at Eucharistic Adoration yesterday and as I was having my conversation with God and it hit me that I usually speak to Him about cf in regards to my daughter but not yesterday. As I was going over the post about the Gene Therapy breakthrough and expressing my hope that this was really going to help it was not only my daughter but my extended family (you guys!) that I was thinking/praying for. I don't associate cf with just my daughter anymore...you are all included and that was awesome for me to realize. We are not in this fight alone. When you are in pain I want to be there to offer support in what ever way that I can.

I'm not sure if that makes any sense but it was pretty powerful for me.

Sue